(Closed) Oh no…my biggest fear might be coming true.

posted 8 years ago in Wellness
Post # 3
Member
5263 posts
Bee Keeper
  • Wedding: June 2012

So sorry to hear this. 🙁 I really hope that it isn’t endometriosis, or if it is you have the ability to conceive and manage it. You’ll be in my thoughts!

Post # 4
Member
4465 posts
Honey bee
  • Wedding: June 2010

EJS should chime in here for sure.

But just a note that even if you can’t physically have children, it’s not the end of the world in terms of a family.  Adoption is such a great option. 

My mom had endometriosis and a hysterectomy in her mid-30s.  Luckily she had two children by then, but always wanted more.  For my Dad, adoption was absolutely NOT an option.  With Fiance, one of our first discussions about family was that he MUST be okay with adoption in order for us to be together.  I have no idea if I can have children and it’s very important to me that my husband will love and cherish a child that he didn’t create and may very well look nothing like him.

Anyway, that was kind of a tangent, but just my two cents.  I wish you good luck with your tests and such of course.  I will say a little prayer for you that everything works out.

Post # 6
Member
4465 posts
Honey bee
  • Wedding: June 2010

@MrsCox: I didn’t mean to sound preachy.  I guess because of my mom’s problems I’ve prepared myself well in advance for this possiblity, knowing that my mom did not prepare.

I will tell you that my mom was diagnosed at age 24 (I think)  They told her she probably wouldn’t be able to have children.  She went on to have me, which they said was a “miracle” and she had no chance for more.  THEN she went on to have my sister :o)

Post # 7
Member
400 posts
Helper bee
  • Wedding: April 2010

I will keep upi in my prayers.

Post # 9
Member
984 posts
Busy bee
  • Wedding: April 2010

First off ((hugs)) to you, you are in my thoughts and prayers.

I know somewhat what you are going through. I have been having gynecological problems for the past year and a half and as soon as Fiance and I are married (and I have insurance) I am going to the doctor to get testing done. I am so scared that we will find out I am infertile. It is a really scary process.

Just know that your Fiance is going to support you no matter what and that is wonderful. You have a great support system and you will get through this no matter what happens.

I hope for the best for you and I will be praying for you.

Post # 10
Member
576 posts
Busy bee
  • Wedding: December 2009

I am so sorry you’re going through this.

I have endometriosis, so I know a lot about it, and I just want to say the endometriosis does not automatically equal infertility. There is a higher risk of reproductive challenges that come with endometriosis, but still, that number is only about 30-40%. Also, within that group of 30-40%, a very high percentage of those people are successful using fertility treatments. I know that isn’t ideal, but I’m just saying that even if you do have endometriosis, that doesn’t mean that you won’t be able to have a child.

I had surgery last year to remove all the areas of endometriosis, and my symptoms have dramatically improved since then. The surgery itself wasn’t too painful, and I haven’t had any problems since. It can come back, but there are cases where it doesn’t, too.

I am also 24, and my doctor was not at all worried about the infertility issue, and so I won’t be trying to have children until I’m good and ready. I just want you to know that even if your diagnosis is endometriosis, it isn’t the end all be all of having children. There is hope, and it can be treated.

Post # 11
Member
289 posts
Helper bee
  • Wedding: September 2009

Thank you so much for sharing. I’ve been having similar fears recently because of similar symptoms and also a family history. My husband and I are planning to start trying to conceive later this year and I am scared. I have an appointment with my obgyn at the end of March and I plan to discuss with her…To add even more stress (and probably more information than I should share) my husband has what is called a varicolcele which is the highest cause of infertility in men.  So if my fear is right about endometriosis plus this news today, our chances aren’t looking so hot.  We weren’t planning to start trying until later in the year but now I’m thinking we should start sooner rather than later. Okay, thanks for letting me share…feels good to get that off my chest.

Post # 12
Member
4465 posts
Honey bee
  • Wedding: June 2010

It was a few years.  She had me at 25 and my sister at 27. 

I think it’s just important to have a partner that’s okay with adoption.  I was really surprised to hear that my dad was not, because he’s a really easygoing and super-loving person.  That’s why that’s so important to me.

But I would just take it one step at a time.  It could be something totally else.  You could have plenty of time to have kids.  You could just have really super heavy ridiculous periods that could be fixed by another method.  I will definitely keep my fingers crossed for you.

Post # 13
Member
1523 posts
Bumble bee
  • Wedding: September 2010

Just wanted to offer some support! I know that you are going through a tough time. Once you know more talk to your doctor more about your options regarding fertility and children.

I also think that there are other ways besides pregnancy to grow your family. I know you probably didn’t mean it the way that it sounded but people who adopt do consider their children to be “their own”. My siblings are adopted and I am my parents biological child. We were never treated differently. Some children grown under your heart, others grow in it, but the end result is the same, you become a parent.

Post # 14
Member
944 posts
Busy bee
  • Wedding: June 2009

Oh wow. I will definitely say a prayer!  Reading your post made me tear up and I wish you the best of news that things are okay.  Please keep us posted.

Post # 16
Member
14186 posts
Honey Beekeeper
  • Wedding: June 2009

Okay somebody actually PM’d me this so I’d respond!

