(Closed) Spinoff: Fetal Screening / Quad Test

posted 7 years ago in Babies
  • poll: How do you plan to approach fetal screening and the results?
    We will have fetal screening performed and the result might lead us to terminate the pregnancy. : (25 votes)
    49 %
    We will have fetal screening performed but will carry the child to term no matter what the results. : (8 votes)
    16 %
    We will not have fetal screening because the results won't affect our decision to have the child. : (12 votes)
    24 %
    We haven't discussed this yet or don't know/agree on how we will approach it. : (5 votes)
    10 %
    Other : (1 votes)
    2 %
  • Post # 3
    Member
    2522 posts
    Sugar bee
    • Wedding: November 2013

    This is so difficult.  If I terminated that’d mean that in the back of my mind that I truly believe that they (those that have those diseases) are unfit to even exist and I don’t think I could do that.  I believe everyone has a chance to live.  And I’m one of those that think that “what if the tests were wrong?”

    EDIT: Also, those tests can be pre-cautionary.  In case you need to treat something in utero or immediately after birth, so yes, I would have those tests. Plus if I’d like to know if my kid could die, I’d like to know so that I can appreciate the time we have even if it’s just inside me.

    Post # 4
    Member
    325 posts
    Helper bee
    • Wedding: May 2009

    I’m not there yet, so I’m not 100% sure what my husband and I would decide to do. But even if we determined we wouldn’t terminate the pregnancy, I would still get the screening so that we could prepare ourselves for the outcome. it would give me the opportunity to read up what my child might have (Down syndrome, etc) and how we can give our child the best life.

    I also think that the type of defect might play a role- as some are completely debilitating, while others are much more manageable and provide a better quality of life.

    Post # 5
    Member
    466 posts
    Helper bee
    • Wedding: October 2010

    We did the first screen and the AFP.  Everything came out fine.  I’m really glad we did the first screen, because that’s where we found out it was twins. 

    But in retrospect, I’m not sure why I did them.  I would definitely not have terminated.  If I do get pregnant again, I think I would probably opt out of any screenings.  It does seem to to cause needless worry in a lot of cases.

    Post # 6
    Member
    288 posts
    Helper bee
    • Wedding: November 2009

    We did not have any type of fetal screening done. We had the basic first “dating” ultrasound, then another about 20 weeks. We woud not terminate the pregnancy regardless of the outcome had we had the testing. I can see how many people would have the testing regardless of their stance on termination, many people like to be prepared, if there is a serious issue that may need treatment after birth. My OB said in her practice it is 50/50. About 50% have the testing and about 50% dont.

     

    Post # 7
    Member
    3587 posts
    Sugar bee

    We had the Downs test and some others, but it wouldn’t have made a different in keeping the baby. I prayed the baby was okay (he/she is, thank God) but I wasn’t going to terminate.

    Post # 8
    Member
    2392 posts
    Buzzing bee
    • Wedding: December 2009

    When we are expecting, we will do the tests and will not terminate the pregnancy, no matter what.  I would want the tests only to be able to prepare myself if there were going to be complications.

    Post # 9
    Member
    1120 posts
    Bumble bee
    • Wedding: January 2010

    We discussed this and it was a very difficult discussion for us.

    I will not get an abortion no matter what happens, it is too much against my principles and I couldn’t live with myself.. But Darling Husband does not feel capable of raising a child that would have great disabilities. That leaves us in a tough spot with few options, but we sorted it out with a few scenarios.

    However, given our family history, my age and physical condition, the risks are very small to start with.

    Also, the first screening gives us only odds, and if the risks exist, the subsequent screening have risks of miscarriage – I wouldn’t want to risk losing a baby for the sake of testing.

    If the results came back positive, I would spend the rest of my pregnancy very stressed out and this would do nothing to help baby.

    We decided not to test. Darling Husband understands that abortion is not an option and risking a stress filled pregnancy for results that are not certain is not worth it for us. Our child will be the perfect version of himself, and if there are problems we’ll deal with them as they come.

     

    Post # 10
    Member
    389 posts
    Helper bee
    • Wedding: April 2010

    We already knew I was a carrier for a disorder, so we always knew I would have to have a CVS or amnio with each pregnancy.  Would we have terminated if the results were bad? It’s really hard to say. What we were looking at, 90% of the babies don’t make it to term, and of those that do, 90% die in the hospital… it really doesn’t compare to Down’s or spina bifida. We spent a lot of time talking about it beforehand, and for something mild, like Down’s, we wouldn’t have terminated– no way. But something like we were screening for… we talked a lot before, and just felt like we couldn’t make that decision until we were actually faced with it. It’s just too big of a decision to not factor in the emotions at the time. Talking about it in the abstract just doesn’t work for us, for something like this.

    If it won’t make a difference, why screen? Well, we weren’t sure what we would do, but if we decided not to terminate, there would be a lot of expectations to temper– “Well, baby probably won’t be able to swallow, so will have a feeding tube all his/her life, so I don’t need any tips on breastfeeding, but thanks.” I mean, telling everyone at the get-go what is going to make my baby a little different would give people time to adjust and be joyful for what we can hope for, and be a little sensitive around what we won’t have.

    And those that mention SB– with spina bifida, what I’ve read most recently is that the children with it who have surgeries to fix the issue WHILE IN UTERO do better than the children who have surgeries to fix it after birth. Amazing, right? So I’d want to know so I can give my kid the best chance at normal life.

    Post # 11
    Member
    2695 posts
    Sugar bee
    • Wedding: February 2008

    Yes I had it for two reason.  Primarily I did because if it was Downs or something similar, I think it would be better to prepare (mentally, emotionally and practically – eg work and child care plan) for having a special needs child if that is what we were to have even though I would carry it to term.  And there are other conditions which could be fixed in utero or would make the fetus not able to survive  – and honestly, I would rather not carry a baby to term knowing that it had no chance of survival. 

    Post # 13
    Member
    2867 posts
    Sugar bee
    • Wedding: September 2010

    @Mrs.KMM: I asked this question a while back when I was trying to decide whether or not to have it. (http://boards.weddingbee.com/topic/quad-screen)

    I wanted to have it done for two reasons:
    1) It was covered by our insurance
    2) To make the most informed decision

    Our results were normal so I can’t say now if we would have done further testing but I feel like the screening tests are good even if you don’t do further testing because at least it lets you know if there’s a potential the baby could have a certain disorder.

    Personally even if I were a person who knew 100% I wouldn’t terminate a pregnancy I think having the extra information would be helpful in preparing yourself to care for a child with special needs.

    Post # 14
    Member
    952 posts
    Busy bee
    • Wedding: August 2010

    I’m not sure if we will get it done. We are getting up there in age and higher risk for some of the disorders. It would have to be a decision once we found out. I think we would both lean towards termination, but not having gone through it before, I can’t say for sure. I have worked with lots of children with disorders and some cases are so hard, especially for the parents. They always look so tired but so wonderful at what they do. 

    Post # 15
    Member
    4371 posts
    Honey bee

    Darling Husband and I have discussed this before, that if we ever decided to have kids, we would get tested. If something showed up, we both lean towards termination.

    The topic ‘Spinoff: Fetal Screening / Quad Test’ is closed to new replies.

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