(Closed) Raising an exceptional child

posted 9 years ago in Family
Post # 32
Member
5092 posts
Bee Keeper
  • Wedding: June 2011

@SoontobeMrsA:

Sending you and Annabelle huge internet hugs.  I hope Mr. A has been supporting you through all this.

Please ignore if this isn’t the right place/time – but have you gotten a diagnosis for yourself yet? I seem to remember you were going to the specialist in early May.  I’ve been thinking about you.

Post # 33
Member
2191 posts
Buzzing bee
  • Wedding: November 2011

@SoontobeMrsA: You are simply amazing and the very best mother for Annabelle.

Post # 34
Member
17 posts
Newbee

@MissHoneyBun:  “You never mentioned that. Was that in the diagnosis? I do question her learning difference, though. Of course I know like .02% of everything that’s happening, but you say she’s the most empathetic child you’ve ever met. Children with aspergers and similar disorders LACK empathy. Their lack of empathy and self-awareness is a defining characteristic. Now I don’t doubt what you’re saying about her–you’ve mentioned her plenty and she seems to be a sweet little girl, but I don’t think you’re done figuring her out quite yet.”

My sister has Asperger’s, and I agree with you on the lack of empathy.  She is a sweet young lady, and she cares about the people she loves, but she lacks the understanding of why others feel how they do.  It definitely can hinder her ability to form relationships. 

 

@SoontobeMrsA:  Good luck.  Tbh, my sister never received any special therapy for Asperger’s and she has turned out beautifully.  She’s in college, making good grades, and she learned to make friends despite her “quirkyness.” 

Post # 36
Member
5890 posts
Bee Keeper
  • Wedding: October 2010

She is very lucky to have you as a Mom!!

Post # 37
Member
1643 posts
Bumble bee

Again. Info you didn’t include.

Post # 38
Member
6996 posts
Busy Beekeeper
  • Wedding: February 2011

@SoontobeMrsA: you are such a strong woman – and this will only make you stronger. I have a sister who is mentally challanged and i have seen the struggle my parents went through with her. My sister was born normal – well she had epilepsy but no behavioral or mental illness. When she was 5 she had a 9 minute seizure that caused a stroke and damaged her brain. she is 6 years older than me. my parents gave up hope in having more children, fearing the worst for the others to come but eventually had me, and then my 2 little brothers shortly after. I love my sister to death and i wouldnt chang her for anything. she has made me a better person all around. more careing and patient i think. It also makes me repect people more especially parents who have to deal with similar issues.

I went to a school that had a special ed program, my sister went there as well but graduated the year before i went in (graduated in the sense that she got a certificate saying she went to school) and i witnessed kids be evil to these children in the program – it upset me beyond anything and i got to thinking is this how my sister was treated? i made it a point to stand up for these kids because i could not handle people judging her because she was different, people really dont know how to act around people who are  “different”

to be honest i didnt always deal with it well, she used to embarrass me so bad when i was little and i would fight with her like sisters do without realizing how different we were. it wasnt until i was older that i realized how special she is and how lucky i am to have her in my life, disability or not. I had a moment during wedding planning that i am extremely ashamed of – when picking my bridemaids i didnt know if i wanted her in it – i knew she would cry like a baby and i knew i couldnt get my photojournalistic pictures i wanted with her in them – i was worried about finding a dress that fit her as well as look good on my other bridesmaids(she used to be tiny tiny but was put on behavioral medicine and she gained ALOT of weight) i was so ashamed that i would even think that – and in the end i am so happy i had her as my bridesmaid – she wrote me a lovely poem and read it out loud at my reception. she also has a “fiance” i doubt they will actually ever marry, but we let them have their relationship, if it makes her happy, it makes us happy.

This wasnt meant to threadjack but i wanted to share my experience as well and let you know that even though she may have problems doesnt make her any less special and it doesnt mean she wont thrive in this world – my sister will never have kids or live on her own – when my parents pass she will live with me or one my siblings and i honestly believe she is huge reason my family has the bond it does.

Parents these days! i think they are just raised to believe everything is fine. my brother was battling depression and my parents kept telling him he was fine, get over it blah blah blah. people do have problems, big and small and ignoring it doesnt help.

ill be thinking of little annabell and you as well 🙂 stay strong and know that you are an exceptional mother

 

Post # 39
Member
1312 posts
Bumble bee
  • Wedding: June 2013

@SoontobeMrsA: Was just looking you up because I feel like I haven’t seen you in so long! I am a Special Ed teacher and let me tell you, your daughter is lucky to have a Mom that is invested and becoming educated in she is facing. Continue to be her biggest, loudest advocate. Never give up in being vocal in what she needs! I wish I had more parents like you!

Post # 40
Member
7369 posts
Busy Beekeeper

With an engaged parent like you, half the battle is already won. I really applaud you because I also have a family member with one but two special needs kids and she goes thru it. By being an advocate for her she won’t fall through the cracks like so many others. Kudos.

Post # 41
Member
71 posts
Worker bee
  • Wedding: July 2011

Hello,

I saw that you said she is inelegible for an IEP b/c of her high speech scores. Although she may not qualify for speech-lang. services, she may still require other services that an IEP provides, like social skills. Also, you said that she may have difficulty w/ reading comprehension and math problem solving. Did the results of her testing show that this is a deficit area? I’m a speech-language pathologist in the public schools and I have only known of a few students with NVLD. These kids did have IEPs. I would just keep advocating for her needs. If she doesn’t require an IEP now, she may as the curriculum and social expectations increase. good luck!

Post # 42
Member
71 posts
Worker bee
  • Wedding: July 2011

I’m confused, she have a diagnosis of NVLD but on this thread Asperger’s is mentioned a lot. I wonder if there are therapists near you that work w/ children with NVLD. I don’t understand why your district won’t acknowledge her diagnosis and provde her with services! I am frustrated for you! Once again, good luck, you will be her best advocate! Speaking of advocates, if your district doesn’t end up giving her what she needs, I would look into getting an educational advocate.

Post # 43
Member
19 posts
Newbee
  • Wedding: October 2011

I am 26 and have Aspergers – which is close to what your daughter was diagnosed with. I just wanted to let you know that you are not alone. There will be good times and bad, but with supportive and understanding people around you and her, things will be okay.

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