(Closed) Complex/Complicated Migraines

posted 7 years ago in Wellness
Post # 17
Member
1746 posts
Bumble bee

Stress and lack of sleep are big triggers for me.  Alcohol also triggers them – not just wine, but any alcohol, it doesn’t take much- maybe 1/4 of a beer.  So I may take one sip to taste something, but basically I’ve quit drinking to avoid migraines. 

Post # 18
Member
979 posts
Busy bee

@MrsWe  

I never developed regular severe migraines until I got the Mirena.  My ocular migraines were gone for 9 months prior to inserting the Mirena and only lasted through my divorce, from stress.   I still had migraines up to a year after Mirena was removed, so my doctor put me on medication for it.  I had the Mirena removed because it was causing too many other health issues besides the migraines.  I’ve never had a headache or a migraine prior to having Mirena though. Just the ocular migraines, but it was just more annoying than anything.  The 20 minutes of zig zag flashes every day. No headaches followed from those.  

Post # 19
Member
2418 posts
Buzzing bee
  • Wedding: August 2015

@NJmeetsBX:  Everyone’s triggers are different. For example, one of my main ones is the smell of Sharpie markers. BC pills also made them worse. Unlike jmaze:, mine have gotten better since I got on the Mirena. However, when I do get them, they are bad. Like I have to be in bed because I get the spines, spotty vision and super nauseous. The best thing to do is keep a headache journal. I know it sounds crazy but if you can write down what you are doing when you get a migraine, it can help pinpoint your triggers.   

Post # 20
Member
2457 posts
Buzzing bee
  • Wedding: September 2012

@MrsWe:  I get them too.

 

I have been getting migraines with auras since I was 9 years old. Went to a bunch of different docs in high school, had CT Scans, etc… they couldn’t figure out the cause. 

I still get auras, but just plain ole headaches now instead of full-on migraines. Still super sucks. 

Post # 21
Member
2129 posts
Buzzing bee
  • Wedding: July 2016

Okay I just looked on the Mirena website and they are estrogen free, so I guess doctors will still prescribe it to migraine sufferers.

Post # 22
Member
2129 posts
Buzzing bee
  • Wedding: July 2016

@jmaze:  So you use to experience aura with no pain afterwards, interesting.

Post # 23
Member
2129 posts
Buzzing bee
  • Wedding: July 2016

@StephieBee:  

What I do now is when the aura is happening I take extra strength Tylenol and the pain never comes, but I will still feel “off” or not like myself the rest of the day. My doctor has prescribed Sumatriptan for me, but I haven’t had to use it because extra strength Tylenol is sufficient as long as I take it before the pain sets in. Once the pain sets in nothing makes it go away (well maybe the sumatriptan will but I haven’t needed to use it yet)

Post # 24
Member
2457 posts
Buzzing bee
  • Wedding: September 2012

@MrsWe:  That sounds like a good plan. I used to try to take Exedrin when I got auras, but it seemed like once they started, there was no stopping the headache. When I was younger, it was so bad I’d throw up and be out for the count the whole rest of the day. 

Nowadays, it takes about 3 hours for the headache to go away. Then, it’s just like you said – I feel “off” all day long. It’s really quite annoying. O_O

Post # 25
Member
2129 posts
Buzzing bee
  • Wedding: July 2016

@StephieBee:  OMG yes! The throwing up and other stomach issues  🙁  Fortunately for me  tylenol cures all that too as long as I take it before the pain set in…

Post # 26
Member
979 posts
Busy bee

@MrsWe  Yes, just eye aches, my eyes feel tired afterwards, no headaches followed. I was at the eye doctorand he sent me to my regular physician for it. They both said there was nothing they could do for it if I wasn’t experiencing headaches or migraines afterwards.  Just to lay down with my eyes closed when they came on and rested.  I had my prescriptions changed for my contacts and everything. Even wore my glasses.  They said everyone experiences it differently.  

Not everyone gets headaches from ocular migraines (zigzag/flashes of light). My mom gets them all the time and doesn’t experience headaches afterwards either.  To me, they are just an annoyance.  Just brought on my stress for me. That’s my only trigger.

Mirena – migraines are a side effect – and a long term side effect.    

Post # 27
Member
2457 posts
Buzzing bee
  • Wedding: September 2012

edit: double post, ugh

Post # 28
Member
342 posts
Helper bee

My ex-husband had complicated migraines. When the first one happened, I swear he was having a stroke. He had one-sided facial droop, slurring words, and one-sided paralysis. He spent 3 days in the hospital, and they said, “we don’t know what it was”. They sent him home and it happened about 3 days later, some symptoms only on the OTHER SIDE of his body. The ER doc said “complicated migraines” right away, but sent him to the Stanford Stroke clinic to be evaluated. ALL MRI’s were normal. Not a stroke. He takes Verapamil to keep them from recurring. What a scary thing they are!

Post # 30
Member
4856 posts
Honey bee
  • Wedding: August 2013

@NJmeetsBX:  it’s usually the day it starts. It doesn’t happen every single month.. but I usually take a loading dose of naproxen. I know when I start dropping things and the light is unusually annoying that one is coming on. 

Edit, I should mention I also get a droopy eye sometimes.. much like a stroke eye. :

Post # 31
Member
175 posts
Blushing bee

what is the quality of your sleep like? I get 8 hours of sleep a night due to a night shift, which gives me migraines. sounds like a lot but when i am off the shift and get 10 or 11 hours I dont get any!

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