Post # 1
I just found out that I have PCOS. I did a quick search on it and read the info the Dr. gave me and I have all the symptoms. I get laser for my hair, I have trouble with my weight (have always had trouble), irregular and heavy periods, I manage my acne with Proactiv, etc. I sound like a hot mess and now I feel like one.
I’m really upset about this first b/c I’ve been trying really hard to lose about 30lbs. I just recently joined CrossFit and started counting my calories and trying to “eat right,” but I almost feel like everything is futile now. I’ve been trying different things to lose weight for like a year now and without much luck – I don’t see results and so I cave and go back to my old ways, which causes me to gain/lose the same 5lbs.
To top it off, while I’m not TTC now, I always wondered if I had problems conceiving and now I know that I will likely have problems conceiving (especially if I don’t lose weight) and possible complications after conceiving. This is really scary, as I’m sure many of the TTCBees know.
I don’t want to feel like everything I do is futile. I’m hoping some of you ladies have some PCOS success stories. What did you do to get your weight down and manage the symptoms and what symptoms did you “get rid of” but controlling your weight and what symptoms do you still fight with? Have you gotten pregnant – how long did it take, did you have to get help or were you able to do it on your own?
Thanks In Advance, ladies. I’m feeling down 🙁
Post # 4
i was diagnosed with PCOS at 17. from 17 to 21 i gained 65lbs, had 40 cysts between both ovaries, infertile obviously, high testosterone, no period without birthcontrol, impossible to loose weight with medication, diet and excercise did not a thing. i was also insulin resistant so my body stored calories instead of burning them.
in the end at 21 i opted for bariatric surgery with the support of my endocrinologist, OBGYN, and primary DR. 2 years later and i lost 125 lbs, cysts are gone, sugars are normal, i have had a period every month since surgery which signifies i’m ovulating and healthy to TTC in 11 months after my wedding!
Any questions feel free to message me!
Post # 5
Bariatric surgery did not work for me,I regained the weight with 2 babies and then my metabolism was so shot from it I couldnt lose it again. What does work like a charm for me, and most ppl with PCOS, is get rid of the carbs. No breads, flour, sugars etc… lots of fresh veggies and fruit and lean protien and the weight fell off. I saw a metabolic specialist who deals with mostly PCOS patients and thats the diet he uses and boy does it work!
When I went off the diet the weight will creep up, I really do super well without the carbs
Post # 6
Thank you for your responses. I’m not sure what bariatric surgery is – I will look it up. Right now, I’m only about 30-40lbs overweight. Part of it is probably because I’ve ALWAYS been INCREDIBLY weight-conscious and dieting and exercising. I just joined CrossFit and was debating if I should do Paleo and now I’m really considering it. I did South Beach before and it worked for me really well and now I know why – it’s essentially a low-carb-then-right-carb diet.
I guess I just need to know that it’s POSSIBLE for me to diet and workout – find something that works – and stick to it and keep the weight off without medication, without surgery.. etc. I’m just so scared that I’m going to lose this uphill battle. I’m also scared I won’t be able to give my Fiance children. 🙁
Post # 7
I am in an odd situation, because I’m not sure if I have it or not. I was diagnosed at 16, back in New Zealand, after months of blood tests, endochrinologist visits, ultrasounds etc. Then, when I was 25, my gyno here in Japan told me that she thinks I was diagnosed in error, as she found no cysts when giving me an ultrasound for something else entirely. Regardless, I still have some symptoms, and will get a full evaluation when I move to the US (hopefully in August).
Regardless, I wanted to say that I have successfully lost 11 kg – about 25 pounds “with” PCOS. I took up running, counted calories and cut down on simple carbs, and it seems to be working.
I also have friend who have had babies with PCOS, so there is absolutely hope. Even though a number of women need help (often drugs etc), most women with PCOS can go on to have a baby.
Post # 8
@futuremrsk18: Don’t despair! It sounds like you really want to change your lifestyle, and making an effort can really go a long way to managing PCOS.
