(Closed) Hypothyroidism and ttc

posted 6 years ago in TTC
Post # 2
Member
4073 posts
Honey bee

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Hamcaticorn:  I’m hypo and currently pregnant. I experienced a couple of ectopics which were not related to being hypo, but I tell you that so you know I technically got pregnant three times in 1 1/2 years while hypo. I do think there is a significant link between your thyroid and your hormones, but as long as you are managing your thyroid, I don’t think that alone will cause infertility. Reproductive specialists do check thyroid levels with other hormones and I believe most want to see your TSH to be under 2-2.5 while TTC. With this pregnancy I was not on my meds when I got pregnant and my TSH was about 4.4 until I went back on meds…but I still got pregnant so there you go! Good luck!

Post # 3
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3716 posts
Sugar bee
  • Wedding: City, State

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Hamcaticorn:  I have it. As long as you take your meds and your levels are under 2, there should be no issues

Post # 5
Member
832 posts
Busy bee

You want you TSH under 2. You feel best at this level as well as concieve and carry a healthier pregnancy than when its higher. Make suer you’re taking your levoT alone, with a full glass of water, 1 hour before you eat anything during the day. If you eat it with food or other medicines it will not absorb as well and you won’t see results. Also, if you’re taking iron or other medicines like that you must wait 4 hours until after levoT. Be sure to check your levels ever 6 weeks. And get an endocrinologist that knows and respects the thyroid connection. I have a wonderful endo who is going to help me when I try to concieve (in a long time). I have hashimotos, and have been hypo for 8 years. Just this year I finally got my TSH under control. I never knew I could feel this good. Best of luck

Post # 6
Member
832 posts
Busy bee

p.s. Feel free to pm me if you want to talk about any of this. I know it sucks. And I apologize for the horrible grammar. 

Post # 7
Member
848 posts
Busy bee

I am hypothyroid and my dad is an endocrinologist so I have access to WAY too much info! , I saw a reproductive endo when I was trying to get pregnant- we had male fertility issues as well as my thyroid. My dad and my RE always say your TSH needs to be at 1.0 while trying to concieve. Also if you aren’t on brand name synthroid that can effect things- it’s not the same as Synthroid you may or may not be getting the correct dose. My dad won’t allow his patients to be on generic, it must be name brand. 

Most women I know have no issues getting pregnant once they get their TSH under control. If you are that worried about it ask for a referral to a reproductive endo- they seem to understand thyroid more. 

Post # 9
Member
288 posts
Helper bee
  • Wedding: September 2014

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Hamcaticorn:  My symptoms are very similar to yours! I just did bloodwork in early August and my TSH was at 6.41. I literally fell out of bed reading my test results! Once I talked with my endo she told me there could be a chance my body doesn’t like the Levythroxine, so she changed me to Synthroid. I mentioned TTC and she said we just need to keep an eye on everything and make sure my number stays below a 2. 

Also, I highly suggest seeing endocronologist! It’s changed my life! 

Post # 10
Member
2251 posts
Buzzing bee
  • Wedding: September 2015

If you’re not feeling good, then your medicine it’s not adequate.  I agree with tsh being less than 2 is the best.  Also i agree with brand name meds only, because genetics can vary in dose by 20%! And that’s terrible for someone with hypothyroidism.

Post # 11
Member
66 posts
Worker bee
  • Wedding: October 2014

Hi there, I understand your concerns as I also have Hypothyroidism (diagnosed in 2001) and recently started TTC.  My doctors (GP and specialist for my thyroid) both agreed they wanted my TSH to be under 2.0 in order to conceive as well.  I just started TTC this past month and my TSH has been almost borderline “Hyper-thyroid” but I still felt sluggish and did not have any symptoms of being hyperthyroid.

I was under the impression that conceiving with Hypothyroidism would be a challenge, but I’m happy to share that I just found out I am pregnant this week, after the first month trying.  I have a long ways to go (I always have that fear of mis-carriage or complications) from having Hypo, but I just wanted to share to keep positive and you should be able to conceive as well.  Don’t worry if you have irregular or long cycles either.  I thought this was a sign of my Hypo (maybe it is) but I had no trouble conceiving.

 

Good luck!!

Post # 12
Member
66 posts
Worker bee
  • Wedding: October 2014

I also wanted to share that I have been on natural dessicated thyroid for over a decade.  Originally, my GP put me on Synthroid but after months I still felt terrible.  Although my TSH was optimal, I had all the symptoms as if I had not even been treated!

I found an amazing GP who believes in dessicated thyroid and have been on it ever since.  It is called “Thyroid” manufactured by ERFA here in Canada, but is Armour Thyroid in the US.  Hope that helps!

Post # 13
Member
278 posts
Helper bee
  • Wedding: August 2015 - Red Barn Farm

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Hamcaticorn:  I am not trying to conceive but my tsh levels were at 9.1! My doctor asked me if I was trying to become pregnant and I said “no. why?” She said if I were to try, I would miscarry and wouldn’t even know. Me and my Fiance are going to try in about a year and I let her know that. She said that we definitely needed to work on it together and get my tsh levels down to a 2 or 3 at the highest before I could even THINK about trying to conceive. I totally agreed but it came as quite a shock. 

She diagnosed me with Hashimoto’s disease and has me on 50mcg of levo right now and with my last blood work my tsh dropped to a 5.3. So it IS helping! 

 

I hope you and your doctor can work closely to monitor your levels as I had NO clue that this was a problem! 

Post # 14
Member
4073 posts
Honey bee

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Hamcaticorn:  I think its really important to have a good endocrinologist to work with. You can see even in responses here, there are a variety of opinions, and endo’s are kind of the same way. Someone may tell you a certain number is optimal, but to me, a good endo will change your Rx and test you until you find a level that feels good to YOU. Someone else may feel great with a level of 3 and someone else may need to be at 1 to feel good, its all very dependent on the individual, so I would spend this time looking for someone you feel you can trust who is going to listen to how you feel, and not just choose arbitrary levels they believe are good. My mom is also hypo and flies across the country to see her endo, because she’s the only one she’s found that really listens. Her endo explained that nobody really fully understands the thyroid and how it functions within your body and your other hormones and systems, so there is a lot of trial and error with treating individuals. 

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MrsMounty:  I have been super curious about Armour Thyroid. I tried brand name synthroid and am currently on brand name Levoxyl and even though my numbers are good, I don’t feel any different and still have a hard time managing weight with diet and exercise. Once I pop this kid out, I’m going to investigate. It’s nice to hear a real testimonial!

Post # 15
Member
3751 posts
Honey bee
  • Wedding: April 2014

I didn’t read other replies, but I’m also hypo and pregnant with my second child. It took 18 cycles to conceive my first and pretty much one cycle to conceive my second. For TTC/Pregnancy my endocrinologist wants my level under 2 and I’ve been able to manage that with levo (I’m currently on 88mcg). If your primary is not listening, go see an endocrinologist! I also had low progesterone and had to be on progesterone suppositories with both pregnancies for the first trimester. Hypo can be related to hormone imbalance so I would look into that as well. Good luck!

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