Post # 1
As my wedding gets closer and the prospect of beginning to start TTC does too I have been focusing a lot on infertility blogs and information about PCOS. I am currently experiencing annuovulatory cycles and hoping against hope that it doesn’t take us too long once we start TTC.
I know that there are quite a few ladies on here with PCOS and who struggle with infertility. Whilst everyone with PCOS is different, there is a lot of information out there I would like to see visually how everyone has gone with TTC.
Hence the poll: Have you succeeded in TTC and what helped you to either conceive or restore ovulation? Multiple choices allowed.
ETA – just FYI I am in the care of my doctor for PCOS and have been working on losing weight and have been using Metformin on and off since 2009 – the side effects and I don’t get along 🙂
Post # 3
- Wedding: June 2011 - Sydney, Australia
I answered several choices, for what it’s worth. 🙂
I have severe PCOS, dozens of tiny cysts at all times. I don’t ovulate naturally. I’m on Metformin 2000mg (no side effects, ever) and it doesn’t help. Diet & exercise bought my cycle from 120+ days down to 60-70, but they are completely inconsistent.
I suffer from anovulatory cycles, so despite TTC for nearly 18 months, I haven’t had any luck coming close to a BFP.
I’ve taken 5 rounds of Clomid. 25mg & 50mg – no O. 100mg – O twice, both BFN. 100mg this past month – no O. It’s very hit or miss for me; my RE thinks I’m resistent to it.
We’ve had one failed IVF cycle & will be doing another one in the coming months.
Post # 4
Thanks Jag xox I have my fingers crossed for you and your next IVF cycle – I’m a notorius stalker of the TTC/infertility threads 🙂 Praying that you and J have some sucess soon.
Post # 5
- Wedding: June 2011 - Sydney, Australia
@Novella: Thanks hon! Don’t be a stranger when it’s time to TTC for you guys – anovulatory cycles are a special kind of evil, and we’re here if you need us! 🙂
Post # 6
Until I got my bfp in April, I had not had a period in 6 months.
I was on metformin but it wasn’t helping to get me regular. We weren’t ttc at all.
I thought it was unlikely because of the pros. surprise!
I was super sick and poas to rule out pg. when it came back pos was freaked as I had no idea how far along I was…. Could been 6 months…
I know I am one of the lucky ones, but wanted to share my story
Post # 7
I’m similar to Jag in my cylces, but I have fewer cysts and my blood work is borderline (insulin and DHEA both slightly out of range).
I have not ovulated naturally in the last 2 years since coming off birth control that I know of. I’m on Metformin 2000mg (no side effects) and it doesn’t help.
Diet & exercise have helped me surge on my own, but progesterone blood work 7 DPO showed that I didn’t quite ovulate.
We’ve been NTNT since April 2010 and TTC since Jan. 2011 and haven’t come close to a BFP.
I’ve done 3 rounds of Clomid, two 50 mgs and one 100 mg, ovulated all three times, but no pregnancy. I did four rounds of Femara and ovulated on it once.
I also ovulated twice during non-medicated cycles immediately following a medicated cycle, once after a Clomid cycle and once after a Femara cycle.
I have tried Vitex and did not see improvement from that at the time (tried it prior to TTC), but I would be willing to try it again because I experienced no negative side effects.
Currently we are on a break as I try to lose weight to give us the best chance of a successful cycle when we start treatment again. We are planning to do injectible drugs + IUI as that gives us a 15-20 percent chance of conceiving per cycle, according to my RE, compared to 10 percent for Clomid of Femara + IUI, especially since my response to both drugs has been spotty, at best.
Post # 8
I have controlled PCOS, meaning I have been treated since I was 13. Thus I have no cysts, but my bloodwork still shows PCOS even when treated with external hormones.
My RE wanted me to try natural for 4 months (starting June 2011). We did and I was annovulatory. I was put on 1700mg of Metformin in Sept 2011, still annovulatory. We took a break from Nov 2011 until now (due to finishing my PhD and career timing) and we are starting our first 50mg clomid cycle this month (I take out my nuvaring Wednesday).
Post # 9
I voted for Diet and Exercise, but I really needed a “have PCOS and currently pregnant” option.
