(Closed) Calling Dr. Bees for Multiple Sclerosis…….very scared, please help

posted 9 years ago in Wellness
Post # 32
Member
403 posts
Helper bee
  • Wedding: August 2010

Why would you cancel your wedding and take away something so joyous when you clearly could use it right now??? Please don’t take this the wrong way, but the fact that you’re considering this seems to say that you’re having a lot of stress that you’re not handling all that well right now.

Were you going through a lot of stress two years ago, too?

My mom has MS, and daughters of mothers with MS have the highest risk of getting MS themselves. I know what you’re going through, because I’ve gone through similar periods of time where I swear I’ve had symptoms of it: losing my balance for no apparent reason (to the point of falling into a wall), staring at the controls in the car I’ve had for 10 years with NO CLUE how to turn the radio off, problems swallowing, problems with memory… But my doctor said it was probably stress, too. For me, I’m not 100% convinced, but on the other hand, I’m also a nurse and I’ve seen it often in so many patients. Our brains have a way of manifesting stress in a such a convincing way that it seems impossible that the symptom could only be due to stress and not a real physical problem!

For you, it sounds like all of it could very likely be stress related. This is NOT advice, so please don’t take it that way. I’m only trying to explain some of the other causes of symptoms like yours. ๐Ÿ™‚ But the numbness and tingling can be from breathing too quickly and shallowly, which we do when we’re stressed. Muscle twitching can be from stress OR from too little (or too much, if you’re taking supplements) calcium or potassium. The fatigue and “brain fog” are symptoms that are highly, highly correlated with stress and/or depression. Symptoms like your thumb pain could be from something that you just can’t remember doing — like overusing your thumb when doing a DIY project, arthritis or banging it against something — but are attributing to MS or Lyme disease out of fear.

Focus on your wedding, try actively trying to destress with things like meditation, taking some wedding-free time where thoughts of the wedding (AND your symptoms) are banned, and just breathe.

Again, were you going through a lot of stress two years ago? Because if you were, I’d be willing to bet that the neurologist was right, and that’s a lot better than what you’re afraid it might be. ๐Ÿ˜‰

Post # 34
Member
1066 posts
Bumble bee
  • Wedding: September 2011

The swelling stuff does not sound like MS symptoms to me.  I hope your Dr can do a test for Lyme as soon as possible so you can have peace of mind… I wonder if it could also be due to allergies or something??  The brain fog is really hard to deal with.  I hope you get to the bottom of this soon.

Post # 35
Member
458 posts
Helper bee
  • Wedding: July 2011

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@fishwoman: Lyme is starting to be frequent in our area but apparently the blood testing for it here in Canada is too broad and it often doesn’t show up. Thus people are going to the US to pay for tests that work. Apparently it happens a lot (LYME disease).  Many people dont’ remember a bite, etc.

Post # 36
Member
937 posts
Busy bee
  • Wedding: September 2010

The thing about MS is that the symptoms and severity differ from person to person. Not everyone has all the exact same symptoms, and not everyone is affected the same. While I’m not sure your symptoms sound exactly like MS, I do think it’s good that you are seeing a doctor and taking this seriously.

My sister was recently diagnosed with MS. I came home from my honeymoon in September to find that she had been hospitalized. She is a critical care nurse, so for a long time, we all just chalked her symptoms up to working long hours in a very stressful environment. Turns out it wasn’t stress (although stress does exacerbate her symptoms), but MS. My sister had NO idea she had MS until she found herself in a “fog” at work, forgetting everyday things, unsteady gait, lightheaded, feeling like she was drunk, extremely fatigued all the time. They ended up finding swelling and lesions on her brain. It is likely that she had MS for awhile, but it wasn’t until September when the disease kind of “took her down.” I agree with @MissBumble though, after running a ton of tests on her, the only way they were able to definitively diagnose my sister was through the lumbar puncture. From what you’ve said, you likely don’t have MS, but even if you did, please understand that it’s NOT a death sentence. My sister is back to work full time and lives an active life. She is planning on having a baby and is going to live her life to the fullest extent possible.

Please try not to get too upset or make any big decisions until you hear back from your doctor. I see no reason why you shouldn’t be able to have the big wedding you’ve been planning, and I definitely don’t think you should cancel anything. Good luck, we’re all pulling for you. ๐Ÿ™‚

Post # 38
Member
1361 posts
Bumble bee
  • Wedding: April 2011

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@fishwoman: My mom got really sick about a year ago, and the Dr.’s didn’t diagnose her with anything.  She also thought it was Lyme’s disease (online research on her part).  She had a crapload of tests and they still didn’t find anything wrong, and told her it was just stress.

It was really frustrating for her to be having physical symptoms and to be told it’s “all in her head”. 

She is doing a lot better now, and living normally.  So hopefully that gives you hope that even if the dr. doesn’t find anything wrong, it will most probably pass.  And if something is wrong…there’s so many different treatments out there, especially if you catch it early.

Keep us updated!

