Not wedding related– has anyone been tested for the BRCA gene?

posted 6 years ago in Wellness
Post # 17
Member
1344 posts
Bumble bee
  • Wedding: October 2013 - Vine Street Church

@Jennybenny16:  Actually, I’m already 28, so that ship has kinda sailed. I’m also not AS concerned because it’s been all breast with absolutely no history of ovarian. I did get the call just now that my insurance approved the testing, so I’m gonna go tomorrow or early next week, yaaaay.

Post # 18
Member
441 posts
Helper bee

@Jennybenny16:  Will you be more anxious than you are now not knowing?  I’m still not 100% ruling out having another child at 40. My docs would have a fit but by knowing the risk I’d be followed so closely that I’d have a much better outcome than if I was just hoping I didn’t have the gene. 

To be honest, I’d spent the first 35 years of my life believing (hoping) I didn’t have the gene. I freaked more before the results came back. Once they did and it was positive it was almost a relief because then I had a team of people to help be vigilant. 

And don’t forget that many women without the gene develop cancer so you need to be vigilant to stay around for those future children no matter when you choose to have them. 

Post # 19
Member
9546 posts
Buzzing Beekeeper
  • Wedding: August 2013

Please, please, please, go talk to a genetic counselor. Ask your gynecologist to refer you. Or you can find one yourself by putting your zip code into the search at nsgc.org. Talking through options is what we’re trained to do. You probably aren’t the best person to be tested. You always want to start with someone who actually had cancer. Your genetic counselor will go over everything in detail. I’m a genetic counselor, though I haven’t worked with cancer families in a couple years, so feel free to PM me if you have questions.

Post # 20
Member
1370 posts
Bumble bee
  • Wedding: July 2011

@Jennybenny16:  Aflac.com has the most information.

It’s basically a supplemental insurance plan that has cancer specific benefits. DH’s mom had it when she had breast cancer – it pays for her medication, a percentage of her salary when she was out of work, and all costs that her insurance did not cover.

It can really be the difference between being “okay” financially after a diagnosis and potentially bankrupt. I would suggest you look into it. If you get the policy when you’re young it’s cheaper and you lock in the rate. Rates will not go up if you file a claim, etc.

 

Post # 21
Member
317 posts
Helper bee

@Jennybenny16:  yes, I’ve been tested due to a strong family risk and I recommend it. It was just a simple blood test. I did it as part of a genetic study so I didn’t have to pay for it (they actually paid me a small fee). I tested negative but I consider my result inconclusive because neither of my deceased family members were tested. Even so, I don’t regret it.

If you test positive, your doctor may recommend that you freeze your eggs so you can still have kids via surrogate if you do end up getting cancer early and needing a hysterectomy. If carrying a child yourself is of particular importance to you, you might want to consider having kids earlier. 

@misskoala:  thanks for mentioning this Aflac plan. I had no idea something like that existed.

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