I was diagnosed with PCOS when I was about 18, I think, but I had it for a few years before that. I didn’t have the typical cysts on my ovaries (not everyone does), but I had very irregular menstrual cycles, was heavy, had pre-insulin resistance, had really weird acne, thinning hair… It wasn’t good.
I changed my diet (eat as little processed foods as possible!) and saw an endocrinologist. For me, the biggest help has been losing a little weight, and going on the pill. Are you on the pill? It helps regulate your hormones, which helps so so much with PCOS. Also, your doctor may prescribe metformin or other prescriptions, which can help a ton. Once you take those, a lot of your symptoms should go away, and it is even easier to lose weight.
I haven’t TTC, but there are a lot of success stories for women with PCOS, especially if you get it under control before trying to get pregnant. There is a website with more info called soulcysters.net- you might want to look there too.
Oh, and as far as remaining symptoms- the only ones I can see is that I still get a few weird stray hairs in random places (yuck- but I guess a lot of “normal” women get them too?). Also, my hair is still fine, but I think maybe it just is meant to be that way. My skin looks flawless, and my bloodwork has been healthy for years.
Post # 9
@chocolatecoveredstrawberry: I got off the pill recently – b/c I felt like my libido had declined. I am getting back on the pill as soon as I get my period again. I do get those stray hairs, but I get laser hair removal for them – they’re pretty stubborn though!
Thanks for responding that there’s hope – I’m starting to feel better!
Post # 10
I was told I have PCOS when I was about 22 and doing a research study (they saw the cysts on an ultrasound). I have regular periods so I’m hoping I won’t have a problem when TTC. Weight is fine – used to be on the light side but now I’m average. My big problem is the acne…I’m 33 right now and I think it’s ridiculous to still have my face still break out! Haven’t been able to solve that one. Tried proactive for a while with no luck. Hate the marks I get (mostly on my chin) from the acne, sigh…
Post # 11
@futuremrsk18: You wouldn’t be a candidate for bariatric surgery. Bariatric surgery is for obese individuals who have not had success through exercise + diet and it essentially involves making the stomach smaller by removing part of it or putting a gastric band in.
Post # 12
@kay01: Have you tried Differin? You’d need to get a Rx from a dermatologist and it’s pretty expensive (like over $100 a tube I think), but it lasts a very long time and it worked for me before (my acne isn’t as bad as it used to be and proactv works now).
@confusedbee333: OHH, yes, I know what that is.
Post # 13
@futuremrsk18: I’ll ask my doctor for a referral at my next appointment. Thanks! I’ve not met with a dermatologist yet, but I’ve gotten to the point where I’m going to go to one now. (I suggested it last time and my doctor said to try a few things first.)
Post # 14
@futuremrsk18: Oh, stray hairs… they are annoying. That can be an annoying side effect for a lot of women on the pill, but maybe your doctor can suggest a different pill that might work better for you?
Oh, and if you have oily or combination skin, I swear by putting diluted apple cider vinegar on a cotton ball to clean my fface, and occasionally doing an organic raw honey mask. There also are awesome products I discovered recently- Giovanni skin care. They aren’t that expensive ($8 a product) but can be tricky to find. Here is the website if you are interested:
Post # 15
@kay01: good luck! let me know how it goes
@chocolatecoveredstrawberry: hrm, interesting!! I will definitely look into that. my dr. just gave me a rx for a new pill called lo loestra, it’s only 10mg and the lowest dosage on the market right now, i think it’s brand new, so yeah.. i’m going to try it out and see how that worksfor me..
Post # 16
I know the feeling..
I was diagnosed at 16 although issues with hormone issues were apparent at a very young age. I had periods that were painful lasted months at a time, my hair on my head has thinned out a lot in the last year or so, I grow a thicker beard than FI(pretty damn embarrassing). Never had acne, I have pretty awesome skin. I also don’t have cysts so, not 100% this is what it is (I was told you always get cycsts with PCOS). But I also have issues with my thyroids.
I was put on a pill a couple of years ago, it helped for three months and totally stopped working. And my new doctor doesn’t really know a lot about it.