Post # 1
Member
78 posts
Worker bee
- Wedding: January 2017 - Los Angeles, CA
I had an HSG this afternoon. Both tubes are not blocked BUT doctor thinks I might have endometriosis because there’s scar tissue on the ends of both tubes. So she is guessing this is the reason we are having trouble conceiving. We have a 3yr old and we’ve been TTC #2 for going on 16months now. Doctor said they wouldn’t recommend surgery because the tubes are technically blocked. So… I’m confused… how do my eggs get through if there’s scarring on the ends? I already took 3 months of Femara before this and I ovulate with and without it. Anyone have similar experience and if so, what was next?
Post # 2
Member
2535 posts
Sugar bee
@vintagebee17: the gold standard for diagnosis and treatment of endo is a lap. Are you consulting with an RE or an obgyn? If an obgyn, you should consult with an RE and they may repeat the test. Endo affects fertility by negatively impacting egg quality. You should check out the Infertilty Board because there are a lot of experienced bees dealing with endo there.
Post # 3
Member
78 posts
Worker bee
- Wedding: January 2017 - Los Angeles, CA
@anev: I am seeing an RE. His colleague did the HSG so I do have a follow up with him next week to discuss but the thing that threw me off is that she said they probably wouldn’t be recommending a lap surgery. So I am very confused. I guess I have to be patient to discuss with me RE. Thank you!!
Post # 4
Member
92 posts
Worker bee
Not sure if this will be helpful to you but I had a blocked tube with hydrosalpinx but just one. I had a lap to remove the tube( my doc said it was completely destroyed by endo, impossible to save) and my doctor found a whole bunch of endometriosis elsewhere which she removed as well. We were trying for a while before with no success but i got pregnant the second month after surgery. I don’t know if that was luck since my ob now says some women with bad endo have children no problems, some that are affected minimally- struggling( endometriosis is a very frustrating desease). I was given stage 4 endometriosis after surgery and was fully prepared to be trying for years after, thats why we barely let me heal but i got pregnant before my scars healed. In case you’d want to consider surgery it might be worth exploring as a possibility? But i know every situation is different so i hope you get some answers from your RE.
I hope it resolves soon for you bee.
Post # 5
Member
78 posts
Worker bee
- Wedding: January 2017 - Los Angeles, CA
@ulyana: thank you so much for replying with your experience. It gives me hope to know that it can possibly work out. I guess I just need to wait and see what the RE thinks is going on since I am still confused. I will see if RE will advise me to have surgery for possible endo. I did some googling (I know I know) but is it safe to say you cant really get a confirmed diagnosis of endo without the surgery, correct?
Post # 6
Member
92 posts
Worker bee
@vintagebee17: I believe it is correct, i had an MRI done with contrast and i had it evaluated at two different hospitals since i had a surgery at the different hospital i originally was sent to. The first evaluation barely mentions any endo, the second mentions a few more possible areas, after the surgery they give me stage 4. It seems until they go in they aren’t really sure so my understanding is lap is the only way to know for sure.
Post # 7
Member
78 posts
Worker bee
- Wedding: January 2017 - Los Angeles, CA
@ulyana: Thank you for that insight. I am very eager to speak with my RE on Monday to finally see what his recommendation of “next steps” are. I am so worried he will just jump striaght to IVF as the conclusion. DH and I are truly only LAST RESORT feelings about IVF. I was able to recieve my results via email (no picture of X-Ray included) but the findings are normal spillage in oth tubes but adhesions on the ends of both, I believe near the ends closest to the ovaries. All of my googling is showing that surgery is not recommended for this…
Post # 8
Member
92 posts
Worker bee
My situation was a bit different, since one was completely screwed up and the other one, i guess, open-surgery was a go for me, especially due to hydrosalpinx. I read about someone on one of the boards who had a surgery to open the tubes but it ended up being unsuccessful so she said she should have jumped to ivf right away without wasting time. Every situation is so different, it’s a very complicated system we have there. I know ivf is no one’s first choice but see what your doctor says maybe you end up trying a surgery and trying naturally or maybe you’d go for ivf, the end result would still be a baby. It’s a lot to wrap you head around though so it’s understandably crazy upsetting. When are you seeing your RE next? Also, if you don’t like the conclusion you can alway try a different RE.
Also, girls on infertility board here have a lot of knowledge on who does what best doctorwise and they’ve been an amazing support to me while i was waiting on my verdict. Maybe worth posting on there to see if anyone have any more info?
Post # 9
Member
78 posts
Worker bee
- Wedding: January 2017 - Los Angeles, CA
@ulyana: thank you so much! I had an appt with my RE this morning to discuss my HSG results. He told me that my tubes are open, BUT the dye pooled at the ends of both indicating there may be adhesions. Of course just as you all said and I researched online, there is NO WAY to know definitively without surgery. However, he said the dye may have dissipated/flowed through had they waited longer but they couldn’t just let me lay there all day to find out. So… they don’t know! He did say he does not recommend surgery because in my case I would only know if there are adhesions but they wouldn’t remove anything and it could cause more scarring. So he has recommended we move forward with monitored Femara/Letrozole (he would up the dosage) cycles and possibly IUI. I previously had 3 cycles of unmonitored with 2.5mg Femara/Letrozole and timed intercourse. After 3 more cycles he would most likely recommend IVF. I will definitely look through the infertility boards for some hope/clarity in any similar situations!
Post # 10
Member
92 posts
Worker bee
@vintagebee17: I see girl. It all sounds reasonable for not doing the surgery and moving to IUI. I unfortunately have my own set of problems but very different ones so don’t have any words of support or suggestions for you, but women on infertility board have had all kinds of different experiences with IUI and IVF and could be a great support to you as well as amazing source of information. I’ll keep my fingers crossed for you!