Post # 1
It’s been a while since I have come to you all. My husband and I have experienced a very difficult past couple of years. I know that you have all been here for me in the past, so I am hoping that some of you might have some insight for me now.
My husband has been dianosed with a rare disease called Neuromyelitis Optica (NMO). It’s an autoimmune disease that effects your neurological system, specifically your optic nerve and spinal cord. It has been known as similar to MS in its presentation.
We have tried many different treatment options for my husband to regain vision in his left eye after his most recent attack. Steriods and even a plasma exchange have failed us. The only option left is to treat him with chemotherapy or do nothing and have his vision in that eye lost. The chemo they are reccomending is called Mitoxantrone. We have been told it is a very mild form of chemo.
I am really scared, worried, stressed out etc. because my husband and I really want to concieve in the next year or so. I have been on birth control for over 9 years and wanted to give my body a chance to get back to normally before we offically start to try. I am worried now that we might not ever get that chance because we have been warned that there is a 5% chance the treatment will make my husband infertile. They suggested we consider sperm banking. My hubby is so sweet he is considering not even getting the treatment so it doesn’t ruin our chances. I think he should try to get his eye back, but I also want a baby so badly. We don’t know what to do.
Do any of you have insight on any of this? The chemo or sperm banking? I’m assuming the sperm banking is going to be very expensive and I know nothing about the process. Any info would be greatly appreciated. Have any of your spouses gone through chemotherapy?
Thanks in advance to all of my wonderful bees. I need you guys 🙁
Post # 3
I don’t have any advice, just wanted to tell you I’m sorry about everything you’ve had to deal with.
Post # 4
My husband went through chemo & radiation a year before we met for Hodgkin’s Lymphoma. He did do sperm banking (he was only 18/19 at the time)…. I have no idea the cost or anything like that though. I do think that the primary reason for the banking though was for the radiation, not the chemo.
I can say that we have had NO problem conceiving, TWICE. (both first cycle).
Sorry you & your Darling Husband are going through all this, I do hope that everything turns out for the best & that when you guys are ready you won’t have any issues! I know that even though we haven’t, it was something that worried us both times. Just one of those things that always stays in the back of your mind. Fx that you guys can come out as easily as we have!
Post # 5
The husband of one of my best friends has Crohns disease and was treated with a mild form of chemotherapy ( I don’t rember which one?). They has no trouble getting pregnant with their second child. Good luck!
Post # 6
5 percent seems very little chance of infertility to not risk getting treatment to help your husband, IMO. also, they said consider sperm banking, is that not an option? i would say your best bet is to look into sperm banking. i cant imagine risking the health of your husband because of a 5 percent chance of infertility. i dont have experience so maybe other bees will have some insight on experience, however, everyone is different so even if some had trouble or some didnt. everyone is different. so keep that in mind too! best of luck to you both!
Post # 7
I imagine sperm banking would be cheaper than cord blood banking, and that’s not very expensive for 18 years. Look into it a bit before you just write it off as too expensive!