(Closed) PCOS — what are the next steps?

posted 4 years ago in TTC
Post # 2
Member
1396 posts
Bumble bee
  • Wedding: September 2011

 

anonbee88:  First make sure you get a Dr. diagnosis. You could have cyst and depending on weight and all that could have PCOS or Hythalemic Ammenhoria which i have. Dont freak out and just go to the doctor and see what they have to say first.

Post # 3
Member
1396 posts
Bumble bee
  • Wedding: September 2011

 

anonbee88:  Also just for the matter I was diagnosed with PCOS then HA its more HA then anything. I did not ovualte without medical help, I had to take several cycles of fertility drugs and nothing worked so now next week Darling Husband and I are doing IUI.

BUT this issue with us has been going on 3 years. And the other Dr. i had sucked! If you get a good doctor in the beginning it wont be as frustrating HOPEFULLY.

Post # 6
Member
1396 posts
Bumble bee
  • Wedding: September 2011

 

anonbee88:  Sounds like you do. I have the opposite symptoms which is HA BUT i also found out my body over produces follicles and sometimes they dont mature like they are supposed to!

Can you get an earlier appt?

Post # 8
Member
1112 posts
Bumble bee

anonbee88:  If you are able to lose weight easily, you probably do not have PCOS. That is one of the main indicators of PCOS (not able to lose weight and gain weight easily) but please do check with your doctor. It took 3 years for me to be diagnosed because the symptoms could be really anything and they have to rule all of it out. 

IF you do have PCOS, your doctor will probably refer you to an Endrocronologist to help manage it. They will probably put you on Metformin and do some nutritional counciling. You can’t eat like everyone else. Basically, you eat like a diabetic (no sugar/refined carbs). You need to keep your blood sugar even. 

Since you are TTC, you will probably be referred to a fertility specialist for the full work-up of you and your partner. They will help you decide what to do. You will probably be put on Clomid to force your body to ovulate. If you don’t get a period at all, you’ll be put on Provera every 3 months to force it. You may need to look into IVF or other fertility treatments. My doctor told me I’ll probably be a raging bitch with all of the hormones they will pump into me because my body doesn’t make it myself. So warning about that.

Basically – you’re about to be put through the ringer and its not an easy or fast process. 

Good luck! 

Post # 10
Member
1112 posts
Bumble bee

anonbee88:  Sure, not everyone with PCOS is obese! One of the markers of PCOS is not being able to lose weight due to your hormone imbalance. So if you are already skinny, eat well, and exercise (i.e. actively try to lose weight) you wont gain. You have to work really hard just to stay the same weight. Essentially if you arent trying to lose weight, you are gaining. 

If you tell your doctor you can easily lose weight, they will probably not test you for PCOS. That`s how big of a marker it is to be diagnosed.

Post # 11
Member
133 posts
Blushing bee
  • Wedding: June 2013

PCOS is usually an estrogen-dominant condition.  Have you looked into a paleo diet?  It is really good for helping to regulate hormones.  I dealt with estrogen dominance issues for years and it amazed me how much of a difference changing and cleaning up my diet made.  My cycles went from all over the map (anywhere from 25 to 60 days) to a clock-work 30-31 days, I lost about 20 lbs without changing anything else, and I hardly have any cramps anymore. 

It’s smart to prepare your body now!  I think it took me a good six months for everything to stabalize and even out.

Using Vitex also helped.  Apparently the tincture is supposed to be more effective than the pills.

The book PCOS Unlocked might also be helpful for you.  The author had quite bad PCOS and was able to address the underlying issues that caused it to heal her PCOS.  It’s quite an interesting read.  It might not be a “magic bullet”, but it might give you some ideas of things you can try for yourself to help improve your health and maybe make TTC easier!

Best of luck to you!

  • This reply was modified 4 years, 4 months ago by  Rheagan.
Post # 12
Member
289 posts
Helper bee

soontobemrsKB92615:  I just wanted to chime in and say that, while excellent advice, the weight thing isn’t true. I have pcos. I am also a size 8 (4 U.S.), don’t struggle with my weight and also lose weight fairly easily. I have no excessive hair, no problems with acne and don’t lose the hair on my head that easily.

In clinical terms, to get a pcos diagnosis you need to have 2 out of the 3 following factors:

irregular, long or anovulatory cycles

evident by ultrasound (Could be cysts, too many immature follicles and/or enlarged ovaries) and/or blood test (high amh or fsh)

other test irregularities (High testorone, insulin resistant) 

Its this final factor that influences weight. You can still have pcos without this final factor (just like you can have it and still ovulate regularly and have it and have no cysts)

anonbee88:  I said this on another post, but one of the positives of a pcos diagnosis is that you know what you’re working with. And theres a lot you can do: from making lifestyle changes (weight loss!) to tracking your cycles in the first instance to medications (clomid or Gonal f injections) all the way to iui or ivf if nothing else proves effective. Knowing the problem is half the way to finding a solution!

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