- 7 years ago
- Wedding: January 2012
Fiance and I watched a recent episode of a popular medical TV series last night (not saying the title because I don’t want to spoil it for anyone who hasn’t seen it yet), and one of the characters was a woman with Ehlers-Danlos Syndrome who had had several miscarriages.
I have EDS (Hypermobility Type/Type III), which is really rare – only about one in 10,000 to 15,000 people have it. There isn’t any treatment for the condition, though; they can only treat the symptoms. Thus, I’ve never seen a specialist about it, or really even done much about it. I end up on crutches or with sore joints a lot more often than most people, and I’ve come to terms with the fact that I’m going to have really screwed up, painful joints in the next few years. That’s what ibuprofen is for, right? Anyway, my mom, who I got the condition from, is almost 60, and although she’s in a bit more pain that most her age, she’s doing well. Ditto for my elderly uncle. The disease is much more strongly expressed in me than it is for anyone else in my family, but whatever.
But then I saw that show last night. Fiance and I were instantly interested when they said she had EDS because it’s so rare (I’ve only ever met one person outside my family who also has EDS), so we were watching pretty intently.
And that’s when they said that her miscarriages had been caused by the EDS.
I never knew that EDS could cause miscarriages. Fiance and I just froze and looked at each other. It explained so much: after me, my mom had five or six miscarriages, and that’s why they ended up adopting my brother.
I always worried that my asthma would cause pregnancy complications in the future, but I’ve been feeling better about it since I talked to the doctor about it back in January.
And now this. I just kind of crumpled in my seat. Fiance gave me a big hug and told me how much he loves me, and he told me that over and over… But I know that he wants kids more than anything, even more than I want them. I know he must be disappointed too.
I’ve done some research, and it looks like the TV show wasn’t just making it up. It’s real. Preterm labor and postpartum hemorrhage are the two most common pregnancy complications with my type.
I’m so upset. Has anyone experienced this? I doubt there are any other EDS ladies here, but I know some of you probably have other health conditions that may make pregnancy difficult. What do I do? I just want to cry. 🙁