I lost a lot of weight through diet, exercise, Synthroid (I had a VERY slow thyroid), etc. This pretty much “fixed” my PCOS. I started getting regular cycles- something I never had before, and got pregnant on pretty much my first try (after weight loss, I has tried for many months pre-weight loss). I had been on metaformin when I was younger, but it made me feel sick, so I went without it (against doctor’s recommendations). I also had a cyst removal surgery at age 19. I am now 27 and I feel so much better now than I did through my early 20s.
I sincerely wish you and everyone with this issue lots of luck and success. It is so difficult to go through this because a lot of people do not understand. I am always willing to talk with people, so PM me if you need a shoulder or just a friendly ear!
Post # 10
Thanks for all of your comments ladies.
One of the best things about these boards is the support you all give despite what you are going through. I’m looking forward to starting this journey this cycle.
Post # 11
I have PCOS and didn’t have a period for months and months but managed to regulate my cycle through acupuncture and drinking herbs. I’m now 19 weeks pregnant with a little girl!
There’s so much help out there for PCOS, wishing you all the luck in the world with your journey.
Post # 12
- Wedding: June 2011 - Sydney, Australia
Forgot to say that I used Vitex and it did NOTHING for me.
Post # 13
I was diagnosed with PCOS when I was 16. I didn’t ovulate on my own and my periods had to be induced with prometrium (progesterone supplement),. About a year before my wedding I lost weight and once I hit a certain point my cycles became regular (my period would start anywhere form 33-45 days apart) but 7DPO progesterone bloodwork showed that I was still not ovulating. A few months after that I started having signs of ovulation and O’ing on my own. I was able to get pregnant the first month that we tried (I was ovulating on my own even though it was happening late in my cycle…never before CD20) but I experienced an early MC due to low progesterone. As soon as I found out that I was pregnant I was put on a progesterone supplement (prometrium again) but my levels never rose enough to hold the pregnancy. We took a month off and the same thing happened the next trying cycle…I got pregnant, was put on prometrium and progesterone was too low so the pregnancy ended in a MC. We took 2 months off because we found out that I was slightly hypothyroid. I started on medication and we wanted to give it a chance to work. Our next trying cycle (after confirming with bloodwork that my thyroid was at a healthy level) I got pregnant again. I was put on a higher dose of prometrium. Even with that I started spotting at 6 weeks and started doing bi-weekly progesterone in oil injections. Once I started the injections my progesterone levels rose. I stayed on them until 14 weeks. I am now 22 weeks pregnant with a little boy! *Just a Note* I was not overweight while TTC and I still had sluggish ovulation and low progesterone. In my case weight loss helped kick start things but it never “solved” the problem as a whole. It just made the symptoms less severe.
Post # 14
I was diagnosed with PCOS unofficially a few years ago (the doctor looked at my symptoms and said “you probably have PCOS just stay on birth control and you will be fine). Then last summer I was given an official diagnosis after high prolactin levels and an ultrasound showed cysts in my ovaries. I did a high protein, low carb diet and lost 30 lbs over the course of 6 months. My prolactin stabilized and I got pregnant with out medication. I am now 20 weeks pregnant and showed no cysts at my last US. I have a family history of severe endocrine problems and thyroid issues so I pray that the pregnancy stays healthy and that I can lose the weight and regain my health again after baby. Definitely try diet changes before going to medication. Good luck!
Post # 15
I was diagnosed with PCOS last year after having gone a year with no cycles whatsoever. Since then I’ve lost 68 pounds and had regulated my hormones by October 2011. November saw me pregnant, December saw me miscarry. The good news: After that first mc, my cycles came back. Still irregular, but much of that was likely the mc creating wackiness. May saw me pregnant again but June saw me miscarry yet again. I’m currently headed to an RE and genetic testing to find out if there is a reason that I’m having recurrent miscarriages.
As for what helped: Metformin did wonders for me! It helped tremendously in losing the weight that I have and getting my hormones back in order. It’s also helped lower my insulin resistance and my bad cholesterol and has helped raise my good cholesterol! Diet also played a big part. Along with the Metformin, I drastically changed my diet, cutting out much of the processed sugars and simple carbs. Now for me, it would seem that I don’t have fertility issues…. I just need to find a way to STAY pregnant.
Post # 16
@dodgercpkl: I am so sorry for your losses! 🙁 I didn’t realized you’d miscarried again. I don’t know if you know, but PCOS can be a factor in miscarriages. Hopefully the doctor will figure things out for you. *hugs*