INFERTILITY POAS – covid edition

posted 1 year ago in TTC
Post # 721
Member
1861 posts
Buzzing bee
  • Wedding: September 2017 - California

I’m starting to feel a little annoyed that my PGS results are taking so long. I just checked an IVF FB page that i am a member of and someone asked how long it takes. Pretty much all of the women who responded so far said that they got their results in less than 2 weeks – in several cases, less than one week! Yesterday was exactly two weeks after my embryos reached Day 5. Maybe my clinic’s testing lab (not sure where they send the tests – I thought it was Natera, but could be wrong on that) is just on the slower side of things? I know they told me “about two weeks” but I was hoping that it wasn’t literally going to take 2 weeks plus. I’m trying to just relax and keep my mind off of it but that’s not working very well! I’m likely going to do another retrieval regardless of the results based on the stats that I’ve been given about likelihood of how many normal embryos I could get, but I just want to know already because I feel like it would be premature to ask my doctor about another retrieval until I actually know what our results are for this round. I hope everyone is having a good weekend!

Post # 722
Member
4646 posts
Honey bee
  • Wedding: October 2016

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@zstbee84:  I can relate to your frustration. I feel like my results came super early and TBH part of me didn’t want to know so I was taken aback at how quickly they came back. I am meeting with my RE on Tuesday to discuss more of the results of the testing in depth (I only heard from my nurse a brief explanation, although I made her look up the gender because I really wanted to know that and it’s a boy which is pretty great) and we are also going to discuss next steps. I am annoyed also that it took me two weeks to meet with her. Apparently that’s the earliest appt she had. I’m supposed to go in for BW on my 21st day which is July 1st so we can check that I ovulated and I can start the meds for the second retrieval next cycle. It’s just annoying because I feel like i’m cutting it close and the pharmacy I order my meds from is kind of stupid and you have to be on top of them to get things moving. I’m just a basket case and I want to get the ER over with in July. 

Post # 723
Member
1861 posts
Buzzing bee
  • Wedding: September 2017 - California

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@Cheekie0077:  I’m sorry to hear about all of the waiting to get your second retrieval under way and the stress with cutting things close. Sometimes I just want to scream: “Hello world, dealing with fertility issues is stressful enough on its own and now that you have thrown in COVID on top of that, can you at least just not add other things on top of that, ok, thanks!”  I think my RE’s schedule is similar to yours in the sense that in order to get a consultation appointment I need to schedule it at least a couple weeks out (although one time I got really lucky and got an appointment much faster, that was out of the norm). I haven’t been in the situation of trying to schedule something between cycles where I need to make decisions about the immediately following cycle, though I suspect it would be a similar situation as far as the wait. I kinda wish they would hold spots for people that they know are cycling in order to have their WTF consults sooner than that but I guess unfortunately that’s not how it works. 

Post # 724
Member
138 posts
Blushing bee
  • Wedding: November 2016

@anev:  Just dropping in to say congratulations! I have kept an eye out for you getting a positive test. I Couldn’t be more thrilled for you even if I knew you in real life. All the best and I hope you and your husband enjoy a safe and happy pregnancy. 

Post # 726
Member
1861 posts
Buzzing bee
  • Wedding: September 2017 - California

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@anev: Thanks 🙂 and hopefully I will hear back tomorrow about my results. My doctor included a number of clotting-related tests in my RPL panel, but I’m not really sure the testing included everything they could have possibly included. It seems as though different RE’s have somewhat different panels that they run, and so I am not sure if there are things we could have included that were not included. With respect to MTHFR, he prescribed me a prenatal that has both methylfolate and folic acid but I am not sure he actually ran the test associated with MTHFR since I didn’t see anything that looked like that on my list of results. I asked him if there were any other tests that we could run, but he said that between the RPL panel, the genetic testing on my husband and myself, the karyotyping and the DNA fragmentation, we’ve exhausted the testing. I still feel like there are some more obscure (and maybe not so obscure) things that some RE’s are willing to test for with someone who has had miscarriages, but they seem to not be very mainstream or somewhat controversial. I just hope that my husband and I have done everything that we can to set ourselves up for success with IVF, but I hate all of the unknowns — it definitely seems like there is so much doctors don’t know about pregnancy, especially very early pregnancy. 

