Post # 16
liaeona : have you looked into SNS?? i was a breast feeding after breast reduction mom. there are many women who don’t produce enough and need to supplement. they either supplement with donor milk or formula. but want to keep the baby at the breast so they use an SNS system.
i had an early baby who was in the nicu who had a toungue and lip tie that wasn’t discovered until 8 weeks. not only was DS’s mouth no fully developed but he couldn’t open it enough. top that with the reduction, i was never able to get my supply up. we supplmented when he went from 5lb3oz to 4lb9oz.
i didn’t learn about SNS until after we had already been giving the bottle and fpund our rhythm. but with my next child i plan to get a system.
eta: i was a triple feeder, breast, botlle, pump. feeding took us an hour every single time. it was very stressful.
i also suggest contacting an ibclc, i’m sure one will be able to help. i didnt like the one at our pediatricians office and found another one who came to our home. then we had a few follow ups in her office.
Post # 17
Just wanted to add something that people are not always considering on these boards. If you are exclusively pumping, you only need to pump every 2-3 hours for a few weeks to establish supply. If things are going well, you can reduce time pumping significantly. My daughter is a little over 4 months now, and I have been exclusively pumping since she was 3 days old. I now only pump 4 (sometimes 5) times per day, about 15-20 min per session. I get about 34 oz of milk per day. It isn’t as bad as people say it is. My body is used to the pump and I do it before bed, when I wake up, and 2 or 3 other times (usually while riding in a car or watching tv or something.)
Post # 18
I am sorry. That sucks. I am starting to figure out myself that pregnancy and childbirth isn’t always the plan you want it to be so I feel you on your frustration.
I don’t have a cleft baby but I work with them every day. I really hope you have a good team- a support system, occupational therapist, surgeons, etc. A standard timeline is to repair the lip at 3-5m and the palate 8-10m. The lip isn’t a problem but the palate is an open communication with the nose that causes loss of suction. Picture drinking out of a straw with a hole in the side…now you get it. Depending on the severity of the cleft and the hardiness of your babe- I’ve seen some be successful but most can’t get all the nutrition. You can definitely work and try but will likely need to supplement and that’s ok.
I also love the ccakids website- I don’t know off the top of my head if they have BF/pump resource.
Hugs and good luck.
Post # 19
I couldn’t do much breastfeeding, from the beginning our baby got mostly formula. We still breastfeed once or twice a day but honestly we look at each other more when we’re bottle feeding. When he’s on the breast he just gets an eyefull of boob haha. And you can always do skin to skin anyway! Just cuddling and lying together after feeding. My baby loves that!