(Closed) PCOS Ladies/Thyroid Issues (Long, sorry)

posted 5 years ago in TTC
  • poll: Should I consult a doctor about thyroid testing?
    Yes, as soon as you can. : (10 votes)
    100 %
    Yes, but wait and chart a few more months. August sounds good. : (0 votes)
    I'd wait until you show more symptoms or have at least 8+ charts : (0 votes)
    No. You're probably fine. Don't be a weirdo. : (0 votes)
  • Post # 3
    Member
    440 posts
    Helper bee
    • Wedding: November 2012

    @Mrs.LemonDrop:  I have both an underactive thyroid and PCOS. When I was about 17 I was suffering from massively irregular periods and I was poorly alot, put on weight easily and had daily headaches. I was barely eating and I just felt like I had a low ebb generally. I remember how tired I used to feel- you know when you go to bed after a long day and your so tired and heavy? I’d wake up feeling like that it was horrible.

    It took about 4 visits to the doctor to convince them that I wasn’t just a lazy overweight teenager, but finally they agreed to do some blood tests and an u/s scan. All was confirmed and I’ve been on thyroxine ever since. I’m not sayin it’s changed my life but certainly everything is more manageable. My BMI is 24/25 and I go to the gym 3 times a week. I still eat a lot less than others get away with but I still eat what I want at the weekends and give in to temptations. I haven’t let it rule my life.

    I can’t comment on the insurance factor since I’m in the UK, but honestly if you have any shadow of a doubt that you think something might be up, get it checked, and don’t give up until you get confirmation on way or another. Having an underative thyroid is no fun, in fact it exhusting and nobody needs to suffer with it since the treatment is so uncomplicated and inexpensive.

    GL!

    Post # 4
    Member
    283 posts
    Helper bee
    • Wedding: February 2013

    I see a doctor for mental health and she checked my thyroid level. Then 7 months after that I saw my primary care doctor and that’s just part of the routine blood tests he runs. Insurance covered it both times. My levels changed between both times and the second time was a better number. If I don’t conceive in 6 months I’m going to ask to have my levels checked again to make sure  my TSH isn’t over 2.5. 

     

    Long story short, get it checked out. 

    Post # 5
    Member
    2719 posts
    Sugar bee
    • Wedding: August 2010

    At least get your blood work done to see where your levels are. If you’re concerned that something’s there, talk to your doctor about having a scan done to see if they see a nodule. Don’t be afraid to keep pushing for scans even if your blood work is normal.

    I have PCOS, and had thyroid cancer. I was told that there is no relation between the two diseases, but you never really know. I had my cancer found as a fluke, basically. I thought I had allergies, my primary care dr felt a small lump in my thyroid. I had blood work done, it came back normal. I had an ultrasound done, it showed a small nodule. They watched it. I eventually had a scan done to see if it was causing any issues, it showed that it was just there. Blood work was always normal, but they kept checking. They did a biopsy a year later at the follow up, and it was cancerous, so it was removed.

    Definitely keep following up with it. Not every situation is like mine, but I always tell people to be on the safe side and get it checked out, and don’t stop!

    Post # 6
    Member
    1564 posts
    Bumble bee
    • Wedding: August 2012

    I have hyperthyroidism so I can’t comment much but the good thing is that it is relatively easy to diagnose a thyroid issue. I would start there and get some blood work done to see where your levels are. From what you are saying, it does sound as if it could be thyroid related. Some other symptoms besides irregular cycles/weight gain include intolerance to cold, fatigue, dry skin/hair, depression, etc.

    As for insurance, definitely frame it as a wellness issue but state that your irregular cycles are a symptom. Your GP can do the blood work for you and check your levels. From there, you would be referred to an endocrinologist for treatment if it is your thyroid. It is better insurance wise to get this referral than to go straight to the endocrinologist (most insurance won’t cover your visit if you aren’t referred). The blood work is definitely covered (I have never paid for mine and I am like a human pincushion!).

