(Closed) Raising an exceptional child

posted 7 years ago in Family
Post # 3
Member
5977 posts
Bee Keeper

I’m sorry that it seems as if you can’t get any good news, but I really do think that you have the right attitude about this. My best friend works with autistic children every day, and she said the worst part about it is parents who are in denial and who think there is nothing wrong with their child. They then don’t get the right therapies to improve their situation and they fall farther behind…so just from listening to her stories and yours, you’re already one step ahead of the game in being a very supportive and willing parent. Annabelle is very lucky to have such an exceptional mom.

Post # 5
Member
8738 posts
Bumble Beekeeper
  • Wedding: September 2011

I have been thinking about you.

Good luck on your journey with Annabelle. It sounds like she is a wonderful child who just needs the right tools to understand and live in her environment.

I’m sorry the school system is fighting you and your family doesn’t recognize her differences.

Your approach to this sounds correct and the like the healthiest approach for Annabelle.

 

((Hugs))

Post # 6
Member
1398 posts
Bumble bee
  • Wedding: June 2012

I can imagine this is a somewhat difficult, yet relieving time for you.  I HIGHLY recommend reading “The Highly Sensitive Person.”  Just google it and you’ll find it.  It’s an amazing book.

And I can tell you that as a teacher, these are some of my absolute favorite kids.  They tend to just sense things. 

Good luck with your school.  Fight for what you think Annabelle needs!  I’d be happy to help you word things in a way that schools will respond!

Post # 8
Member
5655 posts
Bee Keeper
  • Wedding: April 2011

Awww…. I will definitely start praying for you on this one. I know that being a mom is hard enough at times & dealing with the stress of trying even moreso to help your child I’m sure can be really tough! I’m sure you’ll find the Dr.’s & Therapists that work best for her 😉 I’m sure your family is a great support system for her and really that’s all she needs right now… I learned a long time ago that having “friends” isn’t always what it seems, and I’m sure that in time she’ll have those special girls come into her life that are going to be GREAT to her and just “Get her” =) Praying favor in your searches and peace in your heart! =)

Post # 9
Member
2142 posts
Buzzing bee
  • Wedding: July 2011

Have you looked into getting her an IEP and GIEP if she’s in public school? (or is this the fight you are talking about? – I know schools hate spending money on either program, they tried to kick my entire class of gifted students out in high school becuase they didn’t want to pay for a GI)

My brother had a slightly similar problem (gifted/high IQ, learning disability, as well as behavior problems similar to Asperger’s, hearing problems, speech impediment). and while he “grew out of” some of his problems (speech and hearing) having the specialists at school keeping an eye on his development really helped him, as did finding areas he could focus on. My parents did have to keep on top of them sometimes because of school district problems but with a good set of doctors and then specialists at school he is becoming a excellent, functional, and contributing member of society (he is in school for civil engineering and loving it)

Post # 10
Member
354 posts
Helper bee

I work at a Naturopathic Clinic, and one of my Dr’s is a DAN (Defeat Autism now) Dr.  I have seen miracles in my clinic!  Here is a website that has a listing of DAN Dr’s.  I’m not sure if this is something you have already considered, but here you go:

http://www.healing-arts.org/children/amyholmes.htm#danlist

Best of luck on this new journey!

Post # 13
Member
7587 posts
Bumble Beekeeper
  • Wedding: December 2010

@SoontobeMrsA: I have a cousin who is now 22 and has a form of autism that sounds very similar to Annabelle’s. She has similar issues with verbal tics and must continue finishing her verbal thoughts. She also has the same types on sensitivty issues. She also does have some OCD tendencies. I share this with you, because my cousin did struggle to make friends growing up, but the older that she got the easier this became. She is now in college and has a great set of very “quirky” friends. She even recently has gotten her first boyfriend.  I remember people thinking that my Aunt was raising her incorrectly as well, which by the way she ran the psych dept at Duke university, so not an ineffective parent either. Hang in there! With an amazing mom like yourself, I’m sure she will prosper as well.

I would suggest seeking and pushing for other educational options.

Post # 14
Member
981 posts
Busy bee
  • Wedding: June 2012

I was a Special Education teacher for a few years, and this is my advice to parents – the squeaky wheel gets the oil! Educate yourself as much as possible about what she is entitled to and be pushy if you feel her needs aren’t being met. Document EVERYTHING, ask lots of questions, and be hopeful! I knew some awesome teenagers who were on the Autism spectrum and saw them grow and succeed. Good luck!

Post # 15
Member
2867 posts
Sugar bee
  • Wedding: September 2010

My husband is a high school teach and he’s said on several occasions that he’s only had good experiences with students on the spectrum. He says they’re usually good students, well behaved and he loves their honesty.

It’s a tough diagnosis for any parent to deal with but just wanted to offer you some positives, hopefully the therapy will help make the world less overwhelming for her. Prayers for both of you.

Post # 16
Member
9824 posts
Buzzing Beekeeper

I normally don’t share personal info about my child, but here goes anyway. My daughter is going through the battery of autism testing at the moment, her language has a lot of problems. Well, there’s other stuff too (only repeating words and questions instead of responding, excessive stacking and organization but no imaginative play), but that’s the main concern. I think your attitude is good. I’m going about it daily with the mentality that I’m not going to dwell on “Why is this happening to us” or “I wish she could have a normal life.” She can have a happy and normal life, but her normal might not be my normal. I know my daughter is special, but I’m also working hard to ensure that she feels she has a non isolated place in the world. I don’t want her to feel that different= struggle.

Good luck on this journey, I know how insane and exhausting it can be. By The Way, PM me if you want info about the Ladders program in Boston, they have been phenomenal.

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