Post # 1
I wondered how many bees out there also suffer from endo?
I’ve been struggling with worsening symptoms for ages, but not quite enough to warrant surgery. I don’t get on with HBC pills, and mainly manage it through painkillers, heated pads, and wailing into the night sky like a banshee.
How do you manage your symptoms?
It’s a condition that seems to be very prevalent, but I know very few people with it in person who have it as “low-level” as I do. I say this with inverted commas because it feels like my entire bottom half is made of lava for 25% of the month.
Any comments, rants or suggestions encouraged!
Post # 2
I’m not much help as I manage mine with hormones. I’m on a 10 week cycle, and week 3, 6 and 9 aren’t great, week 10 and week 1 are a write off. I use ibuprofen where possible, and have a little luck with mefenamic acid, but also have diclofenac potassium for middle weeks, and tramadol for my bad weeks so I mostly don’t care about the pain. I also have a tens machine which is a nice distraction!
Post # 3
I’ve never had the diagnostic surgery, but my doctors are pretty sure I have it. My mom, aunt, and grandma all do, and I have the symptoms. I take a .5 mg norethindrone birth control every day, plus another half of a 5 mg (so 2.5 mg) of norethindrone acetate daily. This pretty much completely stops my cycle. Then, if I happen to get symptoms, I take an anti-spasmatic to stop the cramping.
I guess not super helpful for you, since you said you don’t do well with hormones. But hormones have saved my life. I can actually go to work regularly again.
Post # 4
hi bee. So sorry you’re struggling with endo symptoms, so painful!
I’ve managed mine with taking anti inflammatories starting days before my period during times when I’ve not been on the pill. Plus a collection of pain pills that never work well for me and end up not being taken unless I’ve got a cyst that is rupturing.
During bad bouts I keep anti diarrhea tabs on hand, moist heating options for front and back, tens unit, and things to keep from being dehydrated.
My biggest recommendation is to find a doctor who specializes in endo treatment.
Post # 5
I try and avoid any kind of pills, so I mostly manage my symptoms with heat, it helps I would say 80%, meaning I still have pain and vomit, but it would be much worse when exposed to cold.
Here is what I do on my period days:
– I buy chemical heating pads, they look like a big piece of bandage and when exposed to air they heat up for about 12 hours. I stick 2 on my belly and 2 on my back, thanks to them I can be mobile but still have heat therapy on me. I think I am addicted to them now. I dread the moment when I go to the drugstore and they tell me they don’t sell them any more.
– I wear wool long johns, even in summer heat. I do not feel overly warm, and without them I feel pain immediately. I have thicker ones for winter and thinner, but still made of wool, for summer. In winter I also have a wool “chimney” to wear on my waist area. In summer I wear silk tank under my t-shirt, so that my belly is protected from cold air from A/C (I also try and avoid going to A/C spaces)
– I do not eat or drink anything colder than body temperature, so no cold drinks no salads, na cold cuts, etc. I do allow myself to have some cold foods in other times of the month.
I also try and avoid scheduling anything important on those days (not always possible), and make up my work and housework in advance as much as possible so that in case I’m unusable, I can still survive more or less.