(Closed) Endometriosis Treatment Options?

posted 7 years ago in Babies
Post # 3
Member
3521 posts
Sugar bee
  • Wedding: December 2010

I’ve heard that Lupron is a pretty common treatment, as is laparoscopy (to remove tissue). I haven’t discussed options other than BC with my ob/gyn because we are not going to try to conceive.

Post # 5
Member
653 posts
Busy bee
  • Wedding: October 2010

I’m going to have to advise you not to go with Lupron. While it works really well and can even work at removing the endo you already have it really messes you up. You basically go through menopause. I was on lupron for a year and had hot flashes, my hair got super thin, and my emotions were all over the place. (I often say that since Darling Husband & I got through that year we can get through anything). 

I would recommend a laparoscopy to remove the tissue first (this wasn’t an option in my case) but if it works then that’s great!

Also, have you considered doing a non oral BC? I was on Implanon for 2 years and it worked at first for me and I didn’t have to remember to take BC.

If you do go with Lupron & your insurance doesn’t cover it (mine didn’t, and Lupron is like $600/mo) there is a program that the company offers to help you pay for it, there’s a wait list to get on though, but the financial counselor at your doctor’s should be able to help.

Post # 7
Member
6892 posts
Busy Beekeeper
  • Wedding: March 2012

@Cole B: Wow, thanks for the info on Lupron. Not trying to threadjack!

OP – As far as I know, lap and lupron are the only “common treatments.” Since there is no cure, it’s much harder to work with. I know there are different fertility aids to help with conception, but I don’t think that’s what you’re asking as much. I’ve had lap done and am having another in December… oh joy.

On another note, I went off BC several months ago. We use a condom sometimes but other times not. No pregnancy yet. We aren’t actively TTC but are more NTNT at this point. I went off for similar reasons – I was sick of the hormones and honestly a bit curious as to how my body handled itself naturally.

Post # 8
Member
3521 posts
Sugar bee
  • Wedding: December 2010

@AmeliaBedelia: How are you doing with symptoms now that you’re off BC? I had a lap in March and it really sucked to recover from, so good luck in December.

Post # 9
Member
6892 posts
Busy Beekeeper
  • Wedding: March 2012

@Mrs Grape: It’s very erratic. The first month, all went normally. Then I went 3 months before my next. I FEEL a lot better in general, and the cramps were pretty much the same (which, isn’t great or easy, but seemed the same). It’s interesting. I’ve been off for… almost 6 months? Thank you. ๐Ÿ™‚

Post # 10
Hostess
18641 posts
Honey Beekeeper
  • Wedding: June 2009

I have had 3 laproscopies and a 6 month treatment of Lupron.  I agree with PP that the syptoms are horrible and it isn’t really permanent (so if you want to get pregnant, you might want to try right after your treatment is done).  And if you do use Lupron, be careful, you can get pregnant when on Lupron.

And yes, there aren’t any other treatments to get rid of endo sadly.

Post # 11
Member
1370 posts
Bumble bee
  • Wedding: July 2011

The laparoscopy is probably your best bet because the doctor can often burn off the implants.  I agree with what others have said about Lupron. My doctor did his best to keep me off of it and just put me on continous BC – but one of my best friends went the Lurpon route. She basically had all of the symptoms of menopause and feeling her Endo symptoms after coming off of Lurpon.

Let us know what your doctor decides to do!

I have Endo and I’m currently off BC for insurance reasons, and my pain is so severe…I’ll probably try to go to the dr next month to get the meds back. I’ve had the surgery twice and it’s not seemed to help me. It sucks having to find different ways to manage the symptoms.

Post # 12
Member
6892 posts
Busy Beekeeper
  • Wedding: March 2012

I *have* heard that it gets better after kids, btw! ๐Ÿ™‚ I was talking to my mom earlier (who also had it) and she said it got a lot better after having me and even better after my 2nd brother. It didn’t completely go away but she said the pain seemed to lessen. So perhaps there is some hope. She had another issue later in her life that required a partial hysterectomy and she is so happy now. Lol.

Post # 14
Member
1370 posts
Bumble bee
  • Wedding: July 2011

I’ve also heard from my grandmother and mom that their symptoms lessened after kids – but, they each had to have hysterectomies (I think I just butchered that word, but too lazy to look up correct spelling) in their late 30s.

Post # 15
Member
653 posts
Busy bee
  • Wedding: October 2010

My doctor has always said that my only option for really getting rid of my endo (or reducing it enough that I can live comfortably) is to have kids. That’s why I decided to remove my Implanon a year early (they’re good for 3 years). My endo pain had been getting worse and we decided that waiting another year wouldn’t be worth the possibility of being infertile.

On the down side my doctor says that if I’m not pregnant within 6 months I’ll have to have a lap or else go to an RE ๐Ÿ™ So we’re really hoping to get pregnant like NOW.

Post # 16
Member
6892 posts
Busy Beekeeper
  • Wedding: March 2012

@MissGreen: For sure. It took her about a year to get pregnant with me and a little longer to get pregnant with my 2nd brother but youngest brother was a surprise. So, it gives me some hope. ๐Ÿ™‚

@misskoala: Almost exactly my mom’s case. I think she was 38 when she had her hysterectomy.

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