kaitlynaubrey01: Hi there, I have endo, diagnosed at age 22.
First, endo isn’t unusual in girls of 16; it is just unusual for it to be diagnosed in girls of 16 as the average length of time between first seeing a doctor with symptoms and being officially diagnosed is 9 years, with many women waiting even longer. A study a few years ago suggests that girls are born with endo, and that it triggers whern you start your periods; in my case, I have definitely had endo sicne I started my periods aged 11, and they were always horrendous.
Second, how likely your fertility is to be affected basically depends largely on the severity/stage of your endo; the stats are as follows:
If 100 women without endo TTC for 1 year, 84 will become pregnant;
If 100 with minimal-mild endo TTC for 1 year, 75 will become pregnant;
If 100 with moderate endo TTC for 1 year, 50 will become pregnant;
If 100 women with severe endo TTC for 1 year, 25 will become pregnant.
Most women with moderate-severe endo wil require intervention of some sort (eg surgery), and most with severe/stage 4 endo will need IVF.
My advice would be as follows:
-Go back on hormonal contraception until you are ready to start TTC. This is because hormonal contraception keeps endo at bay/helps to suppress it, and without it, your endo will grow, spread, and worsen, meaning you could end up more likely to need help conceiving. The best methods are those which a) stop mestruation completely and b) leave the body quickly, so that you can start TTC straight away and don’t have a large adjustment period; so, the best options are the mini-pill/progestogen-only pill; the Mirena IUS; and the implant.
-Get a new gyno, one who specialises in endometriosis. Your current gyno sounds pretty clueless, and that is not good. A good endo specialist can much better advise you about treatment, and if you do need surgery, will be much better trained/equipped to perform it. She should absolutely NOT be advising you to come off hormonal BC, so please, find someone else who knows what they’re doing.
-Work on making sure you are as healthy and ready to start TTC as possible as a PP said; so, cut out alcohol (alcohol is also thought to exacerbate endo, as are certain foods inc red meat, and I have to say, I’ve noticed my symptoms worsen when I consume those things; it is thought to be due to oestrogen levels), lose weight if you need to, and consider the endo diet.
-Consider fruther surgery pre to TTC. If possible, try to get hold of your notes from your previous surgery to ascertain what stage it is (NB: frequently symptoms do NOT correlate with severity when it comes to endo, so the fact you have severe symptoms does not necessarily mean you have severe endo (I have extremely severe symptoms when not on BC, but only mild endo)) as if you have stage 3-4 (moderate-severe) surgery would be a very good idea, but it may not be a necessity if you only have stage 1-2. Surgery typically boosts chances of conceiving for 3-6 months, so make sure you time if for when you are actually ready to TTC.
I would however wait until after your wedding as recovery times can vary (I was off work for 8 weeks following my first op), and waiting a couple of months won’t have any impact (unless you are over 30)
Really hope that helps, give me a shout if you have any more questions 🙂