Post # 1
So I’m a year away from my wedding and 26 years old. I know we want to have a family eventually. I have been diagnosed with PCOS recently- no ovarian cysts, but hormones suggest the syndrom.
I want to prepare as much as possible in the next year or two so that when we do start trying I can give it as best a shot as possible.
Also my doctor is not totally knowledgeable on PCOS…
So any suggestions from others out there what to start doing, planning, watching for, and learning? Any tests to suggest fertility/infertility beyond the basic bloodwork I’ve had done for hormones?
Post # 3
@FoolsintheRain: If this is your first diagnosis, it may be wrong. Especially if you don’t have any cysts. Just having a hormone deficiency does not automatically equal PCOS. For a PCOS diagnosis, you should have 1) Elevated levels of estrogen, testosterone, or both 2) unwanted facial hair, acne trouble, weight gain, or all three 3) cysts on your ovaries.
The FIRST thing you need to do is see another doctor who IS knowledgable about PCOS to make sure this is the correct diagnosis.
Post # 4
@FoolsintheRain: If your insurance will cover it, I’d suggest finding a reproductive endocrinologist – they’re the experts in treating PCOS. There’s a bunch of stuff they might do, including starting you on Metformin and suggesting a low-carb diet, but you should definitely visit an endocrinologist before starting anything!
Also, check out soulcysters.com – an online community for ladies with PCOS.
Post # 5
@FoolsintheRain: I was diagnosed at 22 (6 years ago). I’m not sure they’ll do much in the way of testing for fertility right away, especially if you’re using hormonal birth control to prevent pregnancy – since it would mess up any test, since making you infertile is you know… kinda the point.
I would say just try to live as healthy as possible, and if you happen to be overweight (not saying you are, but insulin resistance/weight gain tend to be a symptom of PCOS) maybe try to focus on getting to a healthy weight range, since a lot of people find that helps the symptoms. Depending on your case, you may also want to look in to metformin, which is supposed to help with insulin resistance.
If you’re not currently using a hormonal birth control method, you could try tracking your periods or charting/temping just to learn more about your own cycles, and know better when you ovulate etc. for when you start TTC.
Post # 6
Ask you doc to be referred to an Reproductive Endocrinologist. Specifically because you are in TO, I would ask to be referred to one who specializes in PCOS. IT makes a world of difference in treatment and symptoms!
PM me if you have any questions!
Post # 7
I definitely would 2nd talking to an endocrinologist. That was the person who determined for sure that I had PCOS and she’s been the one to help get my hormones back in order, get my cycles happening naturally again (they stopped completely for 17 months after I went off of BC), lower my bad cholesterone, raise my good cholesterone, lose 68 pounds, and just over all increase my quality of life.
I wish I’d found out about my PCOS before I got married and started ttc! I would have been so much further along in my ttc journey then I am now. I’m currently at the stage where I’m going to be 37 in a couple of months, my husband and I have been trying for over 2 years, and I’ve had 2 miscarriages. I’m seeing an RE (endocrinologist that specializes in reproduction) in less then a month and hoping we can get me my forever baby.
Have they tested your thyroid at all?
Oh and I’d definitely agree with a change in diet. Cutting out processed sugars and simple carbs as much as possible will help reduce insulin resistance if you have it, will help lose weight if you need to, and will overall help regulate your hormones as well.
Post # 8
I would suggest getting some blood work done and perhaps a thyroid ultrasound. My prolactin levels are 5x greater than normal so it’s causing infertility, weight gain, and a whole slew of things. It’s also affecting my thyroid. I will be seeing my endocrinologist in August to get the show on the road. Best of luck!
Post # 9
Hi. Just wanted to pop in. I’ve recently been diagnosed as well and am starting on Metformin. I’m lokingnforndiet tips to help out !
Post # 10
I was informally diagnosed with PCOS in December–my hormone levels suggested it, but weren’t necessarily definitive. I found a low-glycemic diet, such as the South Beach Diet, helps IMMENSELY. The books “Fertility, Cycles, and Nutrition,” and “The Fertility Diet” were very helpful, as was “Get the Sugar Out.” Good luck!
Post # 11
I was diagnosed one year ago and am currently taking Spirnolactone and Metformin. After about 6 months on the medication I saw tons of improvement and now my cycles are totally normal and happen every month like clockwork. My one year check-up showed that everything was exactly where it should be so they do not anticipate any problems with me trying to concieve! I HIGHLY recommend reading the book, Taking Charge of Your Fertility. It is SO informative and teaches you how to understand your body so you know EXACTLY when you’re fertile! My husband and I are using it to prevent pregnancy and we’ve had luck so far 🙂
P.S. The meds, especially the Metformin can and WILL make you sick if you are not careful. Do NOT take it on an empty stomach and make sure you take it after a full meal. After a week or so you get used to it and can take it with no problem. Also, if you take the sprinolactone, you will probably break out for a week, but then your skin will turn PERFECT! I have not had one zit after one week of being on the meds!!