Post # 1
So Saturday reinforced why I am having a wedding with just FH and myself. I have a muscle disease called CMT and wear leg braces so I need to wear pants or long dresses. Was attending a wedding in a really pretty maxi dress, fancy jewelry, nails done, the works. The traffic flow required guests to walk across the slightly raised dance floor after going through buffet to return to their tables. Well…….I somehow stepped wrong or something and landed splat right in front of the bride and groom’s table with rice and salmon flying. Good grief. FH and another guest helped me up. I managed to hold in my tears until they got me out of the ballroom. Sitting there with a bleeding knee and my other “bad” knee hurting, I was thinking I’m getting married in two weeks and I keep falling. Previous fall was one week earlier and had just stopped hurting. I did manage to compose myself and enjoy reception but that’s because falling publicly is something I do well!
Any other bees with physical limitations? This is my second marriage and though I am incredibly lucky that my first love and I reunited, part of my is a little sad that we missed my best years, before my muscle disease progressed. I know I’m supposed to be happy but isn’t it normal to grieve the loss of mobility and freedom. I am a nurse and had to finally go on disability because my hands don’t work well either. Need words of wisdom please..
Post # 4
Awww, hugs. No advice, just wanted you to know that I wish you the best, and you and your wedding will be absolutely perfect no matter what 🙂
Post # 5
So sorry hun. I wish I had words of wisdom for you! I would think that mourning the loss of mobility and loss of a career (especially one like nursing which can be more like a “calling” than a “job”) is a totally normal thing to do. And the years ahead of you are going to be some of the best of your life too – you are with the person you love!
Post # 6
@Pamelor55: I’m sorry :'( everything happens for a reason and not in the timeframe we want. You just have to embrace and enjoy the moment. You’ve lived to love and that’s the most priceless gift while here on earth.
Post # 7
My FI’s Mom and Step-dad are in a very similar situation as this. His step-dad is paraplegic, and his Mom has arthritis and had to go on disability because of it progressing (she was also a nurse.) They’re happily married now, and I know things are hard for them daily (FI often takes the hour trip up there to do repairs, cut the grass, help around the house as needed), but they haven’t stopped living in the least! FI’s step-dad has also fallen in his wheelchair and FI’s Mom almost couldn’t help him recover. He was just in the hospital for a few months and has just recently returned home. Life is harder for them, but they’re wonderful people and very much in love! I never understood just how difficult a physical disability was until I watched them and saw how much help you honestly need. HUGS and congrats on your upcoming marriage! I know that no matter what happens, at least you’ll have your FH by your side through it all! 🙂
Post # 8
Big hugs sweetie <3 I’m pretty klutzy and have done the public fall thing so I feel your pain in that respect..
2 little stories for you..
One of my besties form hs was a car accident the year after we graduated while a group of us were caravaning to a cottage party. She broke her back in the crash, and after a year of physio and surgeries she managed to mostly regain the use of her legs, minus one foot. She has no use of her right leg from the knee down and wears a brace. Her wedding was last summer and she looked beautiful and when she was to tired to walk at the end of the night, her groom carried her out at the end of the night. It was beautiful.
My sister has Rhumatiod Arthritis and walks with a cane. She has several stylish ones and matched to her outfit on special occasions. She cant wear heals and sometimes cant get out of bed. She used a cane at her graduation and tripped up on stages when she accidentally placed the cane on her robe. She managed not to face-plant but was still pretty mortified. She’s in my wedding and I’m going to have my brother walk her down the aisle because I know she’s worried about another cane incident.
My sister is very much as inspiration to me because she manages to achieve so much even though her illness is progressing. She is doing her doctorate in supramolecular materials chemistry and has been presenting her work at universities around the world. Their have been weeks at a time where she can`t get out of bed and has managed to keep moving forward.
I know you will find a way to keep at least some aspect of your career in your life, it just might require some looking around. Something may present itself in the least likely place!!
Congrats on your upcomming wedding, best of luck 🙂
Post # 9
Not any personal experience, but Fiance had severe arthritis in his neck/shoulder/back. He does a great job covering up his pain, but sometimes it’s very bad for him, and I’m sure it will continue to get worse as he ages.
Sending you hugs! Just know that your Fiance loves you and I’m sure is so thankful he found you. Don’t worry too much about meeting after your “best years” are gone. I’m sure he doesn’t look at it that way at all.