Post # 1
DH and I have been TTC for over a year and after continued failure even on Clomid, I had an HSG done on Monday. The results were… disappointing. The radiologist was unable to get either tube to show up on x-ray, even after putting in twice as much contrast dye as he normally uses and having me rotate all different directions to see if the pressure would open the tubes. He said that they might have just been spasming causing them to look blocked, or the tubes could actually be blocked. He couldn’t really even say that I have tubes, since he couldn’t see them. The “blockage” is right where each tube connects with the uterus. I am really struggling with this news. I still have to get the full report from my doctor, but I am feeling so devastated right now. I feel like my chances of getting pregnant just disappeared in an instant.
Have any of you ever had this happen? If so, what did you do to resolve it? Were you successful in getting pregnant? How do you deal with the emotions?
Post # 2
Paging @whitums . . .
If you have ovaries that are developing mature eggs even if there’s nowhere to release them, IVF is for sure still an option. This is true for the totally tubeless (which you might not be). All hope is not lost.
As for the emotions . . . no help there. The trials and tribulations of TTC are the hardest things I’ve ever gone through — harder than parenting, In My Humble Opinion — and nothing really made it better but having a baby. I know that is not what you want to hear. I’m sorry. I just never found peace while trying and failing. It was very hard. You are not alone.
Post # 3
So sorry, but the good news is you can get pregnant with IVF without even having tubes! Hang in there!
Post # 4
First of all, *hugs*, I know EXACTLY how you’re feeling right now. When I had my HSG done the same thing happened to me. My doctor also told me they’re either blocked or its a spasm, and that if I wanted to do an exploratory lap they could confirm which one since tubes won’t spasm if you’re under anesthesia. I went ahead with the lap, it showed both tubes were open, and I ended up getting pregnant without treatments the next month. I won’t bore you with my whole story, but basically what ended up happening after that is I had an ectopic and lost my first tube and then did two IUI procedures with the remaining tube and ended up with twins, but once again, one was ectopic and I lost my last tube. So now I really truly am a tubeless wonder, but I’m also 38 weeks pregnant so all hope is not lost! The worst case scenario is that your tubes really are blocked, and that IVF will be the tool needed to get you pregnant. Not having tubes definitely does not equal not ever having kids! It is totally still possible that your tubes are open as well, and you’ll just need further testing. Either way there is a solution!
Post # 5
I know it’s really hard to see it this way now, but this is actually in some ways a good thing. I know it’s so not what ANYONE wants, but the good in it that you know what’s wrong, and there’s a really clear path of what to do next, with great success rates! Lots of owmen find success in IVF with no tubes, so even if they *are* both blocked, all is not lost at all. I know that it’s so hard to see it that way, especially after finding out, but I am hopeful for you that this is the first step on the road to your BFP.
Post # 6
I didn’t want to go too overboard with the optimism, but I totally agree with all of this! Even though IVF is expensive, I actually feel relief knowing that the path is clear and we can jump right into a real solution instead of test after test, opk’s, IUI’s, etc etc.
It’s also kind of nice to know that every child we end up with will be very deliberate and when we’re ready, and when we’re done, the birth control is already set. This really may not be an issue at all for you, and very well could be your tubes spasming, but I promise it’s not the end of the line for you either way.
Post # 7
it looks like IVF is the best option for you.
while i didn’t have blocked tubes, the RE told me there was no reason i couldn’t get pregnant on my own, it just wasn’t happening. it took us 2 years and 7 assissited cycles including: just meds, 3 iuis, and 2 ivfs to finally get our first BFP ever.
sometimes having a real diagnosis is better than being in unexplained land. it always helped me knowing what the next steps are.
i wish you good luck in your journey.
Post # 8
redux: RunnerBride13: whitums: saratiara2:
Thank you so much for your support. I’ve read so many things on the internet that my head is sort of spinning with what is right. (I know, I need to just step AWAY from Dr. Google…) I read that some people recommend repeating the HSG with muscle relaxers on board to hopefully help with the spasms. If they still appear blocked on the second HSG, then go to a laprascopy? Is it worth asking the doctor to repeat the HSG? I didn’t have any discomfort at all, despite all the extra contrast he put in. I also saw some limited info about procedures that can potentially unblock tubes. I have PCOS too, so ovulate irregularly without medication. I just never expected this to be so damn hard. 🙁
IVF isn’t covered by my insurance at all and I have no idea how we’ll afford to pay for it. But we better start thinking about it. I guess it’s a good thing we changed our mind on buying a new house this year…
I have been trying to tell myself it’s a good thing because it definitely answers the “why isn’t it working” and “why is this taking so long” questions that have been circling my head the last few months. This HSG was the last thing I needed to have done before I could be referred to an RE, so I’m hoping our insurance will approve the referral and between my OB/GYN and the RE, we can figure out a plan forward.
What was the lap like? Was it painful afterwards? Were your tubes opened by the doctor during the lap, or were they always open (just spasming during HSG)? Does it increase your chances of ectopic pregnancy?
Post # 9
So sorry for what you’ve been through. IVF sounds promising.
I’m not exactly in your situation but have been TTC almost a year. Had an ultrasound, they saw an ovarian cyst supposedly. HSG revealed tubes open and ok. MRI revealed hydrosalpinx (right tube). Currently waiting (and waiting) for an ok to be sent to fertility after 2nd MRI showed decrease in size of tube. Not ovulating on my own.
I can imagone how you felt after your test. We don’t really know until we start trying.
It looks like you can get prompt care! I wish you all the best.
Keep hopeful and have a great day!! 🙂
Post # 10
Update for anyone interested: DH and I had a nice long talk with the doctor this morning. Turns out that the HSG showed either fibroids or some other uterine malformation in addition to the “blocked” tubes. Apparently the most common cause of tubal damage is chlamydia, so she ordered some bloodwork to see if I’ve ever had it (we already know I’m negative now and have been negative at multiple points in the past). This will help her know whether there is possible tubal damage or if it is more likely a spasm. We’re also going to do an MRI to see what exactly we’re dealing with in my uterus and whether it can be fixed by surgery. If it is fixable, surgery will likely be in the February/March timeframe. She will also check the tubes during surgery to see if they are actually blocked or not. Depending on what she finds, the tubes may have to come out too because they can interfere with the success of IVF. Thankfully, all the testing, MRI, and surgery should be covered by our insurance since it’s related to an abnormal finding on x-ray.
I’m not really sure how to feel yet – still trying to process all of the information. One the one hand, I’m thrilled to be making some progress towards an answer/solution. On the other hand, I’m disappointed that our chances of having a baby are decreasing, especially with the news about a potential issue with my uterus now too. In the meantime, we’ll keep on plodding along this path and hope that it gets us where we want to be before we’re too old to get there! Thanks again everyone for your support.