(Closed) Celiac = Frustrated.

posted 6 years ago in Wellness
Post # 3
Member
540 posts
Busy bee
  • Wedding: May 2012

Hi there!  My baby sister was diagnosed with celiac in infancy.  I bet it’s much harder to deal with being diagnosed later in life after being able to eat pretty much anything.

She’s much much younger than I am, so I still cook for her when she visits.  I’ve found some brands that make decent gluten free products.

Pasta – Tinkyada’s pasta is made from rice, which at least gives you that gluteny chew rather than the mealy feel some other gluten-free pastas give.

Whole Foods – our local Whole Foods makes their own gluten-free baked goods kept in their frozen foods, which are pretty good.  I know you said you’ve checked out Whole Foods already, so not sure if you’ve seen them.  I don’t eat gluten-free regularly, but I actually like Whole Food’s gluten-free cookies, brownies, and pies.

Pizza – eh, I’m also still working on finding a “normal” tasting pizza.  I’ve settled on Amy’s gluten-free pizza for my sister, but there’s something a little off (to me).

Hope this helps a little.  I know it must be frustrating, but it gets a little better once you get a hang of it.

Post # 4
Member
267 posts
Helper bee
  • Wedding: August 2011

One of my friends has Celiacs.  She is also a vegetarian.  She was a vegetarian for many years before finding out about the Celiacs, so it was even more of an adjustment for her since she didn’t eat meat already.  She does miss a lot of the foods she used to eat, but she has found some great substitutes.  She cooks all of the time and goes out to eat 2-3 times a week and has no problems.  Definitely join a Celiacs forum to get ideas for some good recipes and other support.  She makes some amazing baked goods – all gluten free! You just have to look in the right places, keep trying different gluten free foods, and eventually you’ll find something that is close to what you used to have! πŸ™‚ It will get better as time goes on!

Post # 5
Member
2077 posts
Buzzing bee
  • Wedding: August 2012

I’m sorry you’re struggling with this. I don’t have a gluten intolerance, but I worked at an organic market that carried tons of gluten-free products, so I’ve tried quite a bit of it!

Pasta- Tinkyada pasta is claimed to be THE gluten-free pasta, though I haven’t tried it myself. People would specially order it because they claim it’s the closest to regular pasta. Also, I believe Newman’s Own pasta sauces are all gluten free (and very good).

Bread- We sold tons of Udi’s bread, but I wasn’t a huge fan of it. We got in a new kind of bread called Canyon City Bakehouse and it was really, really good- especially the muffins.

Baked goods- One of my favorite boxed cookies is Enjoy Life’s Snickerdoodle. They’re excellent. Pamela’s mixes (especially the corn bread an pancake mixes) are out of this world. I don’t recommend her boxed cookies though, the ones I’ve tried were very dry.

Pizza- Most people that came to the store would make their own pizza instead of buying frozen. Bob’s Red Mill has a popular pizza dough mix, but I haven’t tried it yet. We sold out of it at the store often though.

Oatmeal/Granola- Bob’s Red Mill gluten-free oatmeal was EXTREMELY popular and we couldn’t keep it on the shelves. As far as granola goes, Enjoy Life has some great flavors.

Salty snacks/Chips- there are tons of delicious chips that are gluten-free, but my favorite are Kettle brand. Glutino’s pretzels are very good.

I would recommend visiting smaller, local grocery stores and asking them if they happen to carry any local gluten-free products. We had a lady who made desserts and we carried them in the frozen section. She’s spent 10 years perfecting her recipes, and they were to die for. I’m sure there are options like that in your area!

I’d also suggest you visit online, or in person, support groups for food allergies. You can get tons of info and suggestions from people through the groups.

