Post # 1
I’d love to find out if anyone has any advice or has experienced anything similar.
I’ve had several UTI’s over the past 12 months, but have found good strategies to deal with it and I haven’t had one since January. HOWEVER, I have continued bladder irritation. It happens mostly at night when I just get into bed or just after I’ve been the bathroom that I would have weird shooting/stabbing “pains” (not super painful) in my bladder. I thought this might be a result of a lingering UTI so I went to my Dr who ran tests and said there was no infection count, and she also tested for candida overgrowth and that was negative as well. She seemed to think I was just being a bit paranoid after having so many UTIs so we just left it there. It’s not that I think it’s that serious but it is quite uncomfortable and also makes me feel like not wanting to have sex since I’m always aware of my bladder and feeling like I have the beginning of a UTi (before it gets really bad). I would rate the pain as only about a 2 or 3 and only a few times a day. So I could live with it, but I would just like to know what causes it and what is happening. I do take D-Mannose which has mostly been a life saver since that is what stopped the recurrent UTIs, but it has no effect on this bladder discomfort I’m experiencing.
So bees, any ideas of what this could be? My D H asked if it could be something with pelvic floor inflammation but from what we can find out my Dr should have picked up on that during my last check up. Any ideas or advice would be greatly appreciated!
ETA: I drink the suggested 8 glasses of water a day (sometimes a bit more) and try to avoid known bladder irritants such as caffeine and alcohol.
Post # 2
Look up interstitial cystitis. I am pretty sure I had this (self diagnosed tho, my annoying doc thought my pain was in my head, wtf) until I went off the pill. It can be hormonal. My worst pain was right before my period every month. Hope you feel better soon!
Post # 3
Hi Bee, if you have had a lot of infections, it’s possible you have residual inflammation or even scarring that is causing your continued symptoms. Inflammation can make it feel like you have an infection, even if there is no bacteria present. We see this very frequently with patients who are getting radiation treatment for pelvic cancers… (Not your issue at all, but this is where my knowledge comes from) We always try treating it with an NSAID first (advil, ibuprofen, etc. usually 600-800 mg per day x 1 week) and it often takes care of it. You should talk to your doctor about it to see if they think that could be it. Don’t start an NSAID regimen without talking to your doctor first.
Post # 4
Interstitial Cystitis – and plenty of Drs don’t pick up on that or think to do a referral. It’s truly appalling how low-ranking female-specific health problems are in the medical community.
I also dislike how she discounted your pain b/c “paranoia” – that sounds a lot like internalized sexism to me.
I would find a new GP.
Post # 5
I have Interstitial Cystitis and it really is a pain. It took me a while to figure out what was going on. I thought it was a UTI, but tests always came back negative for one. @eeyore2000 thanks for bringing up the hormonal connection with IC, I didn’t realize that could be a reason why I’m only annoyed by this at certain times of the month.
Post # 6
This is good guess. *IF* it is correct., there’s inflammation so the standard anti-inflammatory drugs will be used, from weakest to strongest, NSAIDS to possibly systemic corticsteroids. *IF*
I would definitely see a urologist. This is what they do.
Post # 7
sounds like interstitial cystitis. Marshmallow root and aloe pills can help a ton if it becomes chronic. Also benadryl and advil. It sounds like you have a lot of inflammation going on. Watch what you are eating, acid can aggravate it.
I’ve had chronic utis my whole life. These days it’s only if I don’t take something after sex. I take grapefruit seed extract, nutribiotic brand, 2 tablets with 20 oz of water, after sex, and it doesn’t matter how kinky, I don’t get a uti.
Post # 8
In the meantime, pee after sex every single time, drink water, stay away from excess carbs, try cranberry pills.
Post # 9
Are you seeing a regular family practice doc or a urologist? If you’re not seeing a urologist I’d highly recommend it.
Post # 10
I also say it could be interstitial cystitis. I too had it but luckily have been able to get it under control. I stay away from OJ or any juice that is too acidic, take turmeric pills daily and would eat inflammation-soothing food when it flared up.
Post # 11
just ordered turmeric pills. Thank you for that suggestion.
Post # 12
Hi bees, thanks so so much for all the helpful replies!
From what has been suggested I’ve been researching IC. I won’t really be able to go to a urologist before I go home again over Christmas so I’m thinking I’ll take the next 6 months to try and make some lifestyle changes and also take some of the health supplements suggested – I bought some tumeric pills today! (Couldn’t find any grapefruit seed extract.) If I’ve not managed to improve my condition by december or if it worsens I’ll definitely go to a urologist asap. Right now it seems worth a shot to try some alternatives.
Thanks so much for the help bees, and strength to those suffering from IC/inflammation. Treatment seems very under-researched and generally poorly understood. This was my experience with UTIs as well. Drs were so quick to just keep prescribing antibiotics and never thought about the problem holistically at all. I ended up doing my own research and solved the problem way more effectively and without all the negative side effects to constantly having to take antibiotics. Don’t get me wrong, drs can do amazing and helpful and wonderful things, but I feel like I can’t leave it all to them. I want to also be informed and try from a lifestyle point of view to be systemically as healthy as possible!
Post # 13
I have IC, as well. What helps me is taking Prelief a couple times a day (it’s an acid reducer made specifically for bladder irritation), especially before I eat/drink anything that’s high acidity. I also stopped drinking coffee, which was pretty much the hardest thing ever, but it’s helped so much. After sex, I take Cystex to help calm any bladder irritation. It also has a mild antibacterial, which helps prevent UTIs. Pyridium (either prescription or Azo) helps when I have a mild IC flare up. When I have a really bad flare up, I take half a Xanax and it helps tremendously.
Post # 14
If you want to get really proactive, you should start a food journal and follow the IC diet to the best of your ability.
I can tell you from experience, if you go to a urologist, that’s the first thing they will ask you to do. If you’ve already done it, then you can moe quickly on to the next steps.
I went to a urologist, and he asked me to do that. When I said I already had, he immediately made me an appointment with their IC “expert.”
Post # 15
wineosaur : duchessgummybunns :
thank you both, this is extremely helpful. I’ve heard about pyridiumfrom someone else, I think it might be worth looking into.
Food journal is a great idea since I’m way too much of a dope to remember any details like that.
I am going to start the IC diet on Monday (I’m traveling for work at the moment with a lot of limitations on my food choices, but will do as best I can til Monday and then really give it a good go.)
thanks so so so much for the helpful info. It’s been wonderful to be able to discuss this here as I’ve been worried about it for 5 months and felt really disappointed when my dr dismissed my concerns.