Slight touch causes deep set pain

posted 6 years ago in Wellness
Post # 3
Member
574 posts
Busy bee
  • Wedding: January 2011

Does this happen all over your body, or are there certain places that are more tender than others?  Do you have a fever, or could be sick?  Has this been going on for awhile, or is it very recent?

Not to freak you out, but I have fibrolyalgia, and that’s exactly what happens to me… πŸ™  Any place on my body can be in pain from the slightest touch, but, my pain is much worse in my ‘tender spots’. The points most common in fibromyalgia can be seen on this diagram, but they aren’t the only ones.  I also have tender points in my ankles – they just aren’t used in the diagnosis criteria.

You should make an appointment with your doctor, talk through your symptoms, and have blood work done.  This can rule out or pin point other things that could be causing the pain.  

If it all comes back clear, you should ask for a referral to a rheumatologist.  Muscle pain is their specialty, and fibromyalgia or not, they will be the best ones to help get to the bottom of it.  Pain is your body telling you something!

Post # 6
Member
574 posts
Busy bee
  • Wedding: January 2011

It really varies for me.  Fibro isn’t always all over constant pain like when you have the flu (although it can be).  Sometimes, it just means that the pain manifests all over your body, instead of only being in one place (like when you have a bruise on your foot – your hand would still feel fine, etc).

Sometimes, yes, my skin does get really sensitive to touch or pressure.  I can do hugs, massages, and hard touches most of the time, unless I’m having a really bad day.  Things irritate my skin, though, and usually my pain is achey.  I also can’t stand even the slightest touch on my most tender points… Darling Husband is under strict orders to never, EVER touch the insides of my knees.  OMG… it’s awful.

Normally, it’s just a dull achey feeling in random places.  So, my hands might ache, or my legs, or whatever.  It feels very much like growing pains did when I was going through my teen growth spurts.  I would get terrible leg aches that would get worse and worse until I would feel a firey muscle pain that would leave me in tears.  The only thing that helps is Aleve and sleep.

The difficult thing with fibro and other rheumatic diseases is that they usually are VERY different from person to person.  Do you get muscle twitches regularly in random parts of your body?  I do quite frequently!  In fact my knee/thigh muscle has been twitching all night! πŸ™‚  Do you have trouble sleeping or anxiety?  Do you have digestive issues?  Those are other common symptoms, but again, fibro varies SO widely in manifestation and intensity that it’s really hard to know without speaking to a doctor and doing tests.  

Don’t get too worried yet – it’s really, really important to have a variety of tests done and to see what a doctor has to say. πŸ™‚

Post # 8
Member
574 posts
Busy bee
  • Wedding: January 2011

Anytime!! πŸ™‚  I like to help!  Definitely go speak with your doctor, and ask for bloodwork.  Be sure to mention you’re concerned about it possibly being fibromyalgia, or another muscle related disease.  Pain definitely isn’t normal, and your body wants to tell you something!

Post # 9
Member
3452 posts
Sugar bee
  • Wedding: September 2012

@subbywife11:  This is interesting, because I have spots on my lower back and hips that if touched I want to cry.  A couple of times my Fiance has touched my hip and I’ve just about screamed.  He will say he only touched me slightly with his finger, but to me it feels like he sat on the spot.  If he even slightly touches or presses on my lower back…forget it.  I have occasional muscle aches that feel like they are deep and to the bone.  Lately, I’ve had constant muscle twitches especially when I go to bed at night.  One night, it was so bad in my leg that I was having trouble going to sleep! 

Sorry I think I threadjacked here, but I read your post OP and thought “hmmm that sounds like me…”. 

 

Post # 10
Member
2073 posts
Buzzing bee
  • Wedding: July 2012

My first thought before I even clicked on the post was fibromyalgia.  I have it and sometimes it even hurts to have water from the shower hit my skin.  Like @subbywife11, my pain is sometimes that all over flu~like pain and other times it’s concentrated into one particular area.  I’d mention it to a doctor.  

Just a word of caution, some doctors (like my old rhumetologist) don’t “believe” that fibro exists and he accused me of being addicted to pain meds.  SO not the case and I promptly found another doctor who did believe me.  I actually have a psychiatrist as my fibro “manager”  It’s such a strange disorder and my doctor asked me lots of seemingly unrelated questions about mood, sleep, fatigue, digestive issues, etc before ultimately coming to that diagnosis.  

It may be helpful to do a little bit of research online before you see the doctor about symptoms to see what matches up with your symptoms and fibro.  The more you can tell the doctor upfront, the less time you will spend feeling like sh*t and not knowing why.  

If you are comfortable with some “alternative” therapies, I’ve found acupuncture to be quite helpful with managing the pain symptoms.  Some people also find it helpful to do a gluten/dairy free diet as well but I can’t speak from personal experience on that one.  Physical therapy, moist heat, and gentle massage can help too.  Be upfront with your massage therapsit and tell him/her where it hurts so he can avoid those areas and/or use a really light pressure.  My heating pad is my best friend when I’m having a flare.  I’ve also found that getting a little bit of sun when it’s warm outside can help with the pain.  It warms my bones (I know I sound like an old lady) but it seriously helps.  Maybe it’s the vitamin D.  

Good luck and I hope you get to feeling better soon!

Post # 11
Member
5405 posts
Bee Keeper

I wanted to throw out that you should also ask for a Lyme disease test

Post # 12
Member
574 posts
Busy bee
  • Wedding: January 2011

@MrsBlueSeptember:  Nope, no apologies needed πŸ™‚  If you haven’t been to a doctor, maybe consider going.  All those symptoms sound like no fun on their own, so it would be worth checking it out to make sure it’s nothing major.  Anything like fibro is so hard to diagnose in person, let alone over the internet, but all that you were describing I experience also.  Never hurts to get checked just for peace of mind, if nothing else.

 

@MrsPaulsBabyBallerina:  This is very, very true.  I was lucky to have doctors that listened, but I know that’s not always the case.  Don’t be afraid to advocate for yourself whenever needed.  I actually brought up fibromyalgia as a possible diagnosis before anyone else did.

 

@BlondeMissMolly:  Good idea!  Lyme’s can mimick the symptoms of fibro, lupus, and other similar diseases.  Doctors often won’t diagnose fibro until everything else is ruled out.  There is no blood test for fibro, so it’s a diagnosis of elimination.  Once everything else is eliminated, then they’ll begin thinking other possibilities.

Post # 14
Member
7794 posts
Bumble Beekeeper
  • Wedding: November 2010

Fibro was my first thought as well, so excellent call about the lyme.

I totally agree about some older docs not believing it’s a “real” dx.  It is and a rheumatologist should ultimately be the one to help you manage it.

 

Please do call your doc tomorrow and keep us all posted.

Post # 14
Member
1 posts
Wannabee

I’m just wondering if you ever found a reason for your  problem. I have the EXACT same thing going on, every detail. I have read about fibromyalgia, and it doesn’t really feel like that’s it. Hope you’re still out there! Thanks.

Post # 15
Member
1011 posts
Bumble bee

Fibromyalgia can cause this, and since the manifestation is different for every patient, it’s not unusual for patients to have symptoms that don’t match the common criteria (this is partially because Fibromyalgia itself is so poorly understood/defined).

It’s also possible that this is Complex Regional Pain Syndrome (CRPS), which causes pain similar to that from Fibromyalgia, but it’s localised, not generally widespread.

Regardless, anyone having symptoms like this should absolutely see a doctor.  There are a lot of specific tests that they can run that can help rule things out, which is important for the diagnosis process.

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