It’ll take some time to get used to it, but you’ll do great. Once you find substitutes for the foods you love, it’ll be so much easier for you. πŸ™‚

Post # 6
Member
928 posts
Busy bee
  • Wedding: August 2011

@Linz1231:  I hear ya. I’ve just been diagnosed – I tried the Atkin’s diet a few weeks before my wedding in August and discovered that I felt a million times better not eating cereal grains.They I went for some totally unrelated bloodwork and lo and behold I had non celiac gluten sensitivity. Awesome #sarcasm alert.

It’s taking a bit of trial and error but I have been able to find some reasonable alternatives.

I really like this woman’s blog:

http://glutenfreegoddess.blogspot.com/p/site-index.html

But sadly, I have yet to find a tasty gluten free pizza πŸ™

Post # 7
Member
1747 posts
Bumble bee
  • Wedding: May 2012

My brother in law was recently diagnosed with Chron’s, so my mother in law has been making lots of things with almond flour? I had cookies with almond flour the other day and I think they were fantastic.

I’m sorry you’re going through this :(. It seems a lot more commonplace these days for people our age to get Celiac or Chron’s. Did your doctor say what brought it on? I’m so curious as to how this happens. 

Post # 8
Member
104 posts
Blushing bee

Hi.  I was diagnosed with Celiac almost 2 years ago after eating whatever I wanted and it was scary to change my whole life, but once I started feeling better It was all worth it. I’ll try to give you a few suggestions.

I really like Schar brand pasta.  Some of the others I’ve tried leave a weird film in the water and get all mushy.  This one seemed to stay nice and al dente and it didn’t leave a strange gunky film. I also have tried the Better Batter gluten free flour and thought it did pretty good subbing in for regular flour.  

The bread situation is disappointing because they all seem to be smaller than normal loaves, BUt i’ve found 2 that I think are pretty good.  Canyon Bakehouse makes really good bread..the closest I’ve found to the same consistancy of real bread.  The Udi’s is OK, but I like the other better.  Also, Glutino Genius white bread is good. 

Dont get too overwhelmed. I was and would cry just going out to dinner or to the store bc I couldn’t eat what i used to. but alot of the name brand foods are actually still Ok to eat. Lay’s brand chips and Doritos’ does put the ingredients on the back.  Cheetos are fine too.  There’s more but I don’t want to go on and on.  πŸ™‚

Let me know if you want any help or have any questions. 

Post # 9
Member
3175 posts
Sugar bee
  • Wedding: May 2012

The best websites I’ve found for gluten free recipes are

elanaspantry.com & lifeasaplate.com

Every recipe I’ve tried from either website has been seriously delicious.

Post # 10
Member
1676 posts
Bumble bee
  • Wedding: July 2012

If you’re a culinary arts student, you might want to do what my Mother In Law does and try grinding your own flour. She has a Vitamix and grinds rice and other gluten free carbs into her own flour and then substitutes. She’s still new at it, but her cake turned out great!

Post # 11
Member
1659 posts
Bumble bee
  • Wedding: July 2012

Hi! I’m gluten intolerant and I’m soooo happy I feel better now. I cook all the time too, and I love food like crazy. I’ve just totally had to re-vamp the way I think about ingredients. Girlfriend substitutes for just about anything grain based suck, so I not even bother anymore. Have you tried those trader joes brown rice tortillas? Yuck! I love their handmade corn tortillas, though. And the TJ’s brown rice and corn pastas are really good and a lot cheaper than tinkyada or deboles.

I feel like I’ve gotten more creative and healthy with things like pan sauces and dessert options. I would be more than happy to share some recipes or ideas with you! I have found my transition to be pretty simple, and I’m always happy to help. I have a vegan friend with celiac who I come up with recipes for all of the time, even…ask me about my roasted vegetable enchiladas with homemade enchilada sauce πŸ™‚

Post # 12
Member
1735 posts
Bumble bee
  • Wedding: August 2012

I work with a girl who is gluten intolerant.  She has this recipe for gluten free bread I tried some this morning and was actually quite good next time I see her I will get the recipe!