Post # 40
Member
1066 posts
Bumble bee
  • Wedding: September 2011

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@fishwoman:

Do NOT think that way!!  The wedding will bring you so much happiness, you will regret postponing it.  Your family and friends will help you do whatever you need to make your wedding plans less stressful, and they will be there for you.

You don’t know what it is yet, but hopefully if it is Lyme’s, they will diagnose quickly and start your proper treatment.

You’re really worrying to the point that you’re probably making yourself sick, I did this too, just please have faith in the doctors and wait for their advice.

Post # 41
Member
280 posts
Helper bee
  • Wedding: September 2011

I got diagnosed with ‘possible’ MS last year after my optic nerve got swollen and my vision went crazy in my right eye.

In Australia, doctors are treating for MS from the first clinical sign. We are lucky here that a majority of the cost of the medication is covered by our Government under our health care system.

 My neurologist ordered an MRI and found that I had some lesions on my brain and spine and that was good enough for him to say that I should start on treatment straight away so that I could try to slow down the progression of MS, rather than waiting to formally diagnose it which could take years. I give myself an injection every day. It’s been almost a year to the day that I had my first symptom of MS and so far I have had nothing else go wrong.

I am scheduled for another MRI next week (I have one annually) just to monitor the existing lesions and see if there are any more.

I have two pieces of advise that my neurologist has given me:

1 – Do not read about conditions on the internet. The people who have diseases but lead happy and healthy lives do not spend time writing about it on the internet. You are always going to read the worst case scenarios.

2 – With today’s technology and medication he sees no reason why someone diagnosed with MS now should ever end up in a wheelchair.

In all honesty though, what you’re describing doesn’t really sound like MS to me – but it does affect everybody differently. Go ahead with your wedding – be happy!

 

Post # 42
Member
104 posts
Blushing bee
  • Wedding: July 2011

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@fishwoman: I have absolutely no doubt that you are having these symptoms and that you are worried and stressed to the max.  We are all concerned for your well being and wish you all the best. 

But even though we are all begging you NOT to cancel your wedding and to use your family and friends to assist as much as humanly possible to relieve as much stress from you – you are still talking about cancelling your wedding.  Could you be using all these unknown health issues as a reason to cancel your wedding because you are really having cold feet?  I don’t mean to be ugly, but we really don’t think that your family and friends would mind assisting you especially when you need them most. 

Post # 43
Member
103 posts
Blushing bee
  • Wedding: September 2011

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@Sesame Snap: I agree with this…STOP looking at stuff online! 

 I went through this in November.  I went to the ER because I woke up and could not see out of my left eye.  When my vision came back, I had no peripherals.  They admitted me to the hospital to make sure I wasn’t have a stroke of anything life threatening.  I wasn’t having a stroke and I was released.  My symptoms were SPOT ON for MS.  I was convinced that I had it.  I went through many tests and many MRIs!  They only way that MS is diagnosed is thru a LP…you have to have at least two lesions and a LP come back saying you having MS.  Get the LP to ease your mind on that….but it hurts….FYI. As far as the LD….you have to not stress over it….get tested for it…you stressing about it is exacerbating your symptoms….a lot. 

Please just know…that whatever this is…is NOT bigger than you. You ARE strong enough to make it thru this…and what really helped me when I was going through this was telling myself that…”you are going to die from whatever this is”

I still live in fear that I will have a flare from my symptoms from Nov before the wedding.  (It ended up being a migraine much like the one the LA area reporter had on air) But, I would NEVER cancel my wedding….nothing is going to stop me from the happiest day of my life…NOTHING!

 

PM me if you want to talk more! ๐Ÿ™‚

Post # 45
Member
109 posts
Blushing bee
  • Wedding: October 2011

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@fishwoman: I’m so happy you have an appointment!

I have MS, my good friend has Lyme Disease. I was tested for Lyme when I had my first MS symptoms. There are multiple tests for Lyme and you generally need a few. All these diseases are hard to diagnose but they will be and they can be treated to drastically improve your quality of life.

As so many wonderful ladies have told you, thinking positive really truly helps. I understand your feelings though, sometime I feel the same way. I wonder why my Fiance wants to get into my complicated life. But, you need the support of people who love you.

The truly awful side effects of MS and Lyme are RARE! Many many people live happy, productive lives with chronic disease.

I know how awful the unknown period can be. Its agonizing. Don’t give up on everything good in your life just because of this bad thing. This issue is not your whole life, don’t let it become the center of your world.

Take things one step at a time. Don’t worry about a gluten free diet at this point, that’s not a treatment but a diet that is touted to improve quality of life in people with a host of issues. Relax, STOP GOOGLING SYMPTOMS, see your doctor and see what he says.

If you need anything, let me know!

Post # 46
Member
104 posts
Blushing bee
  • Wedding: July 2011

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@fishwoman: I just wanted to check in to see how your appointment went today.  You did go and see the Lyme specialist today, right?  Give us all an update on how the appointment went and how your holding up, please!

The topic ‘Calling Dr. Bees for Multiple Sclerosis…….very scared, please help’ is closed to new replies.

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