    Post # 7
    Member
    1293 posts
    Bumble bee
    • Wedding: December 2018

    @Mrs.LemonDrop: I had a lump in my throat that I found on my own. It was weird. My hand seemed to naturally go there, and I found it. I went to the doctor and have had a battery of tests from there.

    Post # 8
    Member
    2202 posts
    Buzzing bee
    • Wedding: October 2012

    @Mrs.LemonDrop:   hello lovely! I wanted to share with you my story last night but i was too tried to type it all out.

     Firstly i think you have some very valid concerns, many of the things you’re describing is typical of a hypothyroid issue. I would go to your doctor explain your concerns and if they are worth their weight in salt they will give you a blood test and do some further testing. Hypothyroid / any thyroid issues can have sever implications on fertility as your thyroid controls most of your hormones that your body realeases which is why your cycles may be looking not right to you.

    I’ll give you a quick run down of my issues that way it has some context to your thread. When i was 12 i was diagnosed with graves disease which is a hyperthyroid issues (opposite of what your experiencing) I battled on and off with different drug levels blood tests weekly, until i got to a point just past puberty which everything seemed to settle for a year. I was warned that i may not be able to have children due to the age i was diagnosed is WAY too young for what they normally see and they weren’t sure how that would affect me when i was developing through puberty. Fast forward to 2007 i was starting to have really bad chest pains and my heart was under a lot of distress, i was put on more medication, more medication for my heart…. by 2009 i wasn’t able to go for a walk around my neighbourhood. My doctor was afraid i would have a heart attack my heart was under that much stress. I ended up having a Total Thryoidectomy in 2009 which i think saved my life. I am now 4 years post OP and i feel amazing. I did have complications from the surgery but nothing that would ever make me change my mind about what i did.

    You PM with a question about my fertility stuff. Well my doctor and naturopath both gave me the thumbs up to start trying for a family, both think that even though i was diagnosed so young that i should be able to conceive. So i started charting in October after the wedding. I noticed my cycles were REALLY choppy. The after our first month of actice TTC i noticed (mostly because i spent so much time on FF stalking other bee’s charts) that my LP was too short. So i went to the naturopath and she agreed. I now take evening primrose oil & B6 this is how that looks: CD 1-ovulation x1 morning & night evening primrose X1 a day B6. Ovulation – BFP / AF x2 evening primrose x2 morning / night B6 x1 a day.

    Long winded story short, you cannot have a healthy baby without a healthy mom. I think its certainly worth going to check it out. Xox Let me know if you have any questions for me.

    Post # 9
    Hostess
    8146 posts
    Bumble Beekeeper
    • Wedding: October 2012

    I was VERY cold, and VERY hot. just overall sensitive to changes. I had horribly irregular periods, and I have IBS and other stomach issues. I have dry skin drittle nails among other symptoms… I went to my family Dr and just chatted about it. He sent me for a full bloodwork up, including rheumatoid arthritis, lyme disease, lipids, TSH +T4, and thyroid antibodies and platlets and a neck/thyroid ultrasound. read here: http://boards.weddingbee.com/topic/hypothyroidism-diagnosis-help#axzz2QAcBAOfZ

    Everything came back “normal”.. so i’ve been treating symptoms… I hope that you get the answers that you are looking for. It doesnt hurt to go check! the ultrasound cost me $200 after insurance and the blood tests cost about $100 or so, plus $30 co-pay.

    Post # 10
    Member
    4574 posts
    Honey bee
    • Wedding: April 2012

    @Mrs.LemonDrop:  I dont have either, but I had been checked for it by my regular doctor when I told her in 2011 and in 2012 that Darling Husband and I were going TTC.  I think, in my opinion at least where I live, your insurance should not give you any problems and neither should your doctor, especially if you tell her exactly you told us.  Also, just to make sure I would call your insurance and ask them if they cover those kind of tests. 

