Post # 1
Bees, I’m very upset and this is such an emotional subject that I haven’t even told my closest friends, but..
My father has been sticken with labyrinthitis, which is forcing him to go on disability. If you’ve never heard of this, you’re not alone – I hadn’t either and had to look it up on Wikipedia.
I’m really upset because there is the chance that he will lose his certification to be a surgeon and will have to settle for practicing other forms of medicine instead. Being a surgeon is who he is and it’s his whole life – he is still a primary breadwinner in our family and many rely on him to provide. :<
Nothing ever happens to him and so I am very shocked that the doctors gave him a recovery time of 4-6 months — has anyone had this disease or anyone they know have it? TELL ME that is a worst-case scenario estimate.
He wants to get back to work and we want to get back to normal. As I’ve talked about before, my mom is still grieving her father’s loss and her beloved horse’s loss and so it just keeps getting more and more scary for her. Life just won’t let up!
Post # 3
I’ve never heard of it, and I’m so sorry for what your family is going through! The upside is that he’ll recover though and I’m sure he’ll get back to work in his normal capacity! Does he have a really severe case? Is that why they’re saying the recovery time is so long?
Post # 4
my mom has it. doesn’t sound nearly as serious as your dad’s case though.
lots of balance issues.
Post # 5
I’m sorry for your dad’s illness and your families troubles. I just did a quick search-not sure if you have looked up any info-but here is something I found: If this is correct, maybe things will be back together sooner than later. When your dad is feeling up to it-maybe he can relieve your fears.
Post # 6
@bakerella: He got it one moment to the next! And it was very severe, he was completely prone in bed for one week. He is restless guy (workaholic) and HATES being in bed, so he keeps trying to walk sooner than he should, etc, but my mom says it’s horrible.
At one point he was one at least 5/6 different medications, and so that cocktail made for horrendous side effects. He’s done with a lot of the intense regimens, so hopefully things will subside, but yeah – he’s got it bad. He can’t walk hardly at all, even rolling over is a challenge. :/
He’s afraid of a partial recovery – some people do experience symptoms for long after the initial illness – he’s afraid they’ll consider him “compromised.” :/ :/
Post # 7
Oh, I cried all weekend. It’s been hard to hear him ill, and then to hear my mom (who was starting to come around and be more cheerful) frightened to death and now sadder. I’m thousands of miles away and can’t do anything.
I kept finding myself wandering into dark corners of the house, just wanting to close my eyes and stay there and hide.
Post # 8
My Mom suffered from this disease. She had it in addition to many other ailments and had to take time off from school, she was getting her undergrad. It did eventually go away after lots of rest and rehab – I don’t think she had to take any medicine.
Post # 9
I’m so sorry to hear that, I wish your father a speedy recovery.
My dad has Meniere’s disease (similar to Labrynthitis but incurable). He has it well under control with medication, but the hearing loss is starting and he occasionally has issues after flying.
From the little I’ve read on labrynthitis it looks to be curable and that it goes away fairly rapidly.
I wish your father a full recovery and hope he’s back to doing what he loves in no time.
Post # 10
@coconutmellie: “He’s afraid of a partial recovery – some people do experience symptoms for long after the initial illness – he’s afraid they’ll consider him “compromised.””
I’m sorry you and your family are going through this. But you can’t get yourselves even more upset and stressed worrying about “partial recoveries” until something happens that indicates he’s heading that direction. Until then, be glad that his doctors think he’ll recover and that nothing at this point indicates he’ll have lingering effects (from what you’ve indicated).
I know what it feel slike to hurt for a family member who is ill. My dad had some severe back problems this summer that kept him bed-ridden for almost a month and required surgery. It’s never fun to see your loved ones suffer but it only makes it worse to focus on the worst-case when nothing indicates that is the direction your dad is going.
Hope he’s feeling better soon!
Post # 11
Unfortunately, I have had it on and off for 20 years. My initial illness compromised my ability to work as a flight attendant so I was on medical leave for 4 months (I’m now a lawyer). During that time, I saw several specialists and did a lot of reading. Obviously, with the internet, information is much more readily available on this illness. However, I do remember a therapy treatment wherein the patient is repeatedly subjected to those actions that trigger the symptoms to reset the brain or something. The therapy also had the patient sleeping upright for several nights. I cannot remember all the details but it sounded a bit extreme but apparently it was successful for some people.
I managed to get back to full working capacity after 4 the months on medical leave and medication (which made me want to sleep all day). Although I do get “flare-ups” every now and again, it has never been as severe as my initial illness.
Best of luck to your father.
Post # 12
I have minears disease which sounds very similar, i get mine episodicly. and when i have it its scary, due to the severe vertigo. Mine is handled with diet of NO SALT and lots of water to flush out the ear.
Post # 13
Just wanted to add my dad has had Meniere’s for about 10-15 years now. He had one major vertigo event when it was first detected, but aside from that he has been able to function fully.
He has some hearing loss and tinnitus, but the vertigo/dizziness has not reappeared.
Post # 14
I also have some hearing loss, but unfortunatley mine keep reappearing from time to time, i’m soo afraid when i get them out in public. But i’m getting better with detecting a flare and start drinking lots of water, resting/relaxing. That helps a lot.