(Closed) Girls with endometriosis?

posted 5 years ago in Pregnancy
Post # 17
Member
3586 posts
Sugar bee

kaitlynaubrey01:  some questions for you or any other bee that can help. I get pains in my stomach and bloat a lot but never thought to get it checked.  Is Endometriosis something that can be seen when a pap is being done by a gynecologist or how do you find out? I am just really curious because sometimes it sounds like i have it but they never tell me anything. 

Post # 19
Member
77 posts
Worker bee
  • Wedding: Crichton Church, Dumfries, Scotland

I also have quite bad endo, as well as fibroids and a deformed womb. I was undiagnosed until suffering a massive prolapse while pregnant with my daughter at 23, she was born prematurely at 28 weeks as a result. I then had surgery to repair the damage, clear out as much rubbish as possible and lost an ovary and fallopian tube. I was monitored for some time but due to the growth in one particular fibroid was advised to start trying for our second sooner rather than later, especially as we may have needed to go down the fertility treatment route. I was 27 at that point. Or 26. Can’t remember. Came off all birth control and fell pregnant about 3/4 months later naturally. I had a better pregnancy second time round but went into labour early twice (although that’s due to fibroids) but they managed to get control. I ended up needing induced 8 days late but my son got stuck and I ended up needing a full general anaesthetic and section, where I then suffered a massive hemorrhage. More children are therefore not an option for us, but we fell pregnant twice naturally (once was a surprise) despite having multiple issues ans both our children are now healthy and happy. It can be more difficult but it does just work sometimes! You are only 21 so I agree with the above, waiting a few months at this  stage wouldnot likely be harmful, focus on your wedding and enjoy that without the distraction and worry of TTC. I would definitely get a gyno that has more experience in endo, a second opinion alone is always worth getting, I’m in the UK so with the NHS you kind of get what you are given but I was very lucky to get a great gyno. Good luck! X

Post # 20
Member
214 posts
Helper bee

My mother had bad centripetal endometriosis (the endometrial tissue ends up in other areas of the adominal cavity and then fuses to the uterus).  She was told she couldn’t have any children.  My parents were married knowing that they wouldn’t be able to have children.  She ended up getting pregnant almost immediately after getting married (I was born 9 months and 1 week after they were married) and had no issues conceiving and carrying my sister.  She had had multiple D&Cs and had to have a full hysterectomy when I was 6.  At the time the doctor couldn’t believe she had ever carried any children to term because it was the worst case of endometriosis he had ever seen.

Post # 22
Member
81 posts
Worker bee
  • Wedding: May 2015

Food for thought – there lots of ways to be a mother if it doesn’t work out biologically (though at your age I imagine you’ll be more than fine!). My mom has endo and I’m adopted and as far as we are concerned, life worked out exactly as it was supposed to. 

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