(Closed) Just got bad news :,( emotional support anyone?

posted 4 years ago in Wellness
Post # 3
Member
3430 posts
Sugar bee
  • Wedding: June 2013

@mlford0531:  HUGS! My BM just found out she has this and I suspect my daughter does as well. I don’t know if you have symptoms but both my daughter and BM are suffering from missed periods, excessive hair in places it’s not supposed to be and weight settling in their mid section even though they eat fairly healthy..in my daughters case like a bird. My daughter has hypothyroidism I’m assuming you’ve had your blood checked.  My BM is on metmorfin and it gives her the shits. That’s all got for you..still too early to tell how it’s working as BM was recently diagnosed. good luck to you! sending out hugs! 

Post # 4
Member
572 posts
Busy bee
  • Wedding: March 2012

@mlford0531:  Hi there, sorry to hear about your dx. I have had PCOS for the last 10+ years. When puberty hit me as a child, I never had regular periods, they were either very long and heavy, or I would go without them for 6, 7, 8 months. The first GYN I saw said I would “grow out of it” and that it was normal?! Which my family and I knew just couldn’t be the answer. I put on 50 pounds in a year, without a change in diet or regular activity.

It took me a couple doctors to finally find out what was wrong, but when I started Metformin (generic glucophage) it did help to improve, not eliminate my symptoms. I was able to slowly start losing some of the weight and felt generally better. It did give me some bathroom/gas issues, but it was worth it to me. Everyone reacts differently to medications and the dose they take. They also have an extended release version you can try if you find your stomach to be extra sensitive.

Becoming a mother was a number one priority for me, a life’s dream I was unwilling to give up. Metformin never did regulate my periods, nor did weight loss. It took about 4 years, but working through it and finding the right combination for my body in medication, I am now in my last trimester expecting our first baby, a girl. The pain of the wait was so worth it to have success.

Nobody can tell you what is right or what will work for you. For me, we found out in addition to PCOS, I also had hypothyroidism. I was taking Synthroid, Metformin, and Femara (to induce ovulation) to achieve my current pregnancy. I did not respond to clomid, so in all, it took about 5 rounds of fertility drugs, but we didn’t get to that stage for a couple 2/3 years before we got it right, and took breaks inbetween per advice of Doctor. I know many who have had success within just a couple months of TTC, and some, who still haven’t had it pan out for them. It is impossible to tell, but if you take care of yourself, your relationship with your SO and your Doctor, you have excellent chances of finding what will work for you!

I am sure if I had been more aggressive in seeking fertility treatment that I could have gotten to fertility medication added sooner, but really wanted to try and regulate my cycle on my own.

This condition can feel very disruptive to your day to day life, but it is definitely manageable. I have extra weight and hair growth on my neck, I take care of it with nair. It causes some mild self esteem problems, but you have to stay positive as that is what is going to get you through. Good luck!

Post # 5
Member
572 posts
Busy bee
  • Wedding: March 2012

Also want to add, I am not sure how many can/will come forward in the wellness section, but I am just certain that MANY bees will have tons of great advice and support for you in the Nesting/TTC section of this site. It is very uplifting to know you are definitely not alone and many can share in your concerns and frustrations!

Post # 6
Member
26 posts
Newbee
  • Wedding: October 2014

My bestfriend was diagnosed with PCOS in 2012. She was also told she would have a very difficult time getting pregnant without any help from her doctor. She had unprotected sex a few times, thinking she couldn’t conceive, and found out she was pregnant in June only a couple of months later after her diagnosis. She was very surprised To say the least. 

 

I hope you have a similar story and are able to conceive easily. I wish you the best! 

Post # 7
Member
3697 posts
Sugar bee

A friend of mine was going through treatment for PCOS and learned that she was pregnant when they looked at her ultrasound and, surprise, a teeny tiny little fetus appeared! Her daughter is now a toddler and she’s about to give birth to #2. You definitely have hope. Hang in there!

Post # 8
Member
10509 posts
Sugar Beekeeper
  • Wedding: January 2011

Sorry to hear this, at least you have a diagnosis so you can get the appropriate treatment more quickly if you do have trouble concieving!

Post # 9
Member
969 posts
Busy bee
  • Wedding: October 2012

I “possibly” have it without the actual cysts. There is an over the counter supplement called Pregnitude (you don’t have to be TTC to take it, in spite of the name) that I’m taking that supposedly helps with insulin resistance that accompanies PCOS. It looks like it is helping a lot of women with fertility issues and PCOS, just from browsing the Internet. If you don’t want to buy the name brand supplement, the ingredients are myo-inositol (which is apparently some kind of B vitamin) and some folic acid, if you want to buy the Generic equivalent.

 

Also, low carb or “south beach” type diets may be helpful. I personally have gone gluten free to see if it helps!

 

Post # 10
Member
115 posts
Blushing bee
  • Wedding: August 2013

I have PCOS as well…one thing that really has made a huge difference is cutting out the carbs! 

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