    My niece thought she had thyroid problems too because she gains weight quick and losing it is a huge chalenge and thankfully her thyroid was okay.  After her thyroid checked out she went to see a nutritionist and actually helped her.  I hope nothing is wrong with your thyroid.  Sometimes “us girls” listen so much of what we should be like or what kind of diet we should do that we forget we are not all build the same.  What may work for you, may not work for me, ya know.  FX, sweet bee and I really do wish you the best ;))))))))))

    Post # 12
    Member
    4150 posts
    Honey bee
    • Wedding: November 1999

    @Mrs.LemonDrop:  Your insurance should absolutely cover thyroid testing, since it’s not a wellness thing, it’s a legitimate medical issue.  Usually, it’s part of a typical bloodwork panel done if you go for a pre-conception meeting with your gyn.  If you are diagnosed, it’s not a big deal to test for it or to treat it if you need to, so don’t worry too much (I take 1 pill each day that has no side effects that I know of or have experienced).  I’d definitely get it checked out.  Good luck!

    ETA: Just saw your update – sounds like a good plan! 

     

    Post # 13
    Member
    502 posts
    Busy bee
    • Wedding: October 2013

    @MrsHoneyC:  Hello, thanks for sharing your story and sorry to hijack the thread, but I was wondering if you could explain the chest pain/thyroid connection? I have hashimotos and have never been able to get levels under control and my medication has increased multiple times. Lately though I have been having chest pain and a choking feeling in the thyroid area. Must check it out but hoping you can expand on this.

    Post # 14
    Member
    2902 posts
    Sugar bee
    • Wedding: March 2014

    I really struggle to lose weight and keep it off. I’m 5’9 and weigh 150lbs but to stay this weight I eat 1200 calories and work out 4 or 5 times per week. The second I let that slip I put on weight at a rapid pace. 1 month to put on 10 lbs, 6 months to lose it.  It really really sucks. I always suspected something was wrong, I knew I wasn’t sneaking an extra 1000 calories per day but doctors thought I was lying so didn’t want to test. After all I look fine. 

     

     

     

    They finally tested me when I said I was about to TTC. They did a full panel of bloodwork.

     

     

     

    The results came back showing I have a very sluggish thyroid so went for further tests yesterday, I’m not sure if there is medication to fix this sort of thing but at least I have a reason as to what is causing the problem.

     

     

     

    Have the girls who have been diagnosed and started taking medication found it easier to lose weight and keep it off?

     

     

     

    Post # 15
    Member
    2202 posts
    Buzzing bee
    • Wedding: October 2012

    @Vikstar:  the choking feeling your experiencing in your throat is typical of a thryroid issue generally because your thyroid is swollen, your doctor might be able to give you some advice as things to help it I think… There is some natural ways to help reduce the Inflimation as well as maybe a medicstion your dr. Can prescribe. 

    for me the chest pain was caused by my heart. I was on beta blockers for 2 years prior to my surgery to help my heart out snd give it a break. I would like to add that chest pain is no laughing matter, it’s serious. If your experiencing intermittent chest pain I would seek help for that via a doctor. They will probably get you to do a stress haulter hesrt monitor test which will tell you how your hearts Doing. That’s the first thing that happened to me. Xoxo please let me know if I can help in any way further 

    Post # 16
    Member
    3314 posts
    Sugar bee
    • Wedding: October 2010

    @FauxBoho:   I have both PCOS and Hashimotos (mostly hypothyroid autoimmune issue).  I’ve now got both under control with meds and diet and have lost 105 pounds over the past 1.5 years.  I’ve found that I have little plateaus at times and that in those plateaus I’ll bounce back and forth between my lowest weight and 5 pounds heavier, but I’ve been able to maintain +/- 5 pounds or continue losing with little issues.  

    The topic ‘PCOS Ladies/Thyroid Issues (Long, sorry)’ is closed to new replies.

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