Post # 1
My brother occasionally had seizures at night, and they left him unconscious for a while after each one… On April 14th we think he had his final seizure and it looks like because he was sleeping face-down, he wasn’t able to support himself or aware of what was happening, so with the weight of his face on his pillow, it looks as though he suffocated… he didn’t make it.
I just wanted to share this story in case you or anyone you know has seizures at night – if that’s the case, please take precautions that there’s someone sleeping nearby when you/they sleep, if possible.
I can’t tell you how much it pains me that my brother’s gone, and that maybe, if someone were nearby to hear him seizing, his passing could’ve been prevented…
Post # 3
I’m so sorry for your loss. It can be a hard life for those who have epilepsy and for their families.
The problem is that it is totally unrealistic that someone will always be watching over them while they sleep. Unfortunately, bad things happen to good people.
I hope you are able to take comfort in the wonderful memories you have of your brother.
Post # 4
@julies1949: Thanks. Yeah, I’m glad we have good memories together. One day at a time, I guess.
I’m not suggesting that people ‘watch over’ people who are epileptic, but perhaps be on the same floor, if possible. (Though I understand some people may live alone.)
My brother slept in the basement, but when he slept upstairs we coudl’ve at least heard the noises he made when he seized, and so we were able to reposition him if necessary.
He eventually decided he wanted to sleep in the basement and though we may have protested, he felt that it would be best for him (stress-wise) to have a space of his own. He also had way fewer seizures than he used to – they were pretty rare at that point.
I was no longer living at the house, but we could’ve pushed harder to have him stay upstairs. I know it doesn’t do us any good to think about ‘what ifs’ – I’m just sharing our story in case it can be helpful to anyone.
Post # 5
I am so sorry for your loss. How extremely difficult it must be to lose your brother. Lots of prayers to you and your family.