Post # 1
Hi Bees! Wondering if anyone is going through something similar, or any success stories out there…
Over the last ~6 months, I am struggling with some sort of new food allergy or intolerance. Basically, within 20-30 min of eating a meal, I get horrible stomach pains and am running to the bathroom. From there, it will be almost 24 hours before I feel “normal” again and have an appetite for anything more than water or crackers. I’ve always been mildly lactose intolerant, so my doctor asked me to cut out all dairy completely. The doctor also asked me to keep a food journal and look for patterns, nothing stuck out. It can be a meal out at a restaurant or cooked at home, and there doesn’t seem to be a single ingredient or type of food that sets me off. Next step was limiting gluten while waiting for more tests, so I’m now dairy and gluten free. The doctor was also pushing me to go fully vegan, saying any animal product will cause issues, but I’m having a hard time believing that’s the only solution.
I’ve been in and out of the doctor office for weeks now, ran all sorts of bloodwork and other tests, and not learning anything useful just yet. A food allergy panel came back negative for all common allergens and a Celiac test also came back negative. The only abnormal result is a high IgE (allergen antibody) level, but everything else is normal. I finally got a referral to the GI, but haven’t been able to get an appointment yet. It has been so frutrating to not know which meal is going to set me off, and it’s getting harder to keep it hidden at work. I travel quite a bit and find it hard to stay focused at client meetings when my stomach is just churning. Not really sure what I’m looking for here, but wondering if anyone is going through/gone through something similar? Any good recipes to share? Or tips to stay sane until the next appt?
Post # 2
have the looked for thinks like colitis or crohns? I have family members with colitis and the frequent bathroom trips (particularly with fatty or fiberous foods) is common for them. Also how are your stress levels? Anything change in the past few months? I can’t keep a darn thing in my stomach when my stress and anxiety is high – it all goes right through me.
Post # 3
I deal with this, I have IBS and diagnosing and figuring out triggers is a pain. Look into the No FODMAP diet and follow religiously (if it seems helpful) for at least 4 weeks. Then there is a protocol on how to reintroduce foods to find your trigger. Take probiotics to support your dogestove tract in rebuilding and healing. Avoid egg or products with egg too, as if gluten is a trigger for you it will have destroyed the part of your digestive system that processes dairy and egg. That will heal but I had to go dairy and egg free for 9 months before I reintroduced. Also pay attention to things as small as the seasoning and oils you use. I would legit do like a chicken and rice diet for a while then if things calm down, go low FODMAP, then reintroduce.
Post # 4
I’m surprised at the way you’re going about this. IME it’s always best to start with a limited/elimination diet and then re-introduce so you can better track whats causing it. So you start out super strict and work your way back up including more foods.
Maybe talk to your dr about that: https://www.healthline.com/nutrition/elimination-diet
Post # 5
I have deadly food allergies, intolerances and things thst give me hives. I feel you.
The single most important way to figure it out was to keep a food and symptom journal AND do an elimination diet. You eliminate a bunch of things and then slowly reintroduce items to see what’s giving you issues.
I’ve done several. That’s how I figured out Im allergic to banana and avocado.
Yes it’s a pita but worth it. You have to be prepared with meal plans and ideas on what to eat. I’d discuss with the doctor.
Also you can try first eliminating the common things like dairy. Or high acid foods. Or nightshades.
Post # 6
I would eliminate what my nutritionist calls the Big Six: Sugar, dairy, eggs, alcohol, gluten, and caffeine for at least three weeks and see how that impacts you. Also, definitely look into stress, as far-fetched as it might seem. Your guts go through EVERYthing your brain does. GI stuff absolutely sucks, I hope you get to the bottom of this, bee!
Post # 7
Have you been checked for mastocytosis?
Post # 8
LilliV : ecrisrien :
The doctor didn’t mention anything about crohns or colitis, but she did say my bloodwork doesn’t show infection or inflammation. I’m the GI will know more. My stress levels feel low right now and most of this year. I would say two years when I got married was way more stressful and last year work was definitely high stress, but as of January this year, it’s felt much more calm. My really bad symptoms started in May/June-ish.
hockeybee0104 : jellybellynelly : sweatergal007 :
I’ve read about the FODMAP diet, but also that a doctor should monitor it since it is highly restrictive. I completely agree that the way she’s having me limit is odd, but I’m just going by what I’m told. I have started a priobiotic for a few weeks now, but am still having bad days. My food jounal goes back over 3 months months with explicit details of what I ate and how quickly symptoms showed up. I’m more than happy to meal prep and cook, but work travel does make some days really difficult. My go to meal is plain rice and sauteed veggies, or rotisserie chicken and salad without any dressing. Those seem to be the few things I know won’t trigger any reactions.
In general, I only have one cup of coffee/day and none on the weekends. I like wine with dinner sometimes, but the way my stomach has been, I’m not in the mood to be drinking at all. I don’t really eat eggs often, although I guess there can be egg in other foods.
I’ve never heard of mastocytosis… reading up now…
Post # 9
a few years ago after an antibiotic it took my body months to get back to normal so that I was beginning to wonder if I had IBS. Eventually my guts went back to normal; any time I take antibiotics now I take acidophilus too. Have you had any antibiotics this year without taking a probiotic?
Another thing I’d be wondering since you travel a lot, have you been tested to see it isn’t a parasite?
Post # 10
Gastroparesis might be worth looking into as well…..
Post # 11
Did you do the bloodwork/allergy panel after you cut out dairy and gluten? Cuz if so, the test means little. You need to have those in your system in order to test positive.
If you are seeing a GI doc, request an upper and lower GI series (I’m guessing they’ll do that anyways).
Post # 12
For work travel, are you allowed to expense groceries instead of meals? I know we have some people that will goto the grocery store, grab a rotisserie chicken and salad and keep that in their hotel fridge and bring their own tupperware and everything lol. If its really bothering you, I would definitely look into doing something like that.
hotels/restaurants are also bad for cross contamination. Even if you order plain chicken and sauteed veggies, they will sometimes have sauteed the veggies on a surface that they previously cooked (ex) spiced veggies, and that will end up in the food.
Post # 13
I second the gastroparesis. Also, I have GERD and deal with this from time to time. I’ve also been wanting to get food allergen testing done so I know what to possibly avoid. Unfortunately, GI symptoms can overlap with many GI diseases/disorders so pinpointing what it is might be difficult.
Post # 14
Please tell me you’ve had a colonoscopy.
Post # 15
Haven’t been on any antibiotics this year and also got tested for H. pylori and other travel parasites. Results should come back soon.
ecrisrien : acornsandapples :
I haven’t heard of this one either, it seems like there’s a million things out there that can impact GI… 🙁
letsdothisthing : jannigirl :
For both rounds of bloodwork, I had not started limiting anything in my diet yet. Both rounds were negative for all common allegens (milk egg soy wheat peanut, etc), so it’s frustrating that nothing is showing up, but I’m not sure how accurate the test is either. I figured the GI would request a colonoscopy, so I’m not really looking forward to that, but haven’t seen the GI yet either.
Definitely allowed to expense groceries, but a lot of my trips are quick 1-2 day site visits, so I don’t always have time to get to a store. I try to pack dry foods like cheerios for a quick snack or breakfast in a pinch, and avoid anything at the airports or on the plane. But I’m totally stuck at client dinners/lunches, where I can tell them I am gluten/dairy free if they cater or try to avoid if we’re out. The absolute worst are day trips (fly out early AM and back late the same night), I feel like I’m just hungry and scared to eat at the same time. My worst fear is being stuck in an airplane bathroom… 🙁