I’m so sorry you are going through this, but on the plus side, I think there are a lot of things that can be done that may help! Here is what I know our diabetes educators like to stress:
1. Education! Every disease is scary and overwhelming when you don’t know what you are dealing with.
The difference between type 1 and type 2 is not very clear from media reports, which only focus on type 2, but type 1 is very different. In type 1, your pacreatic beta cells simply do not make insulin (or nearly enough). Insulin allows glucose– our body’s main energy source– to enter in to the cells so they can work.When this doesn’t happen, all sorts of problems can occur, as you know. Luckily, exogenous insulin is pretty awesome and works very well.
So, it isn’t your FIs fault he was drinking so many sugary drinks that weekend before he was diagnosed In fact, it makes sense:
First, polydipsia (increased thirst) is a hallmark of diabetes type 1. Remember, all that glucose that is supposed to be in your cells is now in your blood, and your blood, which should be say 1% sugar to 99% blood is now like 50% sugar and 50% blood (to make up some ridiculous numbers for the sake of example). His body’s natural instinct it to drink lots of fluids to diluate it and get the balance right again.
Second, As for the suagary drinks– remember, the body is brilliant and dumb at the same time. Those cells know they need sugar, but they don’t know that it is avaliable but unusable. All they know is they want it and no one is giving it to them! So, craving sugar (and the energy they need to run and live!) makes sense.
Sorry to go off, but I thought it was a great example of how helpful it is to know the disease you are facing! I would be mad at my Fiance, too, if I knew he had been doing that, but maybe less made if it made sense why?
There are a lot of technical terms and complicated regimes and funny things about diabetes. Luckily, every hospital I know has a diabetes educator on staff and runs diabetes education classes. I know the fees are usually pretty manageable– $50 for 3 classes, or something like that. It is not a lot of money considering how much you will save in stress and complications! A good educator can help you understand the disease, the terminology, and the treatment.
2. Support! Chronic diseases are really hard on people. If it makes you feel better, it is my understanding that iis VERY common for young people to rebel against their diets. IT is hard to give up your life as you know it for a disease. In our society, diabetes seems minor compared to some other chronic illnessess, but it doesn’t seem minor when you are the one who has it. There are some great online and in-person support groups, and the american diabetes foundartion is AWESOME as far as resources. Would be be up for joining a diabetes message board as a place to start?
3. TEST THAT SUGAR! I can’t stress this enough. Strips are really expensive, and it sucks, and it isn’t fair that anyone should have to wonder if they can afford to take care of their health (but tha’s a different political rant). However, diabetic complications are very scary and very devistation. You have seen ketoacdosis and poor wound healing– it can happen so easily. It’s not uncommon to lose toes or, yes, legs. And sexual performance can be affected, too…
The insulin pump is a really fantastic option for everyone, but maybe especially for your boyfriend. It keeps your sugar under great control and Again, not cheap, but honestly, I would say forgot the dress, forget the wedding– beg, borrow, or steal the money to get him the treatment he needs. Again, a local diabetes education/american diabetes association chapter might have an idea about option avaliable– drug companies sometimes subsidize the cost of their drugs for lower-income people, there are grants, or government programs if he qualitifes.
Bottom line, though, he needs insulin to live and as a type 1 diabetic, his body does not and won’t ever provide it for him (unlike type 2). The end.
My heart goes out to you. It sounds like you really love him and want the best for him. I think it would be totally fair to set a boundary– he takes care of himself or you cannot be with him. You can’t watch the guy you love go from one crisis to the next– not fair for you. Be there, support him, go with him to the classess, order the strips for him, etc– but at some point he needs to step up and decide he wants to be well.