Post # 1
Two years ago I was diagnosed with mild displaysia from HPV. They monitered it closely and luckily cleared a year ago and did not need LEEP.
It’s been a year now and I had my check up again a few months ago. It showed moderate displaysia instead of mild now and we did a colposcopy. My doctor said I might need LEEP but wanted to have a second opinion from some kind of specialist before we do that in November.
She also thinks maybe my change in lifestyle (developed poor eating habits, stopped excercising, stressful job) could possibly be the reason so I am buying all kinds of healthy food and tea to boost my immune system. Don’t know if it will work but I heard LEEP doesn’t mean it’ll keep displaysia away.
I’m afraid of needing repeat procedures and then I can’t have kids one day :(. I am 27 and in a few years I would like a kid or two…. At least one…. I am afraid they will have to keep cutting at the cervix, take out the uterus, and that it will keep coming back and then get cancer.
Post # 2
HPV is like chickenpox for your hoohah. Both are caused by a virus that can lay dormant in your body for many years. When the chickenpox virus flares up it causes shingles. When HPV flares up it can cause abnormal paps. Much like any other viral infection, flare ups can happen more often when the person is under stress.
I didn’t have LEEP but I did have a cone biopsy in 2012 due to CIN3 that appeared out of nowhere between my annual paps. I was terrified when that whole situation happened. I was 26 at the time and thought it was the end of the world. I was terrified of being put under for surgery. I was terrified of possibly never being able to have kids (even though at the time I was still on the fence). I was terrified that it would reoccur and the doctor would have to take even more of my cervix and that it would be a never ending cycle. It was a really scary time for me and I am sorry you are now going through this. Hopefully knowing my experience can help you feel a little better and more prepared.
After the surgery, I had to have paps every 3 months for a year, then every 6 months for a year, and now I am back to once a year. Immediately following the procedure, I had paps with low-grade abnormalities which my doctor assured me was pretty normal, and since then they have been clear. The way my doctor explained the low-grade abnormalities to me was that they took the cone out and made sure it had clear margines (no abnormal cells along the edges). However, there are often cells with low-grade abnormalities on the surface of the cervix that they leave alone because the body will fight those off without help more often than not. And that is exactly what happend with me.
I did continue to exercise and eat mostly healthy (sugar is my weakness). I also took immune support supplements by Host Defense and other things like green tea and fresh fruits/veggies that boost antioxidants. I eliminated stressors in my life (most importantly my BF and my super stressful job at the time) and really tried to put my health as my main focus. I got a better job, a better BF (now DH), and never looked back.
For the most part I don’t really think about it now. You will reach this point to. Right now it is super scary and worrisome, but one day it will be a distant memory you rarely think about.
FWIW- my doctor (whom I’ve had through this entire situation) isn’t concerned with my ability to get pregnant in the least. I guess next June when we start TTC we’ll find out. Either way, I am happy my CIN3 was caught and treated. If that means I end up adopting due to infertility associated with the surgery, I will consider myself extremely lucky that the surgery was successful and allowed me to still be here enjoying my life. 🙂
Post # 3
I had a LEEP in 2001. For several years beforehand, I had abnormal paps – sometimes showing dysplasia and sometimes be being fine – and over the previous 4 years or so, I had gone through a few colposcopies. Then in December of 2000, when I was 6 months pregnant with my first, my pap came back showing early stage cervical cancer (Nurse from the ob office called me the day before Christmas to drop this news on me….grrrr….) There was nothing they could do til I had the baby so I spent the rest of the pregnancy freaking out. I had her in March and had a LEEP in June after things had healed up. Turned out it wasn’t cancer after all – just a higher grade dysplasia than I had had in the past. But the LEEP fixed it – every single pap has been completely normal ever since. And I got pregnant once more in 2004 — no issues getting pregnant and everything was fine during and after pregnancy.
I think the idea behind the LEEP is that you get out all the affected cells before they can spread and turn into something worse. I suppose no medical procedure can really guarantee a cure especially for something like HPV that hangs around in your system forever, but at least for me, LEEP was a cure. My doc can do LEEPs in the office like a colposcopy but due to my insurance rules, I had to have it done in the hospital under twilight anesthesia. I don’t remember the procedure itself, but I know it only took a few minutes and I don’t recall being in pain afterwards – I think it is basically like a more invasive colposcopy so I felt a little crampy with a little spotting and that was about it. Oh and I remember that at one point during my subsequent pregnancy I asked if there was any evidence of having a LEEP and they said no – my cervix had grown back and looked completely normal like nothing had ever happened. So I would assume that even if something ever recurred, they could do another one.
