Endometriosis Concerns while TTC

posted 1 year ago in TTC
Post # 16
267 posts
Helper bee
  • Wedding: October 2017

mainely :  Yes, please PM me if you have any questions.  Endo is a tough disease, and it is often called the silent disease, because, for the most part, people suffering from it don’t look sick.  It affects 1 in 10 women, but despite these large numbers, doctors are largely uneducated and don’t know how to treat or diagnose it.  Even though I was only undiagnosed for about 2 years, in those 2 years I was labeled a drug seeker, and was told by several doctors that the pain was all in my head, and I was over stating my pain.  I filed a formal complaint against one OB because of the way she treated me.  You really need to fight for treatment, and surgery is only treatment for endo.  You can suppress endo with drugs, but that is only a bandaid, the pain will eventually come back.

Post # 17
393 posts
Helper bee
  • Wedding: July 2015

mainely :  Please make your doctor hear your concerns, and do something about it.  I have endo & had 2 laparoscopies, finally had a hysterectomy at 40 & also confirmed a diagnosis of adenomyosis (basically endo that grows with the wall of the uterus). Endo is a strange & complicated disease; you can have tremendous pain & symptoms with little endo (like me), or you may have no pain and be coated in endo, and anywhere in between.  I am CFBC, but with my first lap my doctor ran dye through my tubes to make sure there was no endo blocking them, and I was clear.  Having a lap can confirm a diagnosis, provide some relief, even if only temporary, and give you answers on how/if endo could impact your fertility.  While there are risks involved in all surgeries, the lap is a very simple procedure.  Endo is, unfortunately, typically a lifelong issue.  Pregnancy is actually supposed to help, but it can always come back.  I am 43 and just started on BC (mini pill) for my pelvic pain.  There are a lot of great support groups online.  I wish you lots of luck and will send positive vibes your way.  I’m sorry you are dealing with this.

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