(Closed) Ladies with Endometriosis

posted 8 years ago in Babies
Post # 3
Member
93 posts
Worker bee
  • Wedding: April 2009

I’m sorry to hear that you’ve had such awful pain. I don’t have endometriosis, so I can’t share an experience with that. But I did just find out that I am pregnant. It’s super early (I would have gotten my period tomorrow). One of the first things I experienced as a “symptom” before even testing was basically exactly what you’re describing: sharp abdominal pulling. Not  quite like period cramps. So, hopefully it’s a good sign that you were successful TTC Smile I know the last few days before you can test are excruciating, but try to test too early. I did and got a negative and I was completely discouraged. All for no reason since I got a positive yesterday. Good luck and let us know what happens!

Post # 4
Hostess
18643 posts
Honey Beekeeper
  • Wedding: June 2009

I have endometriosis too (or did).  I had a lap 4 years ago and they removed it and my most recent surgery in December didn’t really show any there even though I was still having pains.  I think it’s overall very unpredictable (though pregnancy does halt endometriosis growth because of the hormones involved).

Post # 5
Member
14186 posts
Honey Beekeeper
  • Wedding: June 2009

Endometriosis is SUPER unpredictable. It’s like cancer basically and can go into “remission” and nobody knows why. I had really bad endo a few years ago (6 hour laproscopy surgery, dr said i was a train wreck, should have a baby before i was 22, pulled out 3 cysts and tons of tissue) and then i had a D&C and another lap later, but when i went back for the last lap, the specialist was like, “um…you don’t have endomtriosis. it’s gone!” which totally baffled me. I know I still have it, and i’m living on borrowed time, fertility-wise. I’ve been on BC straight up since i was 19 to keep it away and followed an anti-inflammatory diet. So, it easily could’ve gone into remission or it could be on a downward spiral because of where your menstrual cycle is. But, the good thing, is that if your endo is mild, you still have a good likelihood of conceiving because pain and fertility are not even correlative in endometriosis (which is very strange). You can have no pain and lots of endo or tons of pain and little endo (plus it all depends where it is). But my pain can come and go (my endomtriosis causes painful sex, which, about 50% of the time, bothers me, and I have yet to figure out what triggers the pain) so basically, it’s kind of a crapshoot! I wouldn’t read too much into it (it’s possible some of the sex released some of the pain/pressure of the tissue, too) because while pregnancy DOES eliminate endomtriosis temporarily, I don’t see how it would kick in that fast. Anyways, I hope it’s BECAUSE you are pregnant since you are TTC and the more cycles you bleed and don’t get pregnant, the more scar tissue you develop. Good luck!

Post # 7
Member
2083 posts
Buzzing bee
  • Wedding: May 2010

Definitely agree with the other bees, endo is totally unpredictable and so many times makes absolutely no sense.

I have endo, finally after ridiculous amounts of visits to the gyno I had a lap and they diagnosed me. Only took me passing out at work from the pain to get them to take me seriously! I’m on continuous BC to try to keep it away since the lap but it came back quickly for me too. So even the BC can’t disguise the pain all of the time. Last scan showed my uterus is adhered to something or another, so I just have to take pain medication every day.

I think that this is just another one of those frustrating endo experiences though. You’re confused by the symptoms and are not really sure what it all means – totally sounds like an endo girl! I hope and pray that it means you conceived, but there are times that my pain seems to magically disappear for a couple of months then it comes back with full force.

Post # 8
Member
2083 posts
Buzzing bee
  • Wedding: May 2010

PS. Just curious, did having endo influence your choice of when you would TTC? I think about it a lot and we have pretty much decided to start trying in about 2 years because of a combination of that and it would just be the best timing with his medical school. It just sucks because we never know where it is going to grow if it is growing – I’m always terrified they’ll find it on my tubes or something.

Post # 13
Member
93 posts
Worker bee
  • Wedding: April 2009

Hi Georgia! Thank you for the congrats, yes we are ecstatic! I’m sorry to hear this wasn’t the month for you guys, but don’t worry I’m sure it will be soon. One more month of all the fun of TTC, and maybe have a drink or two while you still can Wink

Here is how the process was for us: Cycle 1 – We decided to start trying mid-cycle. I was already temping and tracking CF, but just with the intention of gathering information for trying down the road. We didn’t use OPK’s, just tried 2 days before the temp shift. No luck. Cycle 2 – I switched to a vitamin with a higher level of B6 and ovulated super early (Day 12 instead of Day 16) and we MISSED IT altogether despite using OPKs because i just could not fathom it would happen that early. Sure enough my cycle was also a few days short that time! Cycle 3, used OPKs again, confirmed Day 12 ovulation again and this was our lucky cycle 🙂

So, a total of 3 cycles, but all together under 2 months calendar time of TTC. I think learning to use OPKs in conjunction with charting was key for us. Sorry if this is more info than you bargained for, but if it can help you at all then I’m happy to share.

 

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