(Closed) Hashimoto’s Disease / Hypothyroidism question

posted 6 years ago in Wellness
Post # 3
Member
5993 posts
Bee Keeper
  • Wedding: May 2010

i had graves/hyper so the other end of the spectrum for me – i will say ask questions if you find you are not improving with doctors treatment.   

i had 99% of my thyroid removed and that was about 10yrs, i still have regular blood tests and im often low in iron, once my doctor said “how are you even getting out of bed” because i had no iron at all

oh, if you havent already look at the foods you are eating – there are some foods you should not eat when you have thyroid issues (or me/graves its shell fish and soy products)

Post # 5
Member
4150 posts
Honey bee
  • Wedding: November 1999

Well, I can tell you that both my sister and mother have had their hypothyroidism under control for 10 and 30 years, respectively, so it IS possible.  I was just diagnosed with hypothyroidism last month (my levels have been off for a few years, but I’m just now ready to treat), so I can relate.  How often do you go for checkups?  Is this the first one since being on treatment?  I think talking to your doctor will make you feel better.  It’s such a common disease that is easily treated, so I would think they have a very good hold on how to treat you and should be able to correct the issue.  Sorry you’re feeling so frustrated.  

Post # 7
Member
3941 posts
Honey bee
  • Wedding: October 2011

I have Hashi’s.  I was diagnosed 3 years ago and my levels have never been stable enough for them to put me on medication.

It really is frustrating.  i’ve moved so will be seeing a new Dr. soon, but having thryoid problems just stinks!!

Post # 8
Member
5993 posts
Bee Keeper
  • Wedding: May 2010

i dont feel my lack of thyroid affects me – yes i have periods where im tired but my life is exhausting in general so i dont let it bother me.  i scuba dive and trek jungles (when on vacation) and exercise daily.  for me, when my concentration goes out the window and i cant focus on a task is when i know im due for a checkup – funny how you notice these things.  food control and exercise is a big thing because im lazy and italian so i can gain weight by looking at it and thyroid issues do not help with that (although when i was unmedicated hyper i lost heaps of weight)

my meds still go up and down because life is always changing  but initially it took about 3mths to get me stable for surgery (i didnt want radiation therapy)

im also not planning on being a parent so i dont know how that will affect a person that is – sorry i cant help on that aspect

Post # 9
Member
46 posts
Newbee
  • Wedding: September 2012

I’ve had hypothyroidism for 14+ years and I hate to say it but mine still fluctuates.  I started out with graves disease, had my thyroid knocked down with radioactive iodine and now have hypothyroidsm.  Fortunately, I don’t have terrible reactions that I can’t live through without much complaint.  I do remember when I first started taking medication it took awhile to get it where they leveled out enough to not have monthly tests done.  Just hang in there.  They’ll level out soon.

Post # 11
Member
635 posts
Busy bee
  • Wedding: October 2012

I’ve had Hashimoto’s for 15 years. It doesn’t affect me a lot at all, to be honest. Sometimes it takes some time to get my levels back to where they need to be, but I’ve made peace with that. And when it comes time to get pregnant then that will be dealt with, too. My biggest suggestion is to try to relax. When I get put on a new dose it takes a good 6 or so weeks to recognize that I feel differently because it happens so gradually. I would go crazy if I tried to analyze how I was feelinging each and every day.

Post # 13
Member
3482 posts
Sugar bee
  • Wedding: February 2011

I’m hypo, diagnosed seven months ago, and it took four months of fiddling around before we found a dose that worked for me. My doc has been great and goes by how I’m feeling rather than prescribing based on my test results, and I’m finally in a place where I’m not lethargic and achy ALL the time. I still have good days and bad days; any kind of non-everyday stress makes my body feel like a punching bag again, but I do my best to relax when I can, and exercise has helped a lot too.

Like you, I had symptoms for a long time before I was diagnosed. I’ve been told, “It’s probably just a virus,” more times than I can count. My current doc figured it out right away. I love her so much for that.

But once I got over the joy of knowing I actually HAD something, that I wasn’t just imagining things, it was hard to cope with the fact that treatment wouldn’t take effect overnight. My first dose sent me over into hyper territory, and that was FAR more unpleasant than being on no meds at all had been. Second one was too low, I had one good week and then started creeping back into achy/tired daily life again. Now I’m on a really odd in-between dose that requires pill surgery, and things are finally good. Apparently my body is really, REALLY picky.

Until you find a dose that works, I would recommend you go get yourself a massage ASAP for some instant gratification therapy, and take some time every day to do something that makes you relaxed and peaceful. For me it’s going outside for a walk, or taking a bubble bath, or reading one of my favorite books. I know it’s hard to feel positive when you’re so frustrated all the time, but if you can train yourself to focus on good non-thyroid-related things it really does help.

Post # 14
Member
635 posts
Busy bee
  • Wedding: October 2012

I completely get the frustration. I’m just trying to share my experience with trying to find the right dose. Whenever I try to pay close attention to how a dose is or is not working is when I’m most stressed out about having a thyroid problem. Or I think every day I’m tired means something – sometimes I am just tired. There’s nothing wrong with feeling like you have to monitor symptoms all the time, but it is just so stressful for me to live like that. For me, managing my thyroid means I try to ignore it as much as possible and get bloodwork every so often to check in with it. Otherwise I’d go crazy analyzing everything and waiting for the Synthroid to kick in. 

I was told never to take generic Synthroid because the fillers can interfere with the dose. The problem kicks in when pharmacies get their generics from different companies using different fillers, so it’s never exactly the same pill from month to month.

Post # 15
Member
3295 posts
Sugar bee
  • Wedding: May 2011

ive been hypo for years but actively seeking treatment for about 4 years…. we are still tinkering with my doses but i finally found a good doc who will see me ever 6 weeks until we get it right. a good doctor that listens to you is important…. best of luck in fine tuning your meds 🙂

Post # 16
Member
999 posts
Busy bee
  • Wedding: March 2012

For a year I felt like crap, tired, didn’t know what it was until I was diagnosed with Hypothyroidism. It took 2-3 months to feel normal again. Hang in there, you will be fine.

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