Post # 1
I just wanted to share some great news I received! After 15 years of being on the Bone Marrow Registry I finally got a call…I am a potential match for someone needing a transplant! WOOHOO!!!! I’m trying to not get my hopes up because I have some more testing to do but I can’t help it! My fingers are crossed!
I had a back injury about 2 years ago so they can’t get my stem cells from my bone marrow but they can get it from my blood. Its less invasive and is apparently becoming the preferred method of harvesting stem cells. Its called Stimulated peripheral blood stem cell donation.
In case anyone is interested in joining the registry, here is a link that provides information. It super easy. The testing can be done through a blood sample or swabs, and its FREE (at least in Canada) but I assume it is everywhere (?). If you are already a blood donor then you are familiar with the basic questionnaire as well.
Here is an American link but there are probably better ones that I couldn’t find. http://chapters.redcross.org/az/bloodregion/nmdp.htm
Post # 3
That is great news! Congratulations! You’re an inspiration and will impact that person’s life in ways that you may never even understand. Good for you!
Post # 4
Thats great news!!! I am sure that person is so grateful!
Post # 5
@kelmac: that is awesome… YOU are awesome!!! I hope it’s a match and you’re able to help someone in need! FYI for US Residents: http://www.marrow.org/ will give you info on the National Bone Marrow Donor Program and how to register. :]
Post # 6
That’s amazingly selfless of you! You will make someone’s life change for the better!
Post # 7
Congrats, hopefully you are a match! I just joined the registry this past summer.
Post # 8
That is so amazing that you’re doing this! I hear the bone marrow transplant is a lot more painful too. Huge commendation to you for doing something like this!
Post # 9
That is amazing! Thank you for posting those links, too!
Post # 10
Good for you!! I joined the registry last year when CBS was asking for more ethnic donors!
Post # 11
@kelmac: oh yay! i hope you end up a match! my BIL was a marrow donor just a few months ago, and was matched just a couple weeks after registering! it was an amazing experience for our whole family, we are so proud of him, and believe their must have been some divine intervention that guided him to register. we do know that the patient is responding positively to my BIL’s marrow, but after a full year, the patient and donor are allowed to meet, if both parties would like that. i still don’t think my BIL knows just how amazing he is for donating, and how he really may have saved someones life. it’s so sad when you hear of patients who have matches in their family, but for whatever reason that family member won’t donate.
Post # 12
Thanks guys! I just hope that if I’m not a perfect match that someone else is.
@simplifiedbride That’s AMAZING! What a great story! The woman I spoke to said it was like winning the lottery. I can’t even imagine how wonderful it would be to meet the person you donated to, assuming both people would want to meet. Your BIL should be so proud!
P.S. For those of you who are registered, make sure you let the registry know if you move etc. They have been trying to locate me but couldn’t find me. I have moved, our phone number is under my husband’s name etc. Luckily I had my father down as an emergency contact so they got my number from him. I give blood regularly and they have all my new info so I just assumed the registry would have access to it but they didn’t.
Post # 13
That is so nice of you. I wish I could be on those list, but I cannot, but the FH and my son are on the registry. Really great of you to share the information.
Post # 15
So I was thinking that I would keep a “diary” of what is taking place for anyone who is interested. Hopefully if all goes well and I am the best match, this diary will ease some people’s nerves about joining.
So on November 19th I answered about 30 minutes of questions over the phone. They were the basic blood donor questions with a few new ones added. I had an opportunity to ask (Cheryl was her name) as many questions as I wanted to as well. This is when it was determined that at this point, I am still a suitable donor. Cheryl then asked me if I wanted to proceed with the One Match program, to which I replied yes. An appointment was arranged for me at my local blood donor branch for November 29th where they will take a few vials of blood for Confirmatory Typing. In addition, I was asked to stop making regular blood donations until we know if I am the best match, to not get any piercings or tattoos, let them know about significant health changes, and tell them if I will be out of town for more than a week. And of course, refrain from high risk sex ie: don’t have sex with a man, who has had sex with another man for drugs. She doesn’t need to worry about that one 🙂
On November 25 I received a package from Fed Ex which was shipped “Overnight Extremely Urgent” from One Match in Ottawa. It contained all of my answers to the questions I was asked, a reminder note for my Confirmatory Typing appointment, and a great information guide. I needed to make any necessary changes to my questionnaire, inititial them, and sign that I still wanted to participate. Somehow, she had my address as my father’s and had the wrong phone numbers so I changed and initialed them. When I finished, I put the questions in the addressed stamped envelope and sent it back to Ottawa.
So my Confirmatory Typing is Monday and I will let you know how it goes. I know that it could take up to 2 months before I know if I am the best match though.
Post # 16
I registered as a donor last year. That is so awesome that you are a match for someone. When I registered, it made me so happy to think that someday, part of my body that I am totally willing to sacrifice may save someone else’s life. It’s wonderful to think that something that seems so simple can have the power to do that.