Post # 17
@saraja87: We tried the Nuk Sippy the last few days and he will drink some out of it so we are making some progress. I did find some yogurt melts he really likes. I don’t give him very many, maybe two or three at a time and then a few more later. He still drinks 28 ounces of formula a day and gets his baby food.
I think because of his diagnosis of stroke I am just so on edge about everything. I don’t want him to have to struggle to have a normal life. If I can do whatever I can now to prevent him from falling behind then I will do whatever it takes.
I know this is going to make me sound like the WORST mother in the world ever but I get so angry sometimes that he had a stroke. I feel like I did something wrong. My 2 girls are perfectly healthy and developed normally. I feel like it’s my fault that he had a stroke and that I am being punished. I get so envious of our friends who have babies close in age to our son and they are all doing normal things like using both hands. He favors his left hand and has to really concentrate on using his right. It’s not fair!
Post # 18
Are you part of your state’s early childhood intervention program? In Iowa it is called ACCESS. I would think his inutero neuro diagnosis would put him in the “at risk” category so he would automatically qualify for an IFSP. Your service coordinator (case manager) could get you an OT to visit you at the drop of a hat.
Post # 19
It sounds like you are doing everything you should be!!! The fact that he started taking the yogurt bites is definitely progress! Just be consistant in offering the cup and really try not to get frustrated when it doesn’t work, because then it isn’t a positive experience for your baby, and he might start to dislike it because of the way you act when you try it, you know?
As for those thoughts that you did something wrong and are being punished, GET THAT OUT OF YOUR HEAD RIGHT NOW! You did nothing wrong. Bad things just happen sometimes. Keep your chin up and try to stay positive! (I know it can be really hard, but maybe if it stresses you out too much, your husband can try to work on the sippy cup more like a PP said)
Post # 20
@the boss of you: Yep, we are in the Early Access program already 🙂 Since the day we found out about his stroke I have been OCD on researching anything and everything that I can be doing to help him completely recover and have a normal life. He sees his physical therapist every 2 weeks and then Early Access will have their physical therapist come every 2 weeks, so he will have weekly physical therapy. He will also get occupational therapy and we are going to do water therapy this winter. He loves the pool. I work with him everyday. Its pretty simple exercises we do like making him bear weight on his right hand so his brain realizes he is a two sided boy. I massage his right hand to get the muscles to wake up. We have been talking about doing Constraint Movement Induced Therapy soon. They will put a cast on his good arm for 2 weeks and that will force him to use the right arm/hand.
Post # 21
Awesome. It sounds like you have all the resources available to you. I’d like to tell you not to worry, but to keep doing everything you know how to do. I’m a speech pathologist but don’t have kids yet.
Post # 22
It sounds like you have a plan and are really well-informed about what you need to do. I work in special education and while I don’t have kids of my own I can tell you that early intervention does make a difference. Of course, the challenge can be balancing just having fun and being a family with the pressure to do everything suggested by OT and PT…almost like you become another therapist instead of a mom. From your descriptions you are being really thoughtful trying to problem solve the situation and keeping yourself informed, don’t beat yourself up, you’re an awesome mom!
Post # 23
It sounds like you’re doing everything right. Hugs, I know it must be scary for you, and you that you’re constantly worrying about him. You’re doing a gret job, though, momma!
Post # 24
im an early childhood educator with a background in psychology/biology
the younger the kids are the more differences you see developmentally, you can’t really spot a delay in kids younger than pre-school age
babies and toddlers are all over the map as each one is still getting adjusted to the world they live in,
the fact that he refuses to hold things and use fingers, sippys, etc may very well be not because he can’t, he just does not want to 🙂
i think its just more about his personality developing very quickly and he’s making decisions on what he prefers, which is a higher level function
so that only points to good parenting
Post # 25
@Ellebot: It’s funny you mention personality, he definitely is a stubborn little guy. He has started throwing little temper tantrums when he gets frustrated. We have noticed that he will use the right hand when we aren’t eagle eye watching him 🙂 It’s almost like he wants the extra attention. We don’t hover over him and I do make sure he is able to self entertain. He definitely knows what he likes and doesn’t like when it comes to certain things. :):)