(Closed) Hyperthyroid…..Graves disease and pregnant???

posted 5 years ago in Pregnancy
Post # 3
Member
2202 posts
Buzzing bee
  • Wedding: October 2012

Hello ! I have graves disease I was diagnosed at age 12, and while we are currently not pregnant yet, were trying. I had a total thyroidectomy in 2009 to help control my heart ( I was at serious risk of heart attack) and to help our chances of getting pregnant.

It’s super Importent you get your thyroid under control depending on what’s going on, because I was like you hyperthyroid if we had gotten pregnant by accident we would havE had to terminate due to stress on my heart / body and the facT that my body would have caused damage to the baby. ( Not meant to scare you everyones disease is different thats just what happened with me)

Sounds like you have some good doctors working for you!! If you have any questions for me let me know, I am 1110% happy to answer them. Xoxoxo congrats on your baby. 

Post # 4
Member
9142 posts
Buzzing Beekeeper
  • Wedding: November 2013 - St. Augustine Beach, FL

Keep tabs on this.  I would also add on a specialist in endocrinology if you aren’t already seeing one.  If you can find a pediatrician that specializes in neonates born to mom’s with Graves (once you’ve confirmed it’s Graves), I would highly recommend that as well.

Post # 7
Member
9142 posts
Buzzing Beekeeper
  • Wedding: November 2013 - St. Augustine Beach, FL

You have a great family doctor but you need an OB that does high risk pregnancies, preferably one that specializes in moms with Graves because it is extremely high risk.  Not trying to upset you but they are rough pregnancies and you need all of the assistance you can afford to ensure you and the baby are healthy.

Post # 8
Member
2202 posts
Buzzing bee
  • Wedding: October 2012

@BelleriverBride:  to be honest I am not sure what they will give you, the meds I was on were very intense as my body was just out of control near the end before my surgery. They would have caused fetal deformities , and I am sorry to say I cannot rember for the life of me what it was called I will try and find out for you. I know it’s very common for women to find out the py have thyroid issues when they get pregnant where they previously had no idea they had an issue due to extra hormones. I know there is medication you can take that wont hurt the baby and they will probably have you in every week or 2 weeks for blood tests to make sure your levels are okay once your on the medication, for me because I do not have a thyroid anymore I will be in the same boat as you when we get pregnant blood tests & more blood tests 🙂 have faith that if you previously didn’t know you had an issue sometimes pregnancy makes your hyper thyroid but post baby is resumes to normal, so perhaps you don’t have graves at all ? Xoxoxo 

Post # 10
Member
2202 posts
Buzzing bee
  • Wedding: October 2012

@beachbride1216:  +1 very very true! 

This is the prime reason i chose to have mine removed to improve the chances of us being able to conceive a baby. My dr. Says we are in a Great place to start trying now that we are 3 years post op. & my body’s taken amazingly to not having a thyroid anymore & just taking a synthroid 

Post # 12
Member
2202 posts
Buzzing bee
  • Wedding: October 2012

@BelleriverBride:  awe, I hope that’s what it is, but don’t put too much faith in that as I am clearly not a doctor I just know that it can happen & happened to my girlfriend. Best thing you can do is make sure you get the proper treatment from doctors & demand that they put in rush orders for you to see some specialists. 

Post # 13
Member
9142 posts
Buzzing Beekeeper
  • Wedding: November 2013 - St. Augustine Beach, FL

My only experiences have been with friends and theirs were not good but both were over 20 years ago and I know they have made advances in diagnosis and treatment.  One could never stay pregnant past her first trimester; she stopped TTC and adopted.  The other finally carried to full term but the baby was stillborn; she ended up getting radiation treatment and decided she couldn’t handle going through another pregnancy with no guarantee she would have a baby.

Graves is stressful on your body and the developing baby.  The earlier you get intervention, the better chance of an outcome.  My second friend who went full term was not diagnosed until after the stillbirth; her doctor could have done a C-section had he known but it was almost 30 years ago and again, she wasn’t diagnosed.

Post # 14
Member
1564 posts
Bumble bee
  • Wedding: August 2012

I also have Graves’ disease and while I’m not pregnant, I have been told that it can be managed while pregnant. You just have to monitor your levels carefully and ensure that you are taking medication. I believe PTU is safe to take while you are pregnant. Have you seen an endocrinologist yet? That is the most important next step to take so that you can get on medication right away.

Post # 15
Member
2202 posts
Buzzing bee
  • Wedding: October 2012

@BelleriverBride:  any updates?! I was thinking of you this morning. Sending hugs & good luck Your way! 

Post # 16
Member
540 posts
Busy bee
  • Wedding: April 2012

I don’t have graves disease but do have thyroid disease, Hashimotos. I was diagnosed 2 years ago when I was experiencing shakes, swollen neck glands, always cold and constantly tired. Been on meds, synthroid ever since and been feeling normal. Now that I’m pregnant, I have my OBGYN and it is important to have ENDOCRINOLOGIST as well. Endocronologist measures my thyroid levels monthly and increases as necessary. I think as long as you are taking your meds and seeing your Endo once a month along with Gyno, you should be good. I’m doing well so far, baby is doing well.

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