Post # 1
I was diagnosed with complex partial epilepsy last august. Before I was diagnosed (showed symptoms for years but fully set in around august), we had been planning on starting to have children this year after our 4-year belated honeymoon in October.
After meeting with my OBGYN in March and telling her the situation, she set up a counseling session for high-risk pregnancies so a Dr. could look over my medications and what not before we started trying.
I am on a ton of medications due to the epilepsy and chronic migraines that come along with it. At my appointment, the doctor said I would need to get off my current seizure medication and switch to a more generic one, Keppra. The one I am on is newer and so far has not had promising results in mice for pregnancy.
I was very upset by this. It took months to finally get my medication stabilized and during that time I was miserable. Now to be told I need to switch, I feel like I am starting over when I finally wanted things to get normal.
Lately, I have been really wanting a baby, to the verge of tears. A part of me is scared that something may go wrong or we may have difficulty. Another part of me doesn’t want to switch my medication even though I know I have to.
I guess I am just looking for feedback on others with epilepsy. Were your kids healthy? How did your body react? Were you able to work and care for a baby or was it too much?
Did you have any trouble becoming pregnant?
Thank you bees.
Post # 2
I dont have epilepsy, but my mom does. Both my younger brother and I turned out fine! She couldnt breastfeed because of the medicine she was taking (I think that is what I remember her saying) but she never felt like it was that big of a deal. She was a nurse and worked throughout her pregnancy and up until my brother was born! Then she decided to be a stay at home mom until we went to school…but it was a personal choice not a medical one!
Post # 3
I haven’t had children yet, and am no longer on any medications.
I know everyone is different, but things I really liked about keppra when I took it were the reduced side effects, and minimal drug interactions. In my experience doctors were always confident and supportive of a healthy pregnancy and babies when I got to that point.
Best of luck to you!
Post # 4
My 14 year old daughter has Epilepsy and is on Zonisamide (Zonegran) and while kids are a long way off for her, I too am fearful for the future and child bearing for her. She is extremely well controlled on it and I hate the thought of having to change and adjust some day, so I totally feel your pain. Have you joined any online support groups for your specific type of Epilepsy? I’m part of one for Juvenile Myoclonic Epilepsy- the type my daughter has. The support and suggestions of the community can be very helpful since many people pooling their knowledge and experience of common symptoms and medications can make you feel less alone. A group like that may be of great help to you.
Post # 5
Thank you for telling me about your mom! It makes me feel better to know that the only setback she had was breastfeeding.
That is so great to hear you are able to be off your medicine! They said there is a chance that if pregnant, my hormone changes could control the seizures but they can’t garuntee that. I’m not 100% seizure free and still get them time to time especially in high stress situations. I don’t have grand mal but I do have drop attacks so that’s the big worry.
So sorry to hear about your daughter. I’m so glad to hear that it is well controlled though! She is lucky to have a mom supportive in a way to join groups to help her.