Post # 727
Member
1861 posts
Buzzing bee
  • Wedding: September 2017 - California

I called and found out my results – I got 4 normal embryos! I’m so happy. I’m in disbelief right now. 

Post # 728
Member
3617 posts
Sugar bee
  • Wedding: July 2018

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@zstbee84:  yay!!  That is awesome!  Will you still do another retrieval?  That’s such a good number!  YAY!!!

Post # 729
Member
1223 posts
Bumble bee
  • Wedding: October 2013

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@zstbee84:  That is wonderful news!!!! I am so happy for you!! 

Post # 730
Member
1861 posts
Buzzing bee
  • Wedding: September 2017 - California

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@KittyYogi:  Thanks :). I am not sure yet — I’m going to see what my doctor recommends as far as whether or not a second round makes sense. I am hoping the answer is no, but I am also really paranoid that I’m going to have a problem with even normal embryos sticking. 

Post # 731
Member
1861 posts
Buzzing bee
  • Wedding: September 2017 - California

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@candy08:  Thanks :). I am waiting to hear back from my RE on what he recommends to do next. I asked him about the grading since I didn’t get that from the persons who gave me the results and I’m not sure how that impacts success, but my understanding is that it still has an impact even with normal embryos. 

Post # 732
Member
3617 posts
Sugar bee
  • Wedding: July 2018

Question for IVFers…. when you were choosing a clinic, how much weight did you give their success rates vs. pricing vs. other factors?  We are paying all out of pocket.

We are torn between flying to a clinic with somewhat low to average success rates and great pricing, driving 4 hours to a clinic with somewhat low to average success rates and moderate pricing, and driving 2 hours to a clinic with above-average success rates but high pricing (still not as high as some, but >$20,000 for IVF with ICSI and genetic testing, including meds and everything).  The difference between each clinic would be like $6,000, so a $12,000 difference between cheapest and most expensive (per round of course).  We can afford it, but also that money could REALLY be useful in paying down our mortgage etc.

I just DO NOT KNOW what to do!  We’ve had one consult, another one is this friday, and the place that is closest with the best success rates but highest pricing can’t get me a consult until 1 month away.  I’m hoping we won’t have a really tough case – my husband has male infertility factors and I have some indications of PCOS, but I’ll also be newly 38 when we start. We have one toddler conceived without intervention and another miscarriage last fall.

If anyone could talk me through how you chose your clinic, I would sure appreciate it.  Feeling really overwhelmed.

Post # 733
Member
3617 posts
Sugar bee
  • Wedding: July 2018

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@zstbee84:  that makes sense.  4 does seem like a great number!  Are you hoping to have some for another child later too, or just one pregnancy?  That could affect things (depending on your age too).

Post # 734
Member
1861 posts
Buzzing bee
  • Wedding: September 2017 - California

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@KittyYogi:  Honestly, I found the success rate stuff really overwhelming. Also note that there are so many different metrics and some clinics turn down harder cases whereas others take them on and their success rates are affected negatively by that.  I relied almost entirely on word of mouth and online reviews. I have several friends who are going through or have gone through IVF and I exchanged notes with them and basically came to the conclusion that there are handful of top clinics that I could have chosen from. I’m also extremely lucky in that my employer recently updated my insurance to cover IVF (although from what I understand they would have been required to cover it under the new NY mandate once my insurance plan renewed in the Fall – but luckily they decided to change the plan before that time). My insurance does not cover embryo banking, so I would be out of pocket for a second retrieval but for the first retrieval cost was not as much of a factor (although my insurance does not cover freezing/storage or PGS testing, which were surprisingly expensive at my clinic).

Post # 735
Member
1861 posts
Buzzing bee
  • Wedding: September 2017 - California

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@KittyYogi:  Yes, we want two children. I’ve read that ideally we would bank 6 normal embryos before going to the transfer stage, but I have not heard that from my doctor so I’ll see what he says. 

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