(Closed) im pretty much at my wits end with these doctors- thyroid problems

posted 8 years ago in Wellness
Post # 3
Member
5789 posts
Bee Keeper

Do you see an endocrinologist? My daughter had half her thyroid removed due to a tumor, so she has everything checked religiously. The past few months,tho,she’s been feeling terrible,and on one of her labs it showed her thyroid numbers were way off. She went off BC pills a few months ago too, and no one mentioned she would need an adjustment.

Is there anything else going on with you medically? Maybe it’s something else they should be looking for and checking out.

Post # 5
Member
5789 posts
Bee Keeper

Might be time to find another Dr. I used to do everything they told me and follow orders without question, but not anymore. You really have to take charge of your own health and find the right people to work with you in figuring it all out. Poor thing. Best of luck in getting to the bottom of all this. Feel better. πŸ™

Post # 6
Member
7429 posts
Busy Beekeeper
  • Wedding: October 2009

Girl, I know EXACTLY how you feel!! I am going to PM you some info that I just found today, and I would love to talk with you more about this, because I have the exact same thing, but all my labs are normal too

Post # 7
Member
3148 posts
Sugar bee
  • Wedding: August 2012

Please don’t feel alone, you are not alone!  Try and get a 2nd opinion, it wouldn’t hurt.  You can find a good new doctor on the FB page info a gave you awhile ago, there are some great ones in Chitown here, too if you are willing to make the drive.

Please PM me if you need anything!  Hugs

Post # 8
Member
698 posts
Busy bee
  • Wedding: November 2011

I had half mine removed years ago to avoid medication and had random tests afterwards that all said everything was normal.  I haven’t had mine checked in probably 3 or 4 years and have no health coverage at the moment.  BUT, I feel the same way all the time too!  I dn’t think those tests they run are very good.  As soon as my coverage returns, I have t get tests done!  Good luck sweetie πŸ™‚

Post # 9
Member
395 posts
Helper bee
  • Wedding: November 2011

I’m hypothyroid, medicated, and due for a lab check soon! The crazy part about this is that different doctors use different “scales” of what is normal.  Sometimes the levels are off enough to cause symptoms, but not enough for a doctor to want to treat you, which is stupid to me.

Personally, I wouldn’t mind having slight hyperthyroidism… I would have more energy, not be so intolerant to cold (I FREEZE ALL THE TIME!!) and I could lose some weight more easiy!!

Damn this thyroid!!

Adrenal stuff is possible, I’ve read that the pituitary gland can cause secondary thyroid problems. 

Good luck!! Let us know how everything turns out. Keep your head up babe!! πŸ™‚

Post # 10
Member
270 posts
Helper bee
  • Wedding: June 2001

I have hypothyroid, and I had issues with not feeling normal even while on meds and with normal labs.  I did a lot of research also, and asked my endo to run my “free T-3” levels.  SHE REFUSED!!  I listed all the symptoms I had even while on the synthetic meds, and she daid I was just imagining it!  Nice right?  I found a Dr, online with awesome reviews and he rand the test.  It turns out my free T-3 was super low.  He put me on Naturthroid and I feel a lot better. It isn’t a synthetic, and it works a lot better.  good Luck!

Post # 11
Member
3148 posts
Sugar bee
  • Wedding: August 2012

If any of you fellow thyroid suffers want or need additional information, want some questions answered or just want to vent – there are some great FB pages that I use often.

Mary Shomon: Thyroid Patient Advocate (I read her book 15 years ago because there was no other books out on the subject and the internet wasn’t really as useful as it is today).  She’s an amazing woman: She is the author of all the articles on About.com regarding thyroid issues. 

https://www.facebook.com/thyroidsupport

 

Coalition for Better Thyroid Care.  I cannot recommend these ladies enough that run this site.  The are SO helpful:

https://www.facebook.com/BetterThyroidCare

These boards have helped me immensely.  Coalition for Better Thyroid Care has a tab with a doctors list. It’s all doctors other patients have had good experiences with and will check those Free T3’s, ect.  It’s not guaranteed, but it’s worth a shot.

 

Post # 12
Member
7429 posts
Busy Beekeeper
  • Wedding: October 2009

@stephanie63087: I PMed you yesterday with some info

 

@Mrs.Firefly1: thanks for those links, I honestly didn’t think to look on facebook for support

Post # 13
Member
3148 posts
Sugar bee
  • Wedding: August 2012

@MrsSl82be: I didn’t either but found them out of desperation for answers/help a couple years ago when my Natural T3 changed their formula.  They’ve been extremely helpful for me, I hope it is for you as well.

Post # 15
Member
3148 posts
Sugar bee
  • Wedding: August 2012

@35thannidaughter: You’re welcome! Good luck! There is a tons of information on them.

 

 

@stephanie63087: Don’t give up, there are tons of endos without bedside manners, but there are some decent doctors out there – it just takes awhile to find them (unfortunately).  I hope you start to feel better soon.

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