Post # 1
Well, as some of you know, I’ve been suffering from some symptoms that are hindering my studies. And lo and behold, they flared up again. And this time my entire right arm became numb and froze up. Couldn’t write for a few hours. Really bugged me. Phoned mum up in tears, feeling useless and like a moron, and told her this could not continue. So she told me to send a list of my symptoms to a friend of hers, who is a neurologist.
Will be getting ANOTHER set of bloods done, this time to test for things such as SLE, vitamin D malabsorption (and figuring out why that’s happening), and other stuff. So shall wait and see.
Post # 3
Yikes that sounds scary.
Good luck and I hope you find some answers.
Post # 4
@MapleMoose: I’m not scared, I just want answers to be honest. And effective ways of managing this. SLE is easily manageable apparently
Post # 5
I’m sorry you’re experiencing this! It sounds really frustrating, especially when you’re trying to study or be productive! I hope your neurologist gets to the bottom of this soon.
Post # 6
@OrchidsandCandles: I’m glad you’re getting it looked into! I’m super impressed by how cool you are about it. I have health-based anxiety, and I wish I could look at things as rationally as you are. I hope it’s just a pinched nerve!
Post # 7
Sorry to hear about the flare! Have you had the MRI yet, or are you still waiting?
Post # 8
ouh my left arm also numbs all the time,but not that bad..,,mine is to do with the carpal tunne l syndrome,,due to my thyroid gland not working,,,so i hope u find your reason!!check it asappp..good luck
Post # 9
Nope, no MRIs, they’ll be doing an Antinuclear Antibody Panel blood test to see if there are specific antibodies they can pick out for SLE. Once they have exhausted the possible relevant blood tests, then I think they might move onto possible structural issues.
There is no point (I find) in getting het up about this for the most part. I had a break down the other day because I felt so utterly useless and pathetic with just one arm working (and not even my dominant arm!). But otherwise I don’t dwell on it. It’d be nice to get answers and see what is exactly going on.
Post # 10
Sorry you are experiencing this, it sounds truly horrible and scary! I read your other thread and see your B12 levels are normal. Do you know the actual number your B12 came out at? Just a suggestion but some people need to maintain a higher level of B12 than the NHS recommends to function correctly. As an example: The lab that tests my B12 sets the lower limit of around 190 but I was experiencing many neurological symptoms at 239.
Obviously if your level is a lot higher then disregard this suggestion!
I really hope you find an answer soon.
Post # 11
@moominmaiden: Nope, never got an actual number but the ones my parents ordered, they had a look and they were perfectly normal. So nothing intriguing or surprising there.
I’m hoping I find something out soon. My hands started numbing in my exam today, I started to panic, but luckily they didn’t freeze up for some reason
Post # 12
Oh man! That really sucks! I hope you get your answer soon. I am the same way… I fret more over getting the RIGHT answer. I need to know what the problem is correctly first. Then I can start fretting about the other stuff.
Post # 13
Wow, glad you are getting this looked into!
Post # 14
I stumbled upon your original post and wanted to give my 2 cents. I’m an RN for whatever that’s worth, but most of my advice is actually from personal experiences.
Visual changes, intermittent numbness and headaches – has anyone suggested migraines??? They are very odd symptomatically sometimes and may get worse with stress. I know it sounds very silly to think that your symptoms could be migranous, but it’s worse discussing with your doctor. I occasionally get numbness in my hands with migraines.
Also – I have a herniated disc in my neck and had really bad right sided radiculopathy with numbness, so an MRI wouldn’t be a bad idea either.
Post # 15
What is the prevalence of Lyme Disease in the UK? For unexplained symptoms my mind automatically goes there, because I had it, but got really lucky and caught it early. Have you/anyone looked into or enquired about it yet?
Post # 16
@call.me.red: Migraines have been ruled out by the neurologist and my parents. As has anything structural (if it were structural, it would be constant as opposed to intermittent).
@qwerty2k1: Fairly prevalent, but again, they’ve done tests for that and it has all come up clean.