Post # 4
I had a LEEP done in 2011 since then I have had no abnormal paps and was able to get pregnant. I had a miscarriage but that wasn’t related to the LEEP or my cervix at all.
Post # 5
Yeah I had three of them before I’d opted for a partial hysterectomy at 22. Fuck cancer! I wish you luck.
Post # 6
I had a LEEP in 2011 and have had normal paps ever since! I have also not had many sexual partners since my LEEP procedure. If you have multiple partners, each can carry a certain strain of HPV, which increases your chance of getting it again
Post # 7
I had LEEP done 9 years ago, no reoccurance.
Post # 8
Hang in there!!! I had always had normal PAPs until one wasn’t – a colposcopy and biopsy later, they found CIN3 and scheduled a LEEP pretty much right away. This was two years ago. The procedure itself wasn’t bad, I was completely awake for it (although I had an amazing nurse literally holding my hand the entire time). My follow-up PAP at 3 months was abnormal again, so they did another colposcopy and biopsy and we’re able to get the rest of the pre-cancerous cells. Since then, PAPs have been normal and I am back to being able to just get a PAP every year. My doctor’s warning about LEEP was that if I had repeated procedures, it could thin the cervix and increase the risk of pre-term labor should I get pregnant, but one procedure was nothing to worry about. My doctor said the best thing I could do was to take care of my body – eat healthy, exercise, get enough sleep – so I worked on making some improvements in that area. Thinking of you, good luck!
Post # 9
Hi. I had moderate dysplasia when I was 17. I had cryosurgery, and a cone biopsy, neither of which cleared it up, before having a LEEP procedure. It worked. I have not even had an abnormal pap in the 18-19 years since (though abnormal ones can happen for many innocent reasons so are not a reason to panic of course).
I am childfree by choice so can’t help you there but back then my doctors said while it could weaken my cervix (though a cone biopsy is far worse for that) it was not likely with one procedure and they could also do cerclage in case of pregnancy. There were no concerns about whether I could actually get pregnant, hence being on birth control ever since until I had a tubal.
Post # 10
My initial story was similar to miniesq. Normal and then right to leep. That was many years ago with no concerns since!
Post # 11
I had LEEP done this past January and everything since then has come back regular. My OBGYN assured me that typically the chance of LEEP affecting your ability to carry a child to full term is less than 1%. Try to stay positive and do what you need to do to keep your body healthy!
Post # 12
Hi!! It hasn’t been that long for me but I had LEEP in March 2015. Things are still good!
Post # 13
I had CIN III in 2012, had a LLETZ and have had normal pap results every since. I worked for an OB/GYN at the time and they reassured me that even if you have repeat LLETZ procedures the chance of not carrying a pregnancy is very small.
Post # 14
I had an abnormal pap about 10 years ago, followed by a colposcopy. They found I still had abnormal cells so they did a LEEP. I actually had a really bad experience after my LEEP because I fell down the stairs and shook the clot loose, and started bleeding profusely. I was rushed to the ER and had to be knocked out for several hours for them to stop the bleeding. (Please note, this is completely abnormal for the LEEP procedure, I just happened to fall and shake the clot loose…please do not let this scare you).
Anyways, my point is, I’m now healthy, have had normal paps in all the years following AND I’m 11 weeks PG so, don’t worry about getting pregnant. It doesn’t affect that. You will be listed as high risk as you have to have your cervix monitored, but other than that, it hasn’t had any negative affects on getting pregnant for me.
Post # 15
I did not have leep but I had the cryosurgery. Almost 10 years ago, everything normal since then. I wouldn’t worry about getting pregnant, but they might monitor your cervix. I don’t think having the procedure done once will cause much issue but I could see the concerns over having it done multiple times. I don’t think it’s normally a big deal for most women (considering the huge number of women who have had some procedure and go on to have healthy pregnancies). One of my good friends had LEEP and two pregnancies with no issues. I didn’t have any issues with pregnancy. Both of us got pregnant very easily (twice). The only thing I’ve heard (besides possible preterm labor) is that you may get some scar tissue which can cause you to stall during labor (your cervix dilating will get caught up on the scar tissue) so you might get stuck for a little while before it breaks through. Some midwives can even break it manually. And then you can progress quickly after that. But it’s good to know before labor or discuss with your doctor so they can give you time if you stall for a bit.