(Closed) I am the BEST MATCH for a stem cell donation!!

posted 7 years ago in Wellness
Post # 3
Member
1486 posts
Bumble bee
  • Wedding: September 2011

This is great! I have been on the registry for years and never called.  Everyone should be on this list!!!! ๐Ÿ™‚

Post # 4
Member
6351 posts
Bee Keeper

@kelmac: What a beautiful, selfless thing you are donig. God bless you both you and the patient.

Post # 5
Member
3148 posts
Sugar bee
  • Wedding: February 2010

YAY!!!! congratulations! I am on the registry too, and really hope I can be a match for somebody someday. I really love getting the word out there because there are so many misconceptions revolving around marrow donation and what it means to do it. I’d love to see more people sign up!

@kelmac:  Just curious, what does wanting to have children have to do with your FI’s concerns for your donation? I happen to know a bit abot the procedure, so I can’t figure out the connection…

Post # 7
Member
3148 posts
Sugar bee
  • Wedding: February 2010

@kelmac: I see what you mean. yes, I could see how you would be concerned since it’s a relatively new drug.

I could see how I was confusing in my post. In the US, we say “marrow registry” but that does include stem cell donations. 

well anyway, good luck to you! that is so exciting!

curious again– you mentioned your back. in Canada, would they take a marrow donation from the spine? over here, if one was a match and it’s marrow they need  (not stem cells), it’s taken from the hip and the donor can be put under if they want to. I’m interested in whether it’s done differently in different countries.

Post # 8
Member
1486 posts
Bumble bee
  • Wedding: September 2011

@janie-janie: I think in the US the marrow registry is for both marrow and PBSC (peripheral blood stem cell) donation.  They usually do which ever is best for the patient/what the donor is comfortable with.  

Post # 9
Member
703 posts
Busy bee
  • Wedding: September 2010

This is so interesting. I may sound completely naive but i have never heard of this registry. I’m going to talk to my husband about us doing this. It doesn’t seem like a huge risk to the donor, but it can be so life changing for the receiver!

Post # 12
Member
682 posts
Busy bee
  • Wedding: November 2011

posted on the other thread but because of your posts Darling Husband and I have registered! We didn’t even know this was out there. Thanks for spreading the word!

Post # 13
Member
1328 posts
Bumble bee
  • Wedding: July 2011

Thank you for being on the registry.  It’s such an important issue, and I hope someday I’ll be a match as well!

 

My cousin Todd was diagnosed with Leukemia a few years back, and got over it only to have it come back and resist treatment a year later.  He needed a bone marrow transplant to basically save his life and they found one that was within a 5% match in England.  He beat cancer because of it!

 

Sadly, this story doesn’t have a happy ending, he passed away last February 6 from a battle with Pnemonia.  He was still taking drugs to suppress his immune system for the transplant. 

 

Anyways, THANK YOU!  I’m sure you’re making some family as happy as we were when we found his match!

Post # 14
Member
606 posts
Busy bee
  • Wedding: April 2011

Congrats! I have been on the registery for a few years and have never been called.  I was asked by a random older woman while I was at a conference she had a picture of her granddaughter and tears in her eyes.  At first I didnt understand why out of all of the people there she asked me.  I found out there are very few minorities that register.  I think it is because the qualifications are difficult.  Basically you cant be diabetic, have sleep apnea, and a few others that eliminate a whole lot of people.  My Darling Husband would have love to but couldnt since he has sleep apnea.  I think its great to register if you can and hope someday I can help someone in need.

Post # 15
Member
606 posts
Busy bee
  • Wedding: April 2011

M.Ruder: I’m sorry for your loss and thank you for sharing.

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