Post # 1
When I was 14 years old, I started having irregular cycles. Actually, I started constant bleeding, which led to anemia, and NO ovulation cycles. Since that time, I’ve been through countless types of pills, shots and otherwise to try to control my system and make me “normal.” I’ve had umpteen ultrasounds and trans-V ultrasounds to try to figure out what the heck is wrong with me. I’ve been poked and proded and tested. A doctor once laughed at the results of my lab test because my testosterone levels were so elevated.
A while ago, a few doctors seemed to settle on the idea that I must have PCOS. I’m very lucky that the weight gain and acne are completely under control when on the pill, but I quickly balloon out and turn into a pepperoni face when taken off. I’m now 26 years old, soon to be 27 and about to get married. I’ve been on BC for 13 years of my life. I know that if I don’t have a baby soon, I never will.
So I went to my yearly today. I told him that I’m getting married and graduating from law school and that by this time next year, I want to start TTC. He responded with the lovely news that I now have a tilted uterus. I never did before, it just decided to tilt back suddenly for no known reason. It shouldn’t be a huge deal. It negatively impacts fertility and increases the chance of miscarriage, but not by a lot. But I have the lovely PCOS on top of that, so I’m freaking out and crying at work today.
Meanwhile, I have 4 sisters who have all gotten pregant multiple times, always on their first try. Being this way makes me feel so broken and half-human.
Post # 3
I am about the same age as you and have PCOS too. I am about to start TTC and totally understand the fear that it may never happen. After my last ultrasound results I had a total breakdown on the kitchen floor after reading them. My Fiance didn’t know what to do 🙂 I’m just trying to be as positive as I can be at the moment, trying to hope that i’ll just get lucky and break the odds. I know I can’t say much to help but ((hugs)) – these boards have lots of support on them.
Post # 4
I’m so sorry. I wouldn’t wish infertility on my worst enemy. And I know firsthand how much it can mess with your head and sense of self, especially when it’s so easy to get pregnant for others around you.
My only advice is to consider working with an RE (reproductive endocrinologist) once you’re TTC, rather than a regular OBGYN, if you’re not already. An RE will be much more knowledgeable about getting you pregnant in spite of your challenges, rather than just identifying problems and mitigating symptoms. I also felt so much more understood and taken care of by my RE’s office than my OB when dealing with infertility.
I wish you the best of luck!
Post # 5
I know first hand what you are potentially going through. I didn’t get married until I was 35 and only THEN did I find out about my PCOS. My journey isn’t one that I would wish on my worst enemy. After 2 years of trying and 2 miscarriages (both in the last 6 months), I’m finally on my way to seeing an RE and being tested for repeat pregnancy loss…
As far as age goes, at least you have a good 10 years on me! I turn 37 in August… *sigh* Just keep your chin up and push for testing whenever you feel it’s warranted.
I’m hoping that your journey is much shorter then mine has been so far and much easier.
Post # 6
Well, he wants to do a scan on Friday to check out some “fibrous tissue” he noticed today. When I looked up “tilted uterus” online, I saw that endometriosis is a cause for a uterus to tilt, which would also cause fibrous tissue.
If I have PCOS, endometriosis, AND tilted uterus… I’m just dreading Friday morning right now.
Post # 7
@Tangled: I’m so sorry =( Hugs to you.
Post # 8
(hugs) I understand the frustration. I’m going through some health problems as well and it while i’m not TTCing right now – it’s hard to hear that everyone has been getting pregnant lately. I sincerely wish you the best of luck though.
Post # 9
- Wedding: November 2007 - Radisson Hotel
@Tangled: I am so sorry for you, I understand how hard it is. I have a tilted uterus, and conceived my daughter on our 12th cycle. I want to say there are a ton of people here who want to give you a hug and nod their heads and just say, “Hell yes, let’s kick some crap around.”