Here’s the deal from what I’ve learned over the years. I’ve seen a reproductive specialist at an infertility clinic after my OBGYN realized i’d ‘outgrown’ her abilities. I’ve had endo since i was 19. My mom had her uterus taken out in her 40’s it was so bad. She had trouble getting pregnant with me and my brother, too. It’s hereditary for the most part and more common than you think. I used to have horrendous periods–vicodin for the pain, vomiting, complete incapacitation. Oh a box and a half of super plus tampons for 7 days, that was always nice. Severe constipation followed by diahhrea, too (isn’t it weird that’s a symptom?). Anyways, been there done that. My doc said it’s likely b/c i had polyps or endo growing and spazzing out on my colon parts. Fun times.

The “test” for endo is a laparoscopy. I had my first one at 21. that took me 8 weeks to recover b/c i was under for 6 hours while they “cleaned me up”. My last one, i was ok after day 4 b/c they didn’t do any body scraping. Anyways, they told me it was so bad I needed to have kids immediately. By 22. Or else. I was a junior in college. Darling Husband was in Iraq so it didn’t really work out. I had to freeze my reproductive cycle, they said.

They put me on lupron depo shots. Once a month every month. My insurance covered them all–at $900 a pop, I’m glad they did =]. It’s like really intense birth control. Even birth control couldn’t stop my periods. They kept coming with fierceness! Nothing could stop the river or the pain. But lupron did! It put me in menopsuase for 6 months. It “reset” my biological clock. Yes i went through menopause with the hot flashes and all that crap. It was pretty craptastic. I’d wake up naked sometimes–i just got too hot in my sleep and stripped! Kinda funny now. Oh gosh, my poor roommate, LOL. Anyways, I had bad mood swings and felt so strange from months 4-6. PMSy all the time. But i had zero periods, also, minus some mild spotting.

Anyways, after 6 months I went through a few more bcs and i settled on seasonique. I was on only progestrin, then only estrogen pills, but this seemed to work the best for me. I’ve been on it for about 2 years now and I can finally keep taking pills to stop my period. Back to back. Periods=scar tissue, so I don’t want to bleed until I am ready to TTC. It’s realy important I don’t develop more scar tissue. I went from having a period every 2 months to every 3 months and now I think I’m on month 5, minus a little bit of spotting. It’s not that bad.

But seriously. If you let endometriosis progress, it CAN turn into infertility. But now you KNOW you have it. Versus being 33 and being like “Hmm something is up”. It has to completely wreck everything in your body though to render you infertile nowadays. Go see a reproductive endocrinologist. A specialist. Seriously. Have the vaginal ultrasound. They stick a big dildo-ey looking probe up you and see what things look like. Your body may be out of place like mine was–i had an ovary stuck to the left side of my body, way out in left field. They were able to put it back in its right place later. Also, that will tell you what your egg follicles look like. I have a low count. 3 on one side and 8 on the other. It’s good to know this!!!! Then the laproscopy will tell you how much scar tissue you have and what your innerds look like. They can remove a lot of it surgically. Also, endo can make your inner parts “sticky”. For me, my lower intestine had endo all over it and it made it stick to my bladder walls of my body. Gross, right? They just took it apart, put in some spongy mesh stuff, scraped off the tissue, and all was well. I went back for another “check up” laproscopy in December to take a look at my tubes. It completely disappered. wtf right? Well, my specialist thinks it’s a combination of diet: (very low sugars, low carbs–also known as an ‘antiinflammatory diet’ because endo IS an inflammatory disease. i actually saw a medical nutritionist for a special no-endo diet) and all the birth control over the past years. I’ve been on ibuprofen for a long time, too, to keep the inflammation down. I get checked for gastritis symptoms, too. But that and the lupron really is when things turned out.

Also…even if you can’t get pregnant naturally, seeing a fertility specialist IN a fertility clinic helped me realize it wasn’t the end of the world. There are SOOOOOO many techniques to help you get pregnant. I got a packet like 2 inches thick to read. It is RIDICULOUS whta they can do. There is mini-IVF, there is IVF, there is clomid, i mean all kinds of stuff. Epsecially women with endometriosis! He said often the #1 problem we have is our fallopian tubes are scarred to hell. He says that even then, the eggs are good! So they just give you clomid, make you produce all these eggs, then syringe them out, fertilize them with the hubs’ man goo, then implant them on your uterus themselves. It’s not that women with endometriosis have trouble staying pregnant–they have trouble with the whole “egg travels to the uterus and implants itself” part. 

PM me if you have any questions. I have researched the hell out of this topic, but this is really only my experience with it. My first doc said i was a “trainwreck” so I’m guessing it was pretty bad. I went to the Sher Clinic  Now there isn’t one in Maryland but there may be another speciality clinic nearby. Infertility Clinics seem to be on the downlow from what I gather. If not, this place is definitely worth looking into and traveling to. They are crazy with all the stuff they have available! They do a lot of egg freezing for cancer patients too.

Educate yourself more–I’m far far far less scared now, at 24, having met all these people and dealt with it so extensively than I was when I found out at 19 that i had this disease. It scared the crap out of me to be like “ok we need to start TTC at 24 cuz i could be infertile”. There are just plenty of options and opportunities available nowadays to assist you.

Again, PM me if you have any questions about what I went through. It wasnt fun, but I wasn’t about to pop out a kid in college, either.

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