(Closed) Hashimoto's Thyroiditis – rant

posted 6 years ago in Wellness
Post # 3
Member
2073 posts
Buzzing bee
  • Wedding: July 2012

I can sympathize with you on serval levels.  I have 3 auto immune disorders, so yeah I get the feeling like crap thing. And the fluctuation of symptoms.  My diseases like to tag team me.  One goes into a remission and then another one flares.  

I also had thyriod cancer.  Fine needle aspirations are so terrible.  However, I can tell you that having a complete thyroidectomy was the best decision ever.  Surgery is not fun and I have a scary, but I feel better.  I take my Synthroid everyday and I have no issues with all the hypo symptoms you mentioned.  I had no idea that “normal” people didn’t feel like crap all the time.

I hope you get a swift resolution and start to feel better.  Thoughts and prayers for you!

Post # 5
Member
188 posts
Blushing bee

@Starling13:  I’m so sorry to hear this. I wish you strength and hope you are able to become well as a result of what is ahead (whatever that may be)

Post # 6
Member
605 posts
Busy bee
  • Wedding: March 2014 - Brazil Room

Unfortunately with thyroid issues, it has to be constantly evaluated and the medication dosages often need to be changed on a semi-regular basis. My SO’s mother died of the condition you were diagnosed with because she decided she didn’t want to take her meds anymore.

Post # 7
Member
2073 posts
Buzzing bee
  • Wedding: July 2012

@Starling13:  I had my surgery when I was twenty (I’m 29 now) so I recovered pretty quickly.  I remember being uncomfortable with the idea of turning my head, not so much because it hurt, but it was an irrational thing that I thought my head would fall off.  I think that lasted about a week.  I was put on a short half-life thyriod medication (I don’t recall the name) immediately after my surgery until I had my radiation treatment a month later.  Because I’d been hypo for so long, I was just so thrilled to be feeling better that I didn’t really notice how long it took me to recover from my surgery.  I do remember I went back to my college classes a week later since I had my surgery right before Thanksgiving so we had a short break.

It took the endo about 4 months to find the correct Synthroid dose so I felt a bit funky during that time but no where near how poorly I felt pre-surgery.  I’ve been on the same dosfoor all this time now.  I just go once a year to get bloodwork done and sometimes an ultrasound.

My other three autoimmune buddies are Crohn’s disease, fibromyalgia, and interstitial cystitis.  I honestly can say that they are worse than my cancer ever was.  But they’re being dealt with and I’m learning to cope.  Somedays are a bitch, some days are ok.  I’m used to it now I suppose.

Post # 10
Member
5778 posts
Bee Keeper

My daughter had a partial thyroidectomy at age 20 due to a large nodule that had developed. It was either wait and monitor it, or remove it. She chose to remove it. The scar isn’t even there anymore, and recovery was about a week for her. Meds were initiated immediately by an Endo, when the treating physician wanted to wait and test in 6 months. Didn’t sound right to me, so we went to the endo. Good thing we did too and he had her stabilized in a short time. Until this past year, she only had to see him annually and everything has been fine.

Now she’s pregnant and he saw her as soon as she found out to test, and again every month. Just got new results on Tuesday, and he said her results are better than they’ve been in years.

He did change her dosage from what’s she’s been on, but it wasn’t a big deal. She feels great.

Good luck to you!

Post # 12
Member
5778 posts
Bee Keeper

Thanks! She got pregnant almost immediately after they decided to try, so they were pretty surprised.

The scarring is so much less than it used to be. A friend had hers removed many years ago, and it looked like they cut her neck in half. Now its a small area and they do it in a natural crease, so it blends in easier.

http://www.babycenter.com/400_can-you-get-pregnant-after-having-thyroid-removed_9591985_771.bc

Sounds like many women go on to have no problems, as long as they keep on top of checking their levels.

Oh…I forgot the most encouraging one of all! My girlfriend had twin boys and she’s had Hashimoto’s for a LONG time, as well as a partial removal beforehand.

Post # 13
Member
2073 posts
Buzzing bee
  • Wedding: July 2012

@Starling13:  I don’t do any special diets. I tried the gluten and dairy free for a while and saw no difference.  All it did was make extremely cranky because I could’Ty eat what I wanted like everyone else.  The only time I have to a special diet is during a Crohn’s flare, then it’s BRAT diet all the way.  

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