Post # 10
How have things worked out since the last appointment? I’m the same age and have PCOS too…my hormones are out of wack and I have some of the symptoms although no actual cysts. One of my close friends also has PCOS and has had trouble conceiving..while they continue to try they’re going through the adoption process. I know it isn’t the same, but there are always ways to be a parent. Good luck!
Post # 11
p.s. i’m going back to school for two years for a compressed nursing program, getting married in one year and we will be ttc ASAP!!! as soon as I’m done school and semi-stable with work! ack!
Post # 12
@FoolsintheRain: Thanks for thinking of me! Things did not go as poorly as they could have. No endometriosis. The PCOS is still there. I guess I didn’t realize it, but after going so long without an ultra sound I was kind of hoping that they wouldn’ tbe there anymore. I’ve heard of that happening for some women. One day they’re just, gone. Well, mine are still there. I have about 20 cysts on each ovary. Not looking forward to TTC with PCOS and a tilted uterus. Starting next May and not looking forward to it at all.
Post # 13
@Tangled: Sorry that you are having to deal with all these issues 🙁 I feel for you. TTC is hard enough emotionally without having extra things to deal with making it harder. I often feel a bit envious of women with normal bodies & cycles who just get to TTC ‘normally’ without the anxiety & frustration of extra concerns x
Post # 14
@Tangled: First, take a deep breath! Try not to get upset or concerned about your fertility before you even TRY to get pregnant. That’s the same exact mistake I made, I have a tilted uterus caused by endometriosis, and like you, I was convinced that if I didn’t get pregnant before 30 the advanced maternal age would do me in. It did end up taking us a little over a year to get pregnant, but I think the biggest thing we did right was NOT stress over it. We took the approach of it’s meant to be it will and forewent all fertility treatments/enhancements. Just when we were starting to really think it wouldn’t happen and were coming to terms with it we got our BFP, and neither the tilted uterus or the endo has stopped me from carring to almost 36 weeks now.
Now I’m not saying you wont have problems but PCOS is EXTREMELY common and there are a ton of bees on this board who have it. I have also read a lot of stories where PCOS women conceived in their first month no problem, so try not to freak out just yet. Test the waters a little first and we’re all here for support if they get rough. Oh, and try to relax and be patient; that’s probably the best thing you can do for your fertility right now.
Post # 15
@PandasWifey: Thank you for sharing this as it was calming to read.
@Tangled: I too have PCOS. I was never normal with periods ever since I started menstruating. I have been on the pill for about 23 years now to control my PCOS. I wonder if it’s a world record. I just stopped taking it a few days ago and am going to the doctor next Monday to get reassessed. I have never tried to conceive and have never been found to be insulin resistant so the pill has been the best option for me, or so I was told. I was also recently found to have fibroids. Wonderful.
Now though, I am engaged, and almost 37 years old, and I find myself wanting to rush absolutely everything, the wedding, moving to a new place, just so Fiance and I can just get a shot at conception before it’s too late. But the whole rushing thing does nothing but put stress on our relationship. So I am trying to focus on myself and treating my condition in a holistic way, which my Fiance wholeheartedly supports.
I too am envious of women who get their periods normally. I would give anything to feel like a regular woman with regular periods.
I wish everyone here the very best of luck.
Post # 16
- Wedding: November 2013 - St. Augustine Beach, FL
I second working with an RE as soon as possible. A lot of times your OB/GYN won’t refer you to an RE until after you have unsuccessfully tried to conceive for at least a year. If you’re insurance allows you to see a specialist without a referral, go ahead and make an appointment with an RE as soon as you want to start trying. Make sure you bring your records from the OB/GYN showing the PCOS diagnosis and US results (pics are even better.) An RE specializes in difficult or risky pregnancies so they should be able to better advise you on how to conceive and avoid miscarriage. I know it’s difficult but thankfully they can diagnose PCOS now and there are treatments for it to help you conceive (such as Clomid).