(Closed) Endometriosis…. lovely.

posted 6 years ago in TTC
Post # 3
Member
3688 posts
Sugar bee
  • Wedding: August 2013

What is the doctor basing this off of?

Post # 4
Member
2400 posts
Buzzing bee
  • Wedding: October 2012

@Nic01:  My aunt has it. They told her she probably would struggle to have kids or wouldn’t have them at all. She had 4 kids back to back(: Sending prayers your way!

Post # 6
Member
3688 posts
Sugar bee
  • Wedding: August 2013

Hmm. I’m not a doctor, so don’t believe everything I say, but my mom was “diagnosed” with endometriosis and believed she had it for years until she had to have unrelated surgery and they didn’t find anything. Not to say you *don’t* have it, but I wouldn’t stress out about it until you have to.

Post # 7
Member
1105 posts
Bumble bee
  • Wedding: September 2013

I don’t have any advice but I just wanted to say that doctors are soo frustrating ๐Ÿ™ When you go to them with symptoms and they wave you away and say ‘that’s normal’ and then years later you find out it’s NOT. ๐Ÿ™

Post # 8
Member
6015 posts
Bee Keeper
  • Wedding: March 2012

One of my SIL has this.  She was told if she had a baby she would be lucky.  Six months later her and my brother had an unplanned preg, and quickly got married.  She had the baby, and two months later was preg again (your more fertile after a birth because it’s all cleared out) 

 

 

 

Anyway they had two kids for ten years and never used BC she never had any other procedures and she got preg again.  They had a third child and she told her Dr. where to go and how to get there and went on BC.   

 

 

 

She actually has a sister and a niece that have been told the same things and they have kids.  Hang in there.

ETA.  I’d be pissed off if I were you especially after giving so many details about things … ridiculous.

Post # 12
Member
1572 posts
Bumble bee
  • Wedding: May 2013

I have endometriosis (in addition to some other super fun health issues). I’d be pissed that you dealt w/ this for 15years! I was irritated that I went 6-7 years of complaining before I was diagnosed. When I would complain to my doctors, they would either tell me that this is what “every woman” deals with (so basically, suck it up) or tell me that I was exaggerating. I was diagnosed b/c they decided to check things out when I was getting out my appendix. I’ve not tried to get pregnant (yet) so I can’t answer that question. I have been told by my reproductive endocrinologist that if/when I decide to try to conceive, I will have 6 months to try without assistance (vs. if a woman has no endo/reproductive issues, they have 12 months). However, my dr has never made me feel like I need to start thinking abot IVF or what have you. She has told me, that for some people getting a laparascopy and D&C before trying to conceive can help (to basically clear everything out).

 

I really like the website Chronic Babe, I’ve become friends w/ a few women on there w/ similar health issues. A good friend of mine also has endo and she conceived after trying for… a while? I don’t remember. She had some trouble conceiving, and even had a miscarriage (not sure if that’s related or not). She actually conceived when she and her husband had given up on trying.

Post # 14
Member
2178 posts
Buzzing bee
  • Wedding: November 2012

@Nic01:  Prior to my Mirena, I had symptoms very similar to yours. I was diagnosed with dysmenorrhea, the medical term for “awful periods”. My mother and sister suffered the same thing, and both had successful pregnancies (2 for mom, 1 for sis).

I’ve had ultrasounds (most recently in 2011 when I was worried my Mirena was displaced) and do not have endometriosis.  I wish the same for you!

Post # 15
Member
89 posts
Worker bee
  • Wedding: January 2013

I’ve always had awful right sided pains that get worse around ovulation, and my sister had the same – she ended up with such severe endometriosis that she had to have a full hysterectomy (and was never able to conceive). My doctors believed that I had endometriosis as well and suggested last year that I have laparascopic surgery to confirm and remove it.

I was worried that the surgery itself could create even more complications in the form of scar tissue etc., so we decided to TTC even though it’s probably a little earlier than would be practical in terms of our finances/careers. And it turned out that it only took one try, I’m now nearly 7 weeks pregnant (and things are fine so far). I’m 28 years old (nearly 29) and although we’re not too financially stable right now, we have a lot of family support and I’m glad we started our family now so that there’s no chance of waiting too long.

Post # 16
Member
502 posts
Busy bee
  • Wedding: October 2013

I was diagnosed with endometriosis  through a laparoscopy about two years ago. My periods weren’t irregular, but they did stop altogether (which I actually suspect was undiagnosed hypothyroidism at the time.) I was put on a treatment of injections 1 a month over 6 months which treats the endo over time. The Zoladex injections were given by a Gyno. There are treatment options available and TTC shouldn’t be a problem if you work together with your Gyno. Please PM me if you need!

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