(Closed) Raynaud’s Disease. Anyone diagnosed with it?

posted 7 years ago in Wellness
Post # 3
Member
4693 posts
Honey bee
  • Wedding: October 2013

I was diagnosed when I was little, I don’t really remember much about being diagnosed, but I know it runs in my family. 

Post # 5
Member
4693 posts
Honey bee
  • Wedding: October 2013

It’s not completely horrible, I’ve dealt with it since before I can remember so it just seems normal to me.  If my fingers start to get too cold it’s a lot harder to warm them up than it is to keep them warm enough in the first place. It’s probably not as cold here as it is in Canada, but usually if I wear a pair of thinner gloves under a pair of thicker gloves it’s enough. I’ve also found the best way to warm my fingers back up without it being too painful is to stick them in my armpits.  Looks weird, but it’s effective.

Post # 6
Member
7293 posts
Busy Beekeeper
  • Wedding: October 2011

4 parts Gordons Gin [Has juniper berries on the bottle]

1 part GREEN creme de menthe [has to be green liquid]

1 part Apricot brandy.

 

This doesn’t have to be considered like a big alchoholic thing, but this was perscriped to my brother who has Raynaud’s and sees a natruopathic doctor. He swears buy it , for when he is having severe pain due to the cold. He usually just takes it at night.

Post # 7
Member
5 posts
Newbee
  • Wedding: December 2012

My mom had Raynaud’s and her hands didn’t turn all the way blue, but her fingertips got a bluish/purpley/white color and she couldn’t get warm. She always had a heating pad/blanket/handwarmers (the kind you break and warm up) laying around. She passed away in 2000 so I dont’ know how treatments have progressed, but I’d talk to your doctor for sure for a diagnosis. It may just be a simple circulation issue that can be fixed with herbs or supplements? 

Try the finger warmers – I DO remember her ditching the heating pad because she didnt’ want to burn her fingers and not realize it.

 

Good luck!

Post # 8
Member
2086 posts
Buzzing bee
  • Wedding: June 2012 - Pippin Hill Farm & Vineyards

Never diagnosed, but I have it.  I have two or three toes and a finger that will cut out on me when it’s cold.  My mother has it, too.

It was my understanding that it didn’t even matter how thick your gloves were.  When it’s cold out, it’s probably going to happen.  Maybe I’m wrong?

Post # 9
Member
4693 posts
Honey bee
  • Wedding: October 2013

@FriedBride:  I DO remember her ditching the heating pad because she didnt’ want to burn her fingers and not realize it

This for sure.  Ice cold water feels like it’s burning hot when my fingers go white, you really can’t tell if something is too hot!

Post # 10
Member
97 posts
Worker bee
  • Wedding: September 2012

I have Raynaud’s – I think it affects people to different degrees, and what you have sounds like it! I don’t generally get that intense pain but my extremities do turn white/blue/purple and lose feeling pretty quickly in the cold, and it’s very hard to keep my feet warm especially. I was diagnosed right before I started farming in earnest and my doctor tried hard to dissuade me (I was headed for a dairy farm in January… it was COLD!) but I actually found that the longer I worked outside, the better my tolerance grew for cold. I think it had to do with the exercise too – my doctor said exercise can help. I think there are pills but I’m not bad enough to need anything like that. When I’m doing stuff outside in the cold, toe/hand warmers are pretty essential! And they work pretty well. For my hands, I like to do mittens (work way better than gloves, though not as convenient if you are actually trying to use your hands) either with a liner, or a pocket, so I can use the hand warmers.

Post # 11
Member
1446 posts
Bumble bee
  • Wedding: May 2012

That sounds like Raynaud’s…I don’t have it, but I have lupus and oftentimes they go hand in hand. It seems like I remember my rheumatologist ordering some bloodwork at one time to see if I had it, but maybe I’m remembering wrong. I’m really sorry you’re going through this though 🙁

Post # 12
Member
6248 posts
Bee Keeper
  • Wedding: August 1900

I’ve had two doctors mention that I probably have Reynaulds.  (And two family nurses.)  Apparently it runs in families and my brothers and I have it, among other family members.  I notice that when it’s cold my fingers are drained of color and often turn blue/purple.  It’s very painful until I lose all feeling in my hands/feet when I’m in the cold for too long.  It helps to keep moving, such as shoveling snow but that doesn’t always work.  I’m sorry I don’t have any tried and true remedies for you, but know that you aren’t alone. 

Post # 14
Member
7293 posts
Busy Beekeeper
  • Wedding: October 2011

@Take The Reins: hehe , its okay for a sip anytime of day 😉

 

Post # 15
Member
385 posts
Helper bee
  • Wedding: July 2012

I’ve had a doctor tell me that I might have it, but I haven’t been formally diagnosed.  My fingers don’t get the dramatic color change that you see in pictures online, but they get cold super easy, and sometimes my pinky fingers go numb.  I have some fingerless gloves and I use a space heater at work, so usually it’s not too bad there.  At home I keep my heat turned up.  In other situations I just end up blowing on my hands a lot or sticking them under my arms or legs.

Post # 16
Member
57 posts
Worker bee

Here is my experience:

I was never diagnosed with it, but my sister was, and I experience the same symptoms that she does. And since there is no real good “cure”, I never followed up with a doctor.

Th symptoms were worse in my teens, and started to improve in my 20’s. I was also underweight in my teen years (and so was my sister), and as I gained weight, the symptoms improved.

I don’t really experience as much pain. Mostly, my toes (mostly) will go numb, and portions of my feet will go numb. They usually turn blue/red/purple and white patches. The white patches are the numb parts. My sister has the same problem, but more so with her hands.

It is kind of random when it happens. It could be normal temps inside, but usually at extreme cold temps. Never at hot temps. My best recommendation is to try to understand what triggers it, and also keep plenty of hand/feet warmers around to slip in your shoes/gloves to ease the discomfort.

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