(Closed) Just found out my grandma needs to be put on dialysis

posted 8 years ago in Wellness
Post # 3
Member
2588 posts
Sugar bee
  • Wedding: February 2014

I don’t know much about dialysis, but I am so sorry and will keep you and your Gran in my thoughts.

Post # 4
Member
227 posts
Helper bee

I don’t know much either – sorry I can’t be of more help there. Just wanted to let you know I’m thinking of you and your grandmother and I hope everything turns out ok!

Post # 5
Member
1184 posts
Bumble bee
  • Wedding: August 2011

Unfortunately, I know a lot about dialysis. My mom actualy had a kidney transplant 3 years ago…she was scheduled for her first dialysis treatment the next day when they confirmed they had a match for her. We had already done a ton of research though, so if you have any specific questions, please feel free to ask. I guess the first thing is that dialysis kind of sucks. I’m afraid that’s just the truth. But you can offer your grandmother a lot of support that will make her life easier. Dialysis cleans your blood when your kidneys no longer can, but there are various ways of doing so. The most common are hemodialysis which is usually done a few times a week, and peritoneal dialysis which can actually be done at home. Her doctors will tell her what she needs, but it will probably be the first one. Dialysis is time-consuming and isn’t exactly comfortable, so having a support system for your grandma (where various family members could go to each dialysis session with her) is something you can do to really help. As for life expectancy, we met people that had been on dialysis for over a decade, so please don’t think of this as a death sentence. The most important thing she can do is keep every dialysis appointment. 3 times a week may seem like a lot, but skipping appointments is what can really reduce one’s life expectancy on dialysis.

Sorry this is do clinical. Again please ask if you have more questions, I have spent way too much time with doctor talking about this stuff and I’d happy to talk to you about whatever.

Lots of hugs for you and your grandma.

Post # 6
Member
101 posts
Blushing bee
  • Wedding: October 2011

I’m sorry to hear that.  My father was put on dialysis in May.  He goes 3 times a week, beyond that I honestly don’t know too much about it.  He lives in Seattle and I live in Texas, so I’m a little concerned what this will mean for him and coming to our wedding (also in TX).  But I have heard that people go on living mostly normal lives for years and years on dialysis.  

I wish you and your family the best of luck with all of this.  I know it’s not easy having a loved one go through medical problems. πŸ™

Post # 7
Member
1184 posts
Bumble bee
  • Wedding: August 2011

@lindsd16: There are dialysis centers pretty much everywhere in the US, so when dialysis patients travel they just have to make pre-arrangements with a dialysis center in the city they are visiting. His home dialysis center should be able to help him make arrangements. Hope all goes well. People really do go on leading normal lives on dialysis.

Post # 8
Member
664 posts
Busy bee
  • Wedding: January 2011

I’m sorry to hear about your grandma! I know that’s hard for you to go through. My thoughts and prayers are with your family! As far as knowledge about dialysis, I’ll try to summarize. As already previously mentioned, dialysis is basically a mechanical kidney filtration system. When your kidneys aren’t able to excrete waste products from your bloodstream and maintain acid-base balance, the wastes build up in your body and cause problems just about everywhere in your body. Dialysis is basically a way of filtrating out all the wastes since the kidneys can’t. There are two types: hemodialysis and peritoneal dialysis. With hemodialysis, you will have to have an arteriovenous fistula (which is a joining of an artery and a vein) or a graft. This is used so that your blood can be drawn out, filtered, and then restored into your system.  Peritoneal dialysis is when a catheter is surgically inserted into your abdominal cavity and the fluid is exchanged and then drained into a drainage bag. It is a slower process.

Obviously, dialysis isn’t a pleasant thing. As far as life expectancy goes, it’s hard to say. It’s dependent on several circumstances. It can prolong her life anywhere from months to years! There are several great websites online for you to do research on. If you have any questions feel free to PM me! Like I said, you are in my thoughts! I wish the best for you and your family. πŸ™‚

By the way, I meant “you” hypothetically. I know it’s not you on dialysis! Just wanted to make that clear!

Post # 10
Member
664 posts
Busy bee
  • Wedding: January 2011

@CaraMia10: I know it’s tough. I’ve lost 2 grandmothers in the past 5 years. One to breast cancer and the other to congestive heart failure. There’s nothing easy about it but having a strong support system definitely helps! My advice is just to spend as much time as you can with her and never leave anything unsaid! There are days I wish I would’ve told my grandmothers how much they meant to me and now I’ll never get the chance, even though I know they knew. Just be strong for her and she’ll be strong too!! Hoping everything works out for the best πŸ™‚

Post # 11
Member
1184 posts
Bumble bee
  • Wedding: August 2011

SO glad we were able to help. A lot of stuff online can be complicated. I’ve found that the American Kidney Fund has a particularly patient-friendly site. Here’s their page on dialysis:

http://www.kidneyfund.org/kidney-health/kidney-failure/hemodialysis.html

Again, good luck and feel free to come back with any more questions. It’s great tohear that your grandmother has such a great spport system, that will be so important for her.

Post # 12
Member
9 posts
Newbee
  • Wedding: October 2010

I was on hemodialysis and peritoneal dialysis.  I had kidney failure and a transplant 3 1/2 years ago.  So if you ever have any questions feel free to ask I have been though it all.  Prayers for your Grandmother, you, and your family.  I know it is a rough time.  But dialysis gives you strength and makes you feel better!  

Post # 14
Member
9 posts
Newbee
  • Wedding: October 2010

I am 3 1/2 years out from my transplant and I am doing wonderful.  At home treatments are great you still have your freedom and are not confined to a hospital or clinic for 4 hrs a day, 3 days a week.  But in kidney failure your more tired than usual, and she’ll probably be on a special diet.  Dialysis will make her feel better and make her much stronger.  Savor all of your time with her.  I lost my grandfather to heart failure, but being there in the end made things easier and I know he is now in a better place!

Post # 15
Member
3587 posts
Sugar bee

I just wanted to say I’m very sorry about your grandma. Hearing dialysis is quite scary, but I’m glad she has a support system.

My grandma had to go on dialysis, but unlike your grandmother, she takes horrible care of herself. She has type 2 diabetes also. She goes 3 times a week and the only reason she is on it is becaue she had to, she refused for so long. πŸ™ I know that I have been taking even better care of myself because of this.

Post # 16
Member
520 posts
Busy bee

@CaraMia10:  Just now seeing this post.  I am a nurse who works for the home divison of my company.   ( peritoneal dialysis and home hemo dialysis) Plesae feel free to pm me any questions regarding your grandmother. 

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