(Closed) Fibroid Surgery Decision

posted 7 years ago in Babies
Post # 4
Member
101 posts
Blushing bee
  • Wedding: August 2009

I had this surgery 1.5 years ago.  I am now ttc.  It’s taking longer than I thought, but it’s not because of the fibroid removal.

Intramural means the fibroid is on the inside the wall of your Uterus, right?  I’m not sure if that means the same thing as being inside the uterus.  If it does, then I think the chances of you getting pregnant would be really limited…also, I doubt you could keep a baby to term if you ever got pregnant.  You really can’t have anything in your uterus when you are trying to ttc or it will act like an IUD and prevent implantation.

I would say that if your fibroids are that big, then you should definitely get the surgery.

You then have to get going with TTC right afterwards because there is a chance that something else could grow back (fibroid or polyp).  In my case, I waited too long to ttc (1 year) and lo and behold, a polyp had developed.  I had to get that removed to move forward and that was tiny.

 

Now…if your fibroid is not inside your uterus, then my advice would be more tentative because I don’t have any direct experience, but if it’s inside, you gotta get the bugger out.

 

Also, I felt so much better when I got my canteloupe-sized fibroid out.  I hadn’t realized that so many of my stomache problems were related to it because I had had them for years.

 

Anyway, this is a great forum to read for any questions you may have.

http://geekwithfibroids.wordpress.com

 

Also, if you have questions for me, you can PM me.

Post # 5
Member
5496 posts
Bee Keeper
  • Wedding: April 2010

Just had the abdominal myomectomy last November. I had a dozen intramural fibroids. (Four were softball size!!) I also miscarried in July (that is how I found out about the fibroids). I had the surgery for a few reasons. One, I was having pains (very bloated, pelvic pressure, upper leg pain, frequent urination) and so I wanted to be pain-free. Two, I was worried about conceiving with fibroids. Mine were on the outside, but they generally grow while pregnant and I was worried about what that could do to a future baby. Mrs Pascua (member of Wedding Bee) just had a baby a few months ago and had fibroids during pregnancy and I believe everything was just fine! Hopefully, she sees this thread and can chime in.

It really is up to you since they are on the outside. (If the fibroids were on the inside, you’d definitely have to have them removed in order to ttc) Oh, and I’ve been very worried about the fibroids returning (we’re trying to conceive right now), but so far my uterus looks good, as my fertility doctor keeps saying each visit. Unfortunately, I had to have my right fallopian tube removed during the myomectomy because one of my large fibroids was completely entangled with it. He didn’t know this until I was under the knife. It was a blessing, because had I gotten pregnant on that side, I would have had an ectopic pregnancy which is dangerous. Other than that, my surgery went well and he was able to remove all of them!! Let me know if you have questions!! ๐Ÿ™‚

Post # 6
Member
1 posts
Wannabee

I don’t know how helpful this is b/c I’m not done being pregnant yet but I have a medium sized fibroid on the inside of my uterus and I got pregnant on the first try. So far no problems (3rd trimester) and my dr. is not worried. The positioning of the fibroid is ‘good’ apparently and my dr. does not think I will need a csection. Of course, I didn’t know about the fibroid beforehand and only found out after I was pregnant, so I couldn’t really consider surgery anyway.  I wouldn’t tell you to second guess your doctor, but maybe get a 2nd opinion before a major surgery?  6x6cm is not that large, more like medium sized.  

Post # 8
Member
5496 posts
Bee Keeper
  • Wedding: April 2010

@missbbc: Good luck and I know how hard it is to wait. I had to wait 3 months after the miscarriage for the myomectomy, then a few months to start ttc again. It is hard, but you’ll get through it! ๐Ÿ™‚

Post # 10
Member
5496 posts
Bee Keeper
  • Wedding: April 2010

@missbbc: Actually, I just realized it was 2 1/2 months and only due to scheduling. Could have been about 2 months. (But no sooner than that, I think) Felt like eternity, though! Are you leaning towards or against the surgery at this point? What does your husband think? My husband and I were both so worried for me to have the surgery, but once we both realized that it was our best option, he kept me pumped up and thinking positive and helped me get through it! One other thing to consider is the fibroids will grow during the 1st trimester especially (due to estrogen I think) and can be super painful and potentially cause problems. Not trying to push you towards the surgery, because that comes with its own risks, but just wanted to mention that in case you didn’t know. Intramural are on the wall of the uterus. So are yours on the outside? You said they are in the lining. Is that the same as the wall? Those are the “safest” to get pregnant with as they generally don’t interfere with the baby. You may want to get a 2nd opinion from another doctor!

Post # 13
Member
5496 posts
Bee Keeper
  • Wedding: April 2010

@missbbc:Wow, so both doctor’s gave you totally opposite recommendations. I can see that, though, as it is a difficult subject. Some think it is OK to go for it with the fibroids, others think you should remove them first. There certainly are pros and cons to both. My fibroids were outside the uterus (on the wall) and not going inside the uterus at all. So they are deemed the “safest” to get pregnant. If yours are “bulging” into the uterus, does that mean they are on the inside, as well? If so, you definitely want to have them removed. If they aren’t actually on the inside, then you can go for the surgery or try without. My doctor told me I could ttc without having the surgery, but there was still a possibility of something going wrong, so that sealed the deal for me. But if they are on the outside, I believe most women do fine with pregnancy/delivery. The submucosal are the worst for pregnancy. That’s good you got those removed!

Have you researched the potential problems with pregnancy/delivery? I know severe pain (can be only for a few days/weeks, though) and pre-term labor are possible problems. My doctor said that there definitely is a possibility that the fibroid can harm a baby’s growth, but it isn’t too common. I still didn’t want to take the chance, myself. It is a very difficult decision to make. I totally understand, as my husband and I spent many nights agonizing (before I found out I had over a dozen!) what to do. Once the MRI showed I had so many and so many huge ones, we both knew that surgery was right for me. But, when I was told I only had a few, I was completely undecided as to what to do.

There are risks with the surgery, so I was worried about that. I have a great doctor, though. If you choose the surgery, be sure you have a very skilled surgeon. My husband grilled the doctor a few weeks beforehand to make sure he trusted him with my uterus. ๐Ÿ™‚

 

Post # 14
Member
59 posts
Worker bee

I just had a robotic-assisted (DaVinci) laparoscopic myomectomy last year. I had HUGE fibroids and they were removed from five 1 inch long holes. The surgery was minimally invasive and I was in the hospital for two nights (typically just one). My recovery was quick and only took about a week and a half. I’m not trying to get pregnant right now, but my doctor told me recently that a handful of women who got the same proceedure as I did around the same time are all very pregnant with healthy babies. I know it’s case by case, but before I signed up for the full cut, I would recommend checking this option out. Good luck!

Post # 15
Member
5496 posts
Bee Keeper
  • Wedding: April 2010

@MsGuinness: That surgery wasn’t an option for me due to the size of my fibroids. You say that yours were huge…how big? How can they remove very large ones thru a 1 inch hole? Not only did I have to have the open stomach surgery, my doctor had to do an even longer cut across my abdomen to get them out. My incision scar is really long. I thought the robotic surgery was only for small fibroids.

That’s great that you had that surgery, though and that the recovery wasn’t bad. A lady I work with had the robotic surgery done for something a year ago and she loved it. (Not fibroids, can’t remember what!) So amazing how technology has changed and what they can do now!!! I was only in the hospital two nights after my major surgery-insurance kicked me out! Grrr. I was NOT ready to go home, but I had to.

 

@missbbc: I recommend checking out the DaVinci surgery, too. For me, it wasn’t an option, but you may be able to do that one!

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