Post # 13
Member
1735 posts
Bumble bee
  • Wedding: August 2012

She also has a great perogi recipe!

Post # 14
Member
224 posts
Helper bee

oh no! don’t be sad! i’m coeliac too and if anything it’s made me MORE interested in food!

i agree with Ellegee – don’t substitute! eat lots of brown rice, quinoa, and other grains like that.

you have to try your best to forget about the pizza. if you don’t you’ll only make things worse for yourself. remember how bad you feel when you eat gluten? whenever you see anything with gluten in it, think about how it makes you feel.

i don’t even look at bakeries anymore. whenever i see them i don’t think ‘yum’ – i think ‘poison’.

my dad was diagnosed 20 years ago and he’s adjusted really well. that’s probably why i adjusted well, too.

for breakfast i like gluten-free muesli with soya yoghurt (funnily enough i find that limiting my dairy intake also helps), sliced banana and blueberries. yum.

for lunch – jacket potatos are always a winner for me. with tuna mayo or cottage cheese and a salad. chilli is pretty good, too. you can get Girlfriend pitta breads which are ok. toast it, though. and toast bread. i never eat sandwiches – Girlfriend bread is awful if it’s not been toasted – and then it’s only just tolerable. Do you have Genuis bread in the USA? If you do – the Multi Seed loaf is amazing. the others aren’t – but the multi seed is.

for dinner – ooh where do i start! Girlfriend pasta is alright, but it won’t compare to normal pasta. brown rice pasta is pretty watery and breaks down easily. maize pasta tastes more similar to normal pasta. i recommend maize for tomato based dishes and brown rice for creamy dishes. maize takes a lot longer to cook.

my favourite meal is salmon, brown rice and tender stem broccoli. no substitutes there! shepherd’s pie you can make with Girlfriend gravy – any meat/veg/potatoes dish is good.

as for baking – i would recommend doing it yourself. Girlfriend cakes are SO expensive! i have a killer banana bread recipe

http://treacleandink.blogspot.co.uk/2011/07/gluten-free-banana-bread.html

and other recipes on my blog (which i haven’t updated in a while)

http://treacleandink.blogspot.co.uk/search/label/Food

xanthan gum is your friend when it comes to baking. for Girlfriend pancakes, i use this recipe http://www.nigella.com/recipes/view/american-pancakes-with-wafer-bacon-and-maple-syrup-2562 and just use Dove’s Farm plain flour and add a teaspoon of xanthan gum. they’re perfect.

but with baking you’ll usually need a bit of patience – which is difficult because the ingredients are expensive, and you’ll hate yourself if it doesn’t work – but once you master it you’ll be laughing.

 

another point – as you’re newly diagnosed, chances are coeliac’s has been playing havoc on your intestines for a while now and you’ll be pretty darn malnourished. increase your intake of fruits and veggies a million-fold. you’ll need every bit you can get. i was told it takes half the time you were ill for your body to repair the damage fully. for me that’s anything between 3-11 years and i still have trouble every now and again. but try your hardest not to slip – you don’t want to undo all your hard work! πŸ™‚

Post # 15
Member
10453 posts
Sugar Beekeeper
  • Wedding: February 2014

@Linz1231:  I’m Canadian, so obviously some stuff will be different. Do you have Candelari’s pizza nearby? I’ve been in Houston and I don’t know if it’s a chain, but they are awesome.

Post # 16
Member
573 posts
Busy bee
  • Wedding: June 2014

I don’t have celiac but I have a good friend who does and around here some places are starting to create gluten free menus. I know she eats a lot of Quinoa, which I also love.

Also this blog is for crockpot cooking but the lady uses all Girlfriend products because someone in her family has an intolerance. She always lists the products that she prefers to use, I don’t know if it would be helpful but here it is just in case.

http://crockpot365.blogspot.com/2008/04/crockpot-5-layer-brownie-recipe.html

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