Post # 1
Went to the doctor this morning. Had some good news, but mostly still don’t really have any answers.
The good news, I am down 1 pound. Then it starts getting complicated. Breif history, not a big eater, and I have gained about 30 lbs in the last 2 years. Constant low to no energy, hair loss, really dry skin. All the classic symptoms of Hypothyroidism. Had tests done in mid December, vitamin D levels very low, thyroid test shows high but in the normal range. So the tests don’t match the symptoms.
Doctor wants to treat the symptoms, and not the test results. And I am all for feeling better, so I am in agreement with her. Most doctors will not do this, usually the test is the standard in which they go by. However, she explained that 50% of her female patients have the same symptoms as I do, and their test results are the same. So she has been doing some research as to why. This is how she explained it to me. Some research has been done and they are starting to find that the thyroid hormone (defiency) could be kind of similiar to diabetes, meaning different form of hypothyroidism. Like at type one and a type two. She feels that the test results are accurate, my body is producing the hormone, but for whatever reason, my body is not using the hormone that is produced. For whatever reason, my body isn’t absorbing and using the hormone. So I will be put on medication (a very low dose) to see if there is any improvement in my symptoms. The medication I will be given has more of the T3 element in it and that is the part my symtoms show as lacking.
Are we all confused now? I hope I explained that okay.
Now of course, I may see no improvements at all. But if I do she wants to know immeadiately, as I said this is just an experiment of sorts. As we go along, meds will be adjusted to see if I find any kind of relief from the symptoms.
Has anyone else heard of this before? Do you think I am crazy for allowing the doctor to treat the symptoms in spite of the test results?
I am grateful today that I have lost a pound, and not gained. But more than that, I am thankful I have a doctor who will did deeper to find an answer to help me feel better.
Post # 3
@thumpurr: Sorry if I misunderstood, but is it your TSH levels that test high while T3 and/or T4 test low? TSH and T3/T4 operate on a negative feedback mechanism. Basically when there are low circulating levels of T3/T4 from the thyroid gland (as in hypothyroidism), the anterior pituitary releases more TSH to compensate. I’m also curious how many times your levels were tested. Hormone levels can fluctuate throughout the month. Also, are your changes recent and have you been stressed lately? Just wondering since last year I got super super stressed and had hyperthyroid symptoms, which went away on their own after the stress subsided. My TSH levels tested all over the place; sometimes they were high (indicating hypothyroid) and sometimes low (hyperthyroid). But my T3 and T4 were generally normal.
It’s awesome though that you’re on the road to treating your symptoms! Are you on Cytomel? Synthroid?
Post # 4
@bread_n_brie: No my thryroid is testing in the normal range, but on the high end of normal. I have tested before, and I am starting meds in a couple of days. She gave me the name of the medication, but I don’t have the prescription yet. The meds I will be prescribed has a higher dose of the T3 hormone (whatever that means), instead of the T4 (whatever that means). She doesn’t feel that my body is absorbing the hormone that the thyroid is producing. Several of her female patients (including my sister) all are having similiar symptoms, and normal test results. And she has decided to try to treat the symptoms in spite of what the test results have shown.
Does that make sense?
Newer medical studies are in the beginning stages of why some women show all the symptoms of Hypothyroidisn, while the test shows a normal result. Kind of like diabetes, your body produces insulin, but for some reason it doesn’t absorb it. I don’t know what all of it means, all I know is a year of feeling like crap sucks. And doctor after doctor just continue to ignore this fact.
Post # 5
Can you tell us your TSH and T4 levels? And did they do an antibody test? I mean, you can certainly try taking a low dose of thyroid replacement for a few months and see if it helps, it probably won’t do any harm. That said, it probably won’t help you if you don’t have any thyroid deficiencies. I guess your doctor is thinking that you are thyroid insensitive (like insulin insensitive in people with type 2 diabetes). I’m not really sure if that can happen